Search found 503 matches

by Veema
Sat Apr 07, 2018 12:06 am
Forum: Patient Experience Forum
Topic: Recent operation
Replies: 4
Views: 5091

Re: Recent operation

Just keep gently encouraging little and often (try not to nag...we've all been guilty of nagging them to eat)...it does take some people a fair amount of time to get back to any sort of normality and some never do, there has been a huge change to his digestive system ...he just has to find what work...
by Veema
Wed Mar 28, 2018 3:13 pm
Forum: General chat
Topic: Medication
Replies: 8
Views: 7055

Re: Medication

I don't know if you can have more than one attendance allowance per household...but yes, definitely look into that. She'll come round a bit once the initial shock has worn off and she's got going with the chemo...I think the limbo between being diagnosed and starting treatment can be very frustratin...
by Veema
Wed Mar 28, 2018 10:05 am
Forum: General chat
Topic: Medication
Replies: 8
Views: 7055

Re: Medication

I've noticed that you've started another couple of threads...its sometimes better to keep it all in the one thread, so nothing is missed. I've not heard of the supplement mentioned in one of your other threads, perhaps give the nurses on here a ring, or email them, they have a vast knowkedge and are...
by Veema
Wed Mar 28, 2018 9:51 am
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 52
Views: 37359

Re: Concerned husband

Waiting for scan results is always an anxious time, but even if the tumours haven't shrunk any, if they haven't grown any that's positive...sometimes stable disease is all we can ask for.

Good luck and fingers crossed.

Vx
by Veema
Wed Mar 28, 2018 9:47 am
Forum: General chat
Topic: Medication
Replies: 8
Views: 7055

Re: Medication

Sorry, my husband had folfirinox, but the combination your mum us having have been known to work well together.

Vx
by Veema
Fri Mar 23, 2018 7:45 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 270830

Re: Thanks for sharing your experiences . . .

It's a rubbish reality for anyone to face. I hate being a widow (the first time I had to tick THAT box on a form made me cry) and I hate being a single mum. I worry about me getting poorly and there being no one to look after me the way I looked after Nige and I really worry about me dying and Phoeb...
by Veema
Thu Mar 15, 2018 7:53 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 270830

Re: Thanks for sharing your experiences . . .

Ha ha...you do make me laugh.

A policeman once jumped out with a handheld speed gun whilst my Dad was riding his motorbike...Dad thought it was actually someone shooting at him, swerved and crashed. Luckily he wasn't hurt, but it could have been fatal.

Vx
by Veema
Tue Mar 13, 2018 12:51 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 270830

Re: Thanks for sharing your experiences . . .

I think all our 'independent woman who can do stuff' capabilities fly of into the ether with the spirit of our loved one. I used to be able to do all things practical (Nige didn't have a practical bone in his body, although he did try), now I can barely knock a nail in to put a picture up! My positi...
by Veema
Sun Mar 11, 2018 11:00 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 270830

Re: Thanks for sharing your experiences . . .

Oh Mo...its so hard some days. Phoebe bought me a little notebook and pen for Mother's day so I've decided it's going to be my little book of positive things. I've been terribly down in the dumps these past few weeks, so hoping that if I can pick out some positive things from each day and write them...
by Veema
Sun Mar 11, 2018 9:39 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 270830

Re: Thanks for sharing your experiences . . .

I wear Nige's pyjamas. His bedside cabinet is exactly the same as the day he died (and gathering dust), with his watch, his clock and his box of pills. I think he would be fuming at me for all the money I have spent doing stuff that he would never let me do (new bathrooms being one...but there's not...
by Veema
Wed Mar 07, 2018 9:02 am
Forum: Patient Experience Forum
Topic: Im told I need a total pancreatectomy aged 70yrs
Replies: 6
Views: 7023

Re: Im told I need a total pancreatectomy aged 70yrs

I think you'll need to contact the forum support team to change your username...but it doesn't really matter what it is, we now know you're Annabell, so don't worry, we won't call you Geoff!

Vx
by Veema
Tue Mar 06, 2018 4:23 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 270830

Re: Thanks for sharing your experiences . . .

It must be the time for car accidents. Some idiot hit my car (whilst parked) a few weeks back, cleared off and didn't leave any details leaving me with a £750 bill for repairing it. My brother had a major accident on the M6 on Sunday, I've no idea how he made it out alive, with just a few cuts and b...
by Veema
Tue Mar 06, 2018 4:17 pm
Forum: Patient Experience Forum
Topic: Im told I need a total pancreatectomy aged 70yrs
Replies: 6
Views: 7023

Re: Im told I need a total pancreatectomy aged 70yrs

I can't think of anyone who currently uses the forum who has had that surgery. My husband had the whipples surgery, which was not keyhole and is a major surgery. Unfortunately, no-one can make that decision for you...I know how debilitating lupus can be, so having surgery and possible chemotherapy o...
by Veema
Mon Mar 05, 2018 8:32 pm
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 45215

Re: Don’t know where to start

My husband did the big yawns...very strange. Christine, could you get a bit more support from the palliative care team? Our hospice has a hospice at home programme where the nurses come into the home to help care for the patient...it might be worth checking to see if there's a similar service local ...
by Veema
Sun Mar 04, 2018 10:04 pm
Forum: Patient Experience Forum
Topic: 42 year old Mum that needs help
Replies: 17
Views: 23343

Re: 42 year old Mum that needs help

MARKSEANTAYLOR wrote: > Hi joanna, I have exactly the same symptoms as you and the same experience > with clean scans. I’m very keen to know what ended up happening with you? > I’m almost convinced I’ve got pc but finding it complex to deal with the > clean scan? Thanks mark I thought it was your fr...

Go to advanced search