Search found 115 matches

by Bowie
Mon Apr 24, 2017 8:54 pm
Forum: Family, friends and carers
Topic: How long to get definite diagnosis
Replies: 72
Views: 55877

Re: How long to get definite diagnosis

Sorry I haven't posted for ages, it's been really up and down. I did keep peeking in and as more loved ones were lost I didn't have the will to keep reading. Well James is still here, it was 3 years on 24 March, since he was diagnosed with stage 4 PC with mets to lungs and adrenal glands. Then the d...
by Bowie
Fri Jul 08, 2016 10:47 pm
Forum: Patient Experience Forum
Topic: stage 4 long time survival without operation
Replies: 16
Views: 17874

Re: stage 4 long time survival without operation

Hello, I haven't posted for ages, various reasons including forgetting password and then my requests unfortunately went into PCUKs trash. Anyway I'm back and although I was too sad to post for a bit, hearing about Steve and Mark really affected us badly as both had given excellent advice; along with...
by Bowie
Mon Aug 03, 2015 12:26 am
Forum: General chat
Topic: ITS BEEN A WHILE--THE LOVE OF MY LIFE HAS CANCER
Replies: 48
Views: 32138

Re: ITS BEEN A WHILE--THE LOVE OF MY LIFE HAS CANCER

Dear Martine, I am so sorry to hear your news, this cruel, evil disease is so hard to cope with and it changes people, not just physically. I hope things are as good as they can be and sometimes things do work out better than you expect. Sending you both all my best wishes. Fiona X
by Bowie
Mon Aug 03, 2015 12:07 am
Forum: Family, friends and carers
Topic: Bad news
Replies: 107
Views: 32058

Re: Bad news

Dear Dirge, I am so very sorry that you that your Rob has gone. I know there are no words, but sending you all my best wishes. Fiona X
by Bowie
Wed Jul 29, 2015 8:30 pm
Forum: Treatment & side effects
Topic: Hair Loss on Gemcetabine
Replies: 7
Views: 9625

Re: Hair Loss on Gemcetabine

CheshireBee, hello my husband has now had 13 cycles of ambraxane and Gemcitabine and lost all his hair after the first 4 cycles, including body hair and eye lashes. The good news is that after cycle 6 it started to grow back. His beard was grey, it was originally, but his hair is now really dark, mo...
by Bowie
Sat Jul 25, 2015 9:12 pm
Forum: Treatment & side effects
Topic: How do I know if creons are doing any good?
Replies: 4
Views: 7539

Re: How do I know if creons are doing any good?

Dear Sue, yes James experienced weight loss in the beginning, it was his only really symptom, that and diarrhoea. Anyway despite the croons his diarrhoea continued and the 'experts' kept telling him to take more, but with little affect, It was Leila on this site that researched and found out about S...
by Bowie
Fri Jul 24, 2015 6:56 pm
Forum: Advanced pancreatic cancer
Topic: Tumour size
Replies: 64
Views: 40569

Re: Tumour size

Sorry to hear your Dad is still struggling, I hope things get better soon. Fiona X
by Bowie
Fri Jul 24, 2015 6:54 pm
Forum: Advanced pancreatic cancer
Topic: Newly diagnosed 45 yr old mum of 4
Replies: 87
Views: 61323

Re: Newly diagnosed 45 yr old mum of 4

Dear Marie, my husband James was given 12-26 weeks, with terminal PC spread to his lungs and adrenal gland 67 weeks and 2 days ago, he is still here. Much older than you, 71 now, but OK. As you say they only ever give averages based on empirical evidence and so can't be right for everyone. James is ...
by Bowie
Fri Jul 24, 2015 6:38 pm
Forum: Family, friends and carers
Topic: Bad news
Replies: 107
Views: 32058

Re: Bad news

Dear Didge, thinking of you and your Rob, going through this most terrible of diseases. I hope he is comfortable and your Race for Life goes well, you are so strong, take care. Fiona X
by Bowie
Fri Jul 24, 2015 6:33 pm
Forum: Patient Experience Forum
Topic: Months rather than years!
Replies: 15
Views: 18765

Re: Months rather than years!

Dear Kaye, I am so sorry to hear your news. My husband James, was 70 in March 2014, when he was diagnosed with terminal PC, with spread to his lungs and adrenal gland and given 12-26 weeks, probably nearer 12 weeks. Well, he is still here 67 weeks and 2 days later and despite all the warning, quite ...
by Bowie
Mon Jul 13, 2015 2:45 pm
Forum: General chat
Topic: Creon 40000
Replies: 3
Views: 7360

Re: Creon 40000

Jonathan, I agree. We were only told quite recently and were told it was because of a difficulty of ensuring consistency within the higher 40,000 capsules. This might only be a little thing, but to those already suffering it is important. I'm not sure I understand Jeni's answer, how many pancreas do...
by Bowie
Sun Jul 05, 2015 11:00 am
Forum: Patient Experience Forum
Topic: Help with treatment regime - patient experience
Replies: 21
Views: 19063

Re: Help with treatment regime - patient experience

Keith, so sorry to hear your news. My husband, James, 70 on diagnosis on 27 March 2014 is being treated with ambraxane And Gemcitibine. On diagnosis he had a tumour on his pancreas in the neck area, one on his adrenal gland and 22 mostly small, but 3 over 15mm in his lungs. He was really well the on...
by Bowie
Wed May 20, 2015 2:03 pm
Forum: Patient Experience Forum
Topic: Chemo for new diagnosis
Replies: 17
Views: 13557

Re: Chemo for new diagnosis

Valerie, hi I hope your treatment is going well and you are feeling OK. My husband was diagnosed with stage 4 on 27 March 2014, with spread to his lungs and an adrenal gland and told he had 12-26 weeks naximum, but probably nearer 12 weeks. Well he has been on Gemcitibine and Ambraxane and is still ...
by Bowie
Thu May 07, 2015 4:42 pm
Forum: General chat
Topic: Errol Brown of Hot Chocolate dies aged 71 -pancreatic cancer
Replies: 4
Views: 6711

Re: Errol Brown of Hot Chocolate dies aged 71 -pancreatic ca

Another good person taken far too early by this cruel disease. RIP
by Bowie
Thu May 07, 2015 4:34 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 254916

Re: So far so good!

Steve, brilliant news. So please for you and your family. Fiona X

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