Search found 1032 matches

by sandraW
Wed Sep 19, 2018 8:31 am
Forum: General chat
Topic: Time
Replies: 30
Views: 7242

Re: Time

Fairy, Just wanted to respond to your post, this is exactly how my husband was, it will be the jaundice that is causing the dark urine. And I also understand what you say about your mum smelling different too that also happened with my husband. I hope you can get some help, as its so tiring for you ...
by sandraW
Sat Sep 01, 2018 1:28 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 50
Views: 13388

Re: This cruel disease

Great great news long may it continue. love sandrax
by sandraW
Wed Aug 15, 2018 7:56 pm
Forum: Family, friends and carers
Topic: Update on my dad - gemcitabine chemo
Replies: 8
Views: 2526

Re: Update on my dad - gemcitabine chemo

Hi Mrshappy, We did just that, when my husband was on his chemo break we had 2 weeks in Gran Canaria with our best friends, then a month later we took our 15 year old grandson to London for 4 days then took our 2 granddaughters to Disneyland Paris for 4 days. That was the August my husband died the ...
by sandraW
Tue Aug 14, 2018 11:38 am
Forum: General chat
Topic: Time
Replies: 30
Views: 7242

Re: Time

Fairy, I am so very sorry to hear about your Mum. The feelings you have about not having done enough are what we all feel, because we love them so much we want to do all we can to help make them well again, but unfortunately we can't make that happen as much as we wish we could. My husband was in de...
by sandraW
Fri Jul 20, 2018 9:45 am
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 46
Views: 9060

Re: First folfirinox experience

Hi ladies, good to hear you are both feeling a bit more on the up! When my husband, Trevor was on his Folfirinox treatment, he had his treatment on Mondays, Tues, Wed Thurs were okay by Friday he was tired by Saturday he was more tired and Sundays he spent in his chair in the lounge asleep, he would...
by sandraW
Mon Jun 04, 2018 11:50 am
Forum: Family, friends and carers
Topic: Mum Diagnosis
Replies: 13
Views: 3387

Re: Mum Diagnosis

Hi Margie, Sorry to hear about you mum being unwell I just wanted to post a quick welcome reply to you, the forum was down over the week end when I tried to log in, hence the delay. Although this didn't happen to us, although we too took a while to get a diagnosis, it has happened to others on the f...
by sandraW
Thu May 10, 2018 11:29 am
Forum: Coping with loss/ Memorial
Topic: She's gone
Replies: 34
Views: 29771

Re: She's gone

Hi Sarah, how lovely to hear from you, I am still here less often now but just try and give some support as I received so much. I am glad to hear you are doing okay, ok is all we will ever do really, its just 3 years since I lost Trevor, and I remember reading your post about losing your Mum on our ...
by sandraW
Thu May 10, 2018 11:18 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 50
Views: 13388

Re: This cruel disease

As Veema says, good news Keith, long may it continue, take care sandrax xx
by sandraW
Mon Apr 23, 2018 4:14 pm
Forum: Ask the nurse
Topic: Usual waiting times for procedures
Replies: 18
Views: 9844

Re: Usual waiting times for procedures

Hi Robette, Thanks for letting us know how well you are doing, its always good to get some good news although I am not sure you would feel having your gallbladder removed was actually good news, but it could have been much worse news. Please let us know your results later on in the year, sending lov...
by sandraW
Mon Apr 23, 2018 11:23 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 50
Views: 13388

Re: This cruel disease

Hi Keith, Just wanted to say thank you and what a beautiful post that was. I understand all the feelings you are going through, I think with a disease like PC we do start to grieve for what might have been while our loved ones are still with us. Like you I shed my tears in private, usually whilst I ...
by sandraW
Sat Apr 21, 2018 11:10 am
Forum: Advanced pancreatic cancer
Topic: Mum diagnosed with advanced PC - head is in a whirlwind
Replies: 7
Views: 3556

Re: Mum diagnosed with advanced PC - head is in a whirlwind

Hi Jchops, What a truly difficult position you find yourself in. I can understand your Mum being your priority, and of course she must be. PC is a life limiting disease and its totally unfair if Social Services don't or won't provide help with your Grandparents, I cared for my Mum she was 86 when sh...
by sandraW
Fri Apr 20, 2018 12:45 pm
Forum: Family, friends and carers
Topic: Diet help and advice
Replies: 16
Views: 5386

Re: Diet help and advice

Elle, Just make the best of the time you have left, tell your dad how much you love him and talk to him about all the lovely times and memories you have made together. At least you will get the chance to do this, its terribly sad but at least he is being well cared for. sending love and strength san...
by sandraW
Tue Apr 17, 2018 10:16 am
Forum: Family, friends and carers
Topic: pnet husband having surgery soon
Replies: 6
Views: 2820

Re: pnet husband having surgery soon

Hi Tessa, and welcome to the forum where no one wants to be but hopefully you will get lots of helpful advice and support. My husband's tumour was in the tail of his pancreas, but he lost his spleen too. he recovered from his surgery amazingly well and was pottering in the garden 4 weeks after surge...
by sandraW
Tue Apr 17, 2018 10:10 am
Forum: Patient Experience Forum
Topic: 46 Year old dad with pancreatic cyst
Replies: 2
Views: 2282

Re: 46 Year old dad with pancreatic cyst

Hi Robert, I am sorry you have had to join us here but lets hope you don't have to "join the club" after all, and your cyst just behaves itself Its all so bloody scary isn't it. Please give our nurses a ring I am sure they will be able to give you advise about whats happening, they are really lovely...
by sandraW
Mon Apr 16, 2018 5:01 pm
Forum: Advanced pancreatic cancer
Topic: Pancreatic Cancer Timeline - 2018
Replies: 3
Views: 3116

Re: Pancreatic Cancer Timeline - 2018

I am sorry to hear about your dad, this disease is relentless, my husband's story was different he had his tumour in the tail of his pancreas, he had surgery, then 21 rounds of chemotherapy, he had a good 15 months when he could function well, it was only for the last 6 weeks of his life he was in a...

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