Search found 94 matches

by Sueba
Thu Jun 06, 2013 7:47 am
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 291646

Re: So far so good!

Steve
Wow!thats amazing news it is all sounding very positive for surgery,I have everything crossed for you!
A really really good day!!
Sue
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by Sueba
Tue Jun 04, 2013 10:22 pm
Forum: Family, friends and carers
Topic: Good news so far!
Replies: 6
Views: 3973

Re: Good news so far!

Hi Karen
That's fantastic news!very positive!enjoy the sun and Bobs recovery
Sue
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by Sueba
Sat Jun 01, 2013 2:12 pm
Forum: Family, friends and carers
Topic: Taking the plunge!
Replies: 128
Views: 46766

Re: Taking the plunge!

Hi Bee And well done for taking the plunge!I totally empathise with what you are saying. My husband was diagnosed aged 42 last oct with inoperable PC after being possibly the fittest he'd ever been,he had just come back from a climbing holiday in the Alps when he felt slightly off,it was like a bolt...
by Sueba
Wed May 29, 2013 7:59 am
Forum: Advanced pancreatic cancer
Topic: A bit of a worry....
Replies: 121
Views: 56723

Re: A bit of a worry

Hi Hope all goes well with the scan Karen and glad you managed to get away on holiday. Mick has finished chemo,hurray!!it was a lot lot harder to tolerate post op than before and he suffered much more with nausea, and his hair started dropping out in chunks early last week,to shave or not to shave i...
by Sueba
Sun May 12, 2013 10:25 pm
Forum: Advanced pancreatic cancer
Topic: A bit of a worry....
Replies: 121
Views: 56723

Re: A bit of a worry

Hi Cathy Oo let us know when your friends on!shes very brave!!i love it though its very addictive! Mick still sickly,this is his 2 nd cycle post whipple,he had 6 cycles preop and apart from the first cycle once they tweaked his meds he was great really. Oncologist said this will be a different kettl...
by Sueba
Sun May 12, 2013 2:25 pm
Forum: Advanced pancreatic cancer
Topic: A bit of a worry....
Replies: 121
Views: 56723

Re: A bit of a worry

Hi Cathy Yes micks settled too,it was a week post chemo but he tends to think its a side effect of the chemo . He had his 2nd cycle of Folfirinox on Friday so next week I shall be looking for the same thing!!think he will be hiding in the other room if he starts again!!he thinks it was more muscle t...
by Sueba
Thu May 09, 2013 10:52 pm
Forum: Advanced pancreatic cancer
Topic: A bit of a worry....
Replies: 121
Views: 56723

Re: A bit of a worry

Hi Cathy Sorry I can't offer a proper reply but just wanted to say I have had the same kind of worries with my hubby before.He is on Fofirinox too and had a twitching/throbbing shoulder last weekend which he says he's had once before but goes off,after watching him for 4 hours I rang our hospital ho...
by Sueba
Thu May 02, 2013 11:35 pm
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 118874

Re: My Journey So Far

Hi Mark
Just wanted to say hello and like Julia I won't clutter your thread,my husband (42 year old and also Gp)same kind of thing,no symptoms until urine changed colour and suspected gallstones,click on my name to read our journey so far... Best wishes for your treatment,
Sue
by Sueba
Wed Apr 24, 2013 7:34 pm
Forum: Treatment & side effects
Topic: Folfrinox and type 1 diabetes
Replies: 3
Views: 5809

Re: Folfrinox and type 1 diabetes

Thanks Dianne
Yes think it will very much be trial and error!
Sue
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by Sueba
Tue Apr 23, 2013 7:51 am
Forum: Treatment & side effects
Topic: Folfrinox and type 1 diabetes
Replies: 3
Views: 5809

Folfrinox and type 1 diabetes

Hi all Well Mick starts up again on chemo on Friday (Folfrinox), but this time we have an added worry! He had the Whipples on Feb 18th and is now fit to start adjuvant chemo, but due to having his whole pancreas removed he is newly diabetic. Hes doing quite well with the insulin although now he is e...
by Sueba
Sat Apr 20, 2013 5:11 pm
Forum: Patient Experience Forum
Topic: Think I've been naive
Replies: 9
Views: 7805

Re: Think I've been naive

Linda Hi my husband has had all his treatment at Christies,we weren't originally referred there but asked to be as we knew there were other kinds of chemo on offer that our local hospital didnt offer. Make sure you have your bloods done there an hour before your oncologist appt,we didnt realise and ...
by Sueba
Wed Apr 17, 2013 9:12 am
Forum: Advanced pancreatic cancer
Topic: Update on my husband
Replies: 24
Views: 13482

Re: Update on my husband

Hi Linda Yes we saw 2 different surgeons here in the uk but both said he was inoperable due to vein and artery involvement,the op he had in Germany involved resecting the hepatic portal vein which the surgeons deemed inoperable.They may be some patients on here who know of surgeons in this country w...
by Sueba
Mon Apr 15, 2013 1:06 pm
Forum: Advanced pancreatic cancer
Topic: Heidelberg University Hospital
Replies: 87
Views: 39502

Re: Heidelberg University Hospital

Hi Steve Glad to hear you have all options covered.My husband is now 8 weeks post op (operated on by Prof Buchler)and is feeling better week by week,he starts adjuvant chemo in just under 2 weeks time,something we are feeling quite nervous about as obviously after undergoing such extensive surgery h...
by Sueba
Tue Apr 09, 2013 9:29 pm
Forum: Advanced pancreatic cancer
Topic: Update on my husband
Replies: 24
Views: 13482

Re: Update on my husband

Hi Karen
Thanks for your good wishes,hope all is well with you xxx
by Sueba
Sun Apr 07, 2013 6:43 pm
Forum: Advanced pancreatic cancer
Topic: Update on my husband
Replies: 24
Views: 13482

Re: Update on my husband

Thanks Kate I'm so sorry to hear about your dad,it really is a horrible disease isn't it! Yes we say a story about a lady going to Heidelberg on a website like this and contacted the hospital after reading her story.We have been in touch with her and correspond by email,she had her op last April and...

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