Search found 50 matches

by Carole McGregor
Sat Sep 21, 2013 10:55 pm
Forum: Patient Experience Forum
Topic: Disappionted
Replies: 5
Views: 5573

Re: Disappionted

Linda Like many others, I turn to this forum for support and information for someone else - in my case, my husband Clive who is the same age as you and was diagnosed around the same time. I absolutely understand why many pancreatic cancer sufferers find it too difficult to do this themselves. Thats ...
by Carole McGregor
Sun Sep 01, 2013 6:51 pm
Forum: Patient Experience Forum
Topic: Question about ca19?
Replies: 11
Views: 11111

Re: Question about ca19?

Hi there Just been advised by the oncologist treating my husband that CA 19 -9 isn't measured where we live (west of Scotland). I had been meaning to ask about it each time we have had consultation but there has always been something else just as important to discuss. Now a bit shocked. Clive's canc...
by Carole McGregor
Sun Sep 01, 2013 6:40 pm
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 58741

Re: Chemotherapy options

Hi Steve Proff Leen has been very honest. Nanoknife not a cure but hopefully will slow down progression of disease and extend life. He has only done 17 pancreatic tumours (loads on liver) so still early days though mentioned one patient has survived for 2 years post treatment. Big attraction for us ...
by Carole McGregor
Sun Aug 25, 2013 11:51 pm
Forum: Family, friends and carers
Topic: Nanoknife and stents
Replies: 7
Views: 4623

Re: Nanoknife and stents

Hi Karen Meant to email you before now. Clive has metal stent and had Nanoknife last week as you know. Didn't seem to cause any particular problems though there is increased risk of infection so Proff Leen emphasised need to be vigilant. You will probably want to check with him anyway in case positi...
by Carole McGregor
Wed Aug 21, 2013 7:25 pm
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 58741

Re: Chemotherapy options

Hi everyone Thought I'd post a quick update to pass time at Princess Grace hospital while waiting for Clive to come back from theatre after Nanoknife procedure ! We've had a rubbish time since Clive's failed Whipple. Took him ages to recover from bypass and its only really since oncologist prescribe...
by Carole McGregor
Fri Jul 26, 2013 9:42 pm
Forum: Treatment & side effects
Topic: Post Whippple and Pancreatectomy Pain
Replies: 14
Views: 9866

Re: Post Whippple and Pancreatectomy Pain

Hi Nikki My husband's Whipple, a couple of months ago , wasn't successful but he still had bile duct and duodenum by pass (described by the nurses as one cut short of a Whipple). He too has suffered really bad pain since then, mainly digestion related. He has terrible wind pains but just can't relea...
by Carole McGregor
Wed Jul 24, 2013 7:05 pm
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 58741

Re: Chemotherapy options

Hi everyone Had to think long and hard before posting again as the news this end isn't great and I know how hard it is to read discouraging stuff when you are going through this hell yourself. Clive's op wasn't successful. Despite clear MRI and CT scans only two weeks previously, Surgeon identified ...
by Carole McGregor
Fri May 24, 2013 11:44 pm
Forum: General chat
Topic: BUPA 10K
Replies: 7
Views: 8881

Re: BUPA 10K

Hi Karen - does Rebecca have a Just Giving page or is there some other way that we can sponsor her ?
by Carole McGregor
Fri May 17, 2013 11:11 am
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 58741

Re: Chemotherapy options

Hi everyone Just thought I'd let you all know that we have been thrown a lifeline ! Scans didn't show any shrinkage but no progression either. Surgeon has decided that it is still worth attempting Whipples and surgery scheduled for 28th. He has given us a 50/50 chance of being able to remove tumour....
by Carole McGregor
Thu Apr 25, 2013 1:28 am
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 58741

Re: Chemotherapy options

Hi everyone Just wanted to vent my anger on someone and know you lovely people out there will understand ! Clive now completed 3 months chemo (folfirinox). Some really unpleasant side effects but on the whole, he has tolerated it reasonably well. Had scan 11th April and appointment today to find out...
by Carole McGregor
Fri Jan 18, 2013 7:54 pm
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 58741

Re: Chemotherapy options

Clive started his first chemo cycle yesterday - hoorah ! At last, some action and a sense of fighting back. All went ok apart from young nurse who couldn't do a simple division calculation (even with a calculator ) and set flow rate for Irinotecan twice as fast as it should have been. Clive really u...
by Carole McGregor
Sat Jan 12, 2013 1:01 am
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 58741

Re: Chemotherapy options

Hi Sue So glad to get your message. I read your posts previously and was immediately struck by the similarities between our situations. I tried to post a message to you but not brilliant at this sort of thing and I think it disappeared into cyberspace somewhere ! Clive's chemo is scheduled to start ...
by Carole McGregor
Mon Jan 07, 2013 10:16 pm
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 58741

Re: Chemotherapy options

Thank you all for your messages. Clive ended up in A&E late Saturday night (quite an experience given where we live !). He became increasingly unwell, vomiting bile and quite distressed so I called NHS 24 again and they sent a doctor out who called an ambulance. Relieved to report he had his stent p...
by Carole McGregor
Sat Jan 05, 2013 7:49 pm
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 58741

Re: Chemotherapy options

In panic mode again. Clive jaundiced this morning and feeling awful. Called NHS 24 who had doctor out in 20 mins. He checked him over and left his number to call if Clive becomes disorientated or confused. He was reassured and feeling better. Gave him a sandwich for lunch and he went downhill after ...
by Carole McGregor
Thu Jan 03, 2013 11:49 pm
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 58741

Re: Chemotherapy options

Thank you all for your really helpful and supportive responses. I've calmed down a bit but still quite worried by the continuing delays. I've read so many dreadful accounts of how quickly this disease can progress and I find myself watching Clive all the time for signs of change. Stent procedure is ...

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