Search found 1038 matches

by sandraW
Sat Nov 18, 2017 8:57 am
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 150522

Re: 36 yo adv pancr cancer patient treated in France

Stephuna, glad to hear the diuretics are helping with the swollen belly as it is so uncomfortable, I hope you are home now, it must be a great comfort to know that the hospital is so in tune with you and are there ready to help. Please be sure we are all sending our love to you, and you are in our t...
by sandraW
Sun Nov 05, 2017 5:54 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 268132

Re: Thanks for sharing your experiences . . .

Mo I am sure you must feel quite lonely on here at the moment, I wish it was because no one was suffering from PC anymore but I know that's not true. I do check every day to read the posts, ad I am keeping up to date with you and Peter and of course Boris's antics too, sorry he is under the weather,...
by sandraW
Fri Nov 03, 2017 8:37 pm
Forum: General chat
Topic: reliability of CT scans
Replies: 14
Views: 12211

Re: reliability of CT scans

Hi BlacJac I am glad my fellow forum posters could be of help in some way for you. As you say it is very hard when we are going through what most of the posters on here are going through,or have been through with this insidious disease. We certainly don't wish to be unkind in any way, that is not in...
by sandraW
Wed Oct 18, 2017 4:53 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 268132

Re: Thanks for sharing your experiences . . .

Mo, your letting off steam is just as interesting as when you doing your usual posting, please be sure we all love reading it, even though we do all feel for you. I know what you mean about the complete denial, been there and done that, its certainly not easy. And as for having a day off from cancer...
by sandraW
Wed Oct 18, 2017 4:33 pm
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 150522

Re: 36 yo adv pancr cancer patient treated in France

Stephuna, Just sending a big ((((hug))) this bloody shitty disease, brings so much heartache it is relentless, it was bad enough losing my husband at 68, at least he had had a reasonably long life but for young people in your position its just devastating. I do hope you got to Disneyland with your c...
by sandraW
Wed Sep 27, 2017 9:57 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 268132

Re: Thanks for sharing your experiences . . .

Mo, You are a tonic, you really are, that's it now its "Boris" in a very sexy accent the toy boy!!! Glad the cold water helps with hiccups, lets hope it continues to give relief. Its so true your world does just as you say diminish, its all about doing what we can to help them feel as good as they c...
by sandraW
Thu Sep 21, 2017 9:27 am
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 115795

Re: Thoughts from the PC frontline

W&M, sorry to hear your news, why on earth would you want to be patient you want those test now if not yesterday, its all so bloody scary, and I remember those feeling so well. I hope you get the diagnosis so you can get the burping sorted soon, and then that the treatment works quickly and hubby ca...
by sandraW
Thu Sep 21, 2017 9:14 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 268132

Re: Thanks for sharing your experiences . . .

Hi Mo, I did reply the last time you posted, but on looking at your thread its disappeared somewhere, it was just to say I hope you got a good Macmillan nurse and you obviously have. It does make a massive difference just knowing there is someone there to ring should you need it, I never needed to r...
by sandraW
Fri Sep 15, 2017 12:56 pm
Forum: Patient Experience Forum
Topic: Jane's story
Replies: 30
Views: 36706

Re: Jane's story

Hi Jane, it really is a lovely picture, and what a fabulous day it sounded. Sorry to hear you are not feeling well, but I am sure you had some fabulous advice from our nurses, I hope with the antibiotics you will feel better soon. take care sandrax xx
by sandraW
Fri Sep 15, 2017 12:52 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 113018

Re: Stephen's Story

Sandie, I am so sorry, but glad it was peaceful and that you were all there with him, sending you a great big cyber (((hug))). The NHS can be wonderful when it really needs to be, sorry you couldn't get him home, but perhaps it was for the best. please take care love to you and the boys sandrax xx
by sandraW
Tue Sep 12, 2017 10:17 am
Forum: Family, friends and carers
Topic: Our story...
Replies: 24
Views: 24135

Re: Our story...

Kathryn, I am sorry to hear your step dad has passed away, this disease is relentless, it is truly horrible. Even though your Dad dd not have an easy passing, I am glad you managed to get him home and that the "angels" gave him the help he needed. As you say the forum is an amazing place, I got lots...
by sandraW
Tue Sep 12, 2017 10:05 am
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 113018

Re: Stephen's Story

Sandie, So sorry to hear Stephen is so poorly, you know we are all here for you and understand just what you are going through, not that that makes it any easier. I am glad your son is able to be with you, you could do it alone, but its just so much easier when they are there with you. I am sure Ste...
by sandraW
Fri Sep 01, 2017 4:33 pm
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 115795

Re: Thoughts from the PC frontline

Hi W&M, Just to let you know I am thinking of you too, I remember those feelings only too well, and just how scary it all is fingers crossed for a benign blip too, love sandrax xx
by sandraW
Fri Aug 25, 2017 3:34 pm
Forum: Family, friends and carers
Topic: Help....... Dad diagnosed with PC Yesterday.....
Replies: 3
Views: 6491

Re: Help....... Dad diagnosed with PC Yesterday.....

Hi Will, Sorry you find yourself in the place no one wants to be but hopefully we can give you some support along this roller coaster journey. Don't worry about being confused, this disease isn't straight forward. As for your post please post when you are happy, sad, angry and just plain fed up, we ...
by sandraW
Thu Aug 24, 2017 9:38 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 268132

Re: Thanks for sharing your experiences . . .

Mo, what can I say. I am just glad, Peter made the most of his time when he was feeling well. I think we do just get a sense of what is actually happening, when we know our loved ones so well. Hopefully when he gets his pain relief right, he will feel a bit better but it is so hard. Boris is truly s...

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