Search found 50 matches

by Carole McGregor
Sat Jan 11, 2014 9:42 pm
Forum: Coping with loss/ Memorial
Topic: A message of thanks of behalf of Linda
Replies: 12
Views: 15531

Re: A message of thanks of behalf of Linda

Hi Natalie Your mum was such a brave lady. Her posts on this forum were always so honest. For those of us, like me, who were supporting someone through this awful illness, she gave us a unique and invaluable insight into how our loved one must be feeling and for that, I will be eternally grateful. I...
by Carole McGregor
Wed Jan 08, 2014 11:58 pm
Forum: Family, friends and carers
Topic: Taking the plunge!
Replies: 128
Views: 46766

Re: Taking the plunge!

Hi Bee So good to see your post. It's such a strange time isn't it ? Really hard to know what to say when people ask you how you are. When Clive died, I sat in the same position in our kitchen for hours as people came and went around me. I just felt heavy, if that makes any sense, as though my body ...
by Carole McGregor
Mon Dec 23, 2013 1:17 pm
Forum: Advanced pancreatic cancer
Topic: Christmas
Replies: 8
Views: 5735

Re: Christmas

That so thoughtful of you Julie. Can I add my message of peace and love to all forum users ? Bee, Julia, Hilary, Karen, Sue, Mandy and others out there who, like me, are facing their first Christmas without their beloved husbands to share it with - god knows, none of us wanted to take this journey b...
by Carole McGregor
Sat Dec 14, 2013 1:32 am
Forum: Family, friends and carers
Topic: Taking the plunge!
Replies: 128
Views: 46766

Re: Taking the plunge!

Oh Bee - this is just too much. So much sadness. We all know the statistics but we still think that our loved one will be the exception don't we ? Nothing prepares you for this. It's clear from your posts that you and your husband fought this bloody awful disease together, as a team, and kept your c...
by Carole McGregor
Fri Dec 06, 2013 9:54 pm
Forum: Advanced pancreatic cancer
Topic: I am furious.
Replies: 30
Views: 15826

Re: I am furious.

Oh Arlene - talk about déjà vu ! I went to our local hospital with my husband Clive for a blood transfusion. We arrived at 1pm. After a series of cock ups, still no blood at 9pm. I broke down in the ward. Like you I had been trying to hold it together for Clive as he really didn't like me making a f...
by Carole McGregor
Mon Nov 18, 2013 9:32 pm
Forum: Advanced pancreatic cancer
Topic: Devastated
Replies: 17
Views: 9005

Re: Devastated

Oh my dear friend. I had started to worry a bit when you didn't reply to my last email but convinced myself it was just you being busy, busy, busy as usual. I am sitting here in shock. There is nothing I can say that will ease your pain. What I do know from the brief time we have known each other is...
by Carole McGregor
Mon Nov 11, 2013 3:33 pm
Forum: Advanced pancreatic cancer
Topic: Horrendous night - biliary duct
Replies: 12
Views: 7515

Re: Horrendous night - biliary duct

Hi Aimie I'm so sorry - one of the many awful things about this disease is how quickly things can change. I'm sure you know this but I was told by the District Nurses that hearing is thought to be the last sense to go so I talked to Clive all night, reminiscing about our wonderful life together. Eve...
by Carole McGregor
Sat Nov 09, 2013 1:51 pm
Forum: Advanced pancreatic cancer
Topic: Horrendous night - biliary duct
Replies: 12
Views: 7515

Re: Horrendous night - biliary duct

Oh I'm so sorry about your poor Dad and I know only too well how distressing this must be for all of you. I'm afraid I have no answers. When this happened to my husband Clive, I could find NO ONE to help. I left frantic messages on various voicemails - hospice, cancer hospital, Macmillan etc but got...
by Carole McGregor
Sat Nov 09, 2013 1:29 pm
Forum: Advanced pancreatic cancer
Topic: Successful Surgery in Heidelberg Germany - Inoperable in UK
Replies: 29
Views: 42554

Re: Successful Surgery in Heidelberg Germany - Inoperable in UK

Amanda I'm so glad you posted this story. My husband died on 16th October (Clive's story is on my thread). I had a meeting with his oncologist this week to try to get some answers as I have many concerns regarding his treatment. I told her that throughout our year long battle with this disease, Cliv...
by Carole McGregor
Fri Nov 08, 2013 12:29 am
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 58680

Re: Chemotherapy options

Thanks both I hope I can be supportive to others on forum from time to time but probably best to wait until I am in a better frame of mind ! I am astounded at the number of people who have truly awful stories to tell about NHS and absolutely understand why so few have the stomach to go through the c...
by Carole McGregor
Thu Nov 07, 2013 11:47 pm
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 58680

Re: Chemotherapy options

Hi everyone Thought I'd post a final message on Clive's thread. Clive's funeral took place last week. It was a Humanist service, full of lovely things said about Clive and some of his favourite music. My sister spoke on behalf of the family and read out little biographies of Clive that the kids did ...
by Carole McGregor
Sat Oct 26, 2013 7:58 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 291649

Re: So far so good!

Steve I'm soooo pleased you've been given this chance and wish you all the very best for the weeks ahead. You are so right to pursue this. We all know that the options available in the UK are limited. If I had known then what I know now, I would have pushed Clive to do the same when he was first dia...
by Carole McGregor
Wed Oct 23, 2013 12:28 am
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 58680

Re: Chemotherapy options

Oh you lovely, lovely people. Thank you so much for your kind words. That you can find the time to offer comfort to someone you have never met in the midst of your own personal crisis leaves me speechless. I'm not sure how I feel right now. Lots going on with people coming and going, funeral arrange...
by Carole McGregor
Sat Oct 19, 2013 12:06 am
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 58680

Re: Chemotherapy options

My dear friends Clive's routine blood tests last week pre chemo showed low haemaglobin levels and so we were referred to local general hospital on Friday for a blood transfusion. We thought we would home in time for the kids coming back from school. A series of errors by hospital staff meant an 8 ho...
by Carole McGregor
Sat Sep 28, 2013 10:59 pm
Forum: Family, friends and carers
Topic: Our hero lost the battle
Replies: 55
Views: 20718

Re: Our hero lost the battle

Oh Karen Just popped onto forum to see how you are all doing and still can't quite believe what I have just read. Clive and I send all our love to you and your family. From the beginning, I have admired the way that you and Bob have handled this horrible disease and tried to live your lives as norma...

Go to advanced search