Search found 1027 matches

by sandraW
Mon Jun 04, 2018 10:50 am
Forum: Family, friends and carers
Topic: Mum Diagnosis
Replies: 6
Views: 579

Re: Mum Diagnosis

Hi Margie, Sorry to hear about you mum being unwell I just wanted to post a quick welcome reply to you, the forum was down over the week end when I tried to log in, hence the delay. Although this didn't happen to us, although we too took a while to get a diagnosis, it has happened to others on the f...
by sandraW
Thu May 10, 2018 10:29 am
Forum: Coping with loss/ Memorial
Topic: She's gone
Replies: 34
Views: 24567

Re: She's gone

Hi Sarah, how lovely to hear from you, I am still here less often now but just try and give some support as I received so much. I am glad to hear you are doing okay, ok is all we will ever do really, its just 3 years since I lost Trevor, and I remember reading your post about losing your Mum on our ...
by sandraW
Thu May 10, 2018 10:18 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 22
Views: 3390

Re: This cruel disease

As Veema says, good news Keith, long may it continue, take care sandrax xx
by sandraW
Mon Apr 23, 2018 3:14 pm
Forum: Ask the nurse
Topic: Usual waiting times for procedures
Replies: 18
Views: 6773

Re: Usual waiting times for procedures

Hi Robette, Thanks for letting us know how well you are doing, its always good to get some good news although I am not sure you would feel having your gallbladder removed was actually good news, but it could have been much worse news. Please let us know your results later on in the year, sending lov...
by sandraW
Mon Apr 23, 2018 10:23 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 22
Views: 3390

Re: This cruel disease

Hi Keith, Just wanted to say thank you and what a beautiful post that was. I understand all the feelings you are going through, I think with a disease like PC we do start to grieve for what might have been while our loved ones are still with us. Like you I shed my tears in private, usually whilst I ...
by sandraW
Sat Apr 21, 2018 10:10 am
Forum: Advanced pancreatic cancer
Topic: Mum diagnosed with advanced PC - head is in a whirlwind
Replies: 7
Views: 1706

Re: Mum diagnosed with advanced PC - head is in a whirlwind

Hi Jchops, What a truly difficult position you find yourself in. I can understand your Mum being your priority, and of course she must be. PC is a life limiting disease and its totally unfair if Social Services don't or won't provide help with your Grandparents, I cared for my Mum she was 86 when sh...
by sandraW
Fri Apr 20, 2018 11:45 am
Forum: Family, friends and carers
Topic: Diet help and advice
Replies: 16
Views: 2436

Re: Diet help and advice

Elle, Just make the best of the time you have left, tell your dad how much you love him and talk to him about all the lovely times and memories you have made together. At least you will get the chance to do this, its terribly sad but at least he is being well cared for. sending love and strength san...
by sandraW
Tue Apr 17, 2018 9:16 am
Forum: Family, friends and carers
Topic: pnet husband having surgery soon
Replies: 3
Views: 913

Re: pnet husband having surgery soon

Hi Tessa, and welcome to the forum where no one wants to be but hopefully you will get lots of helpful advice and support. My husband's tumour was in the tail of his pancreas, but he lost his spleen too. he recovered from his surgery amazingly well and was pottering in the garden 4 weeks after surge...
by sandraW
Tue Apr 17, 2018 9:10 am
Forum: Patient Experience Forum
Topic: 46 Year old dad with pancreatic cyst
Replies: 2
Views: 959

Re: 46 Year old dad with pancreatic cyst

Hi Robert, I am sorry you have had to join us here but lets hope you don't have to "join the club" after all, and your cyst just behaves itself Its all so bloody scary isn't it. Please give our nurses a ring I am sure they will be able to give you advise about whats happening, they are really lovely...
by sandraW
Mon Apr 16, 2018 4:01 pm
Forum: Advanced pancreatic cancer
Topic: Pancreatic Cancer Timeline - 2018
Replies: 3
Views: 1277

Re: Pancreatic Cancer Timeline - 2018

I am sorry to hear about your dad, this disease is relentless, my husband's story was different he had his tumour in the tail of his pancreas, he had surgery, then 21 rounds of chemotherapy, he had a good 15 months when he could function well, it was only for the last 6 weeks of his life he was in a...
by sandraW
Thu Apr 12, 2018 12:07 pm
Forum: Family, friends and carers
Topic: Diet help and advice
Replies: 16
Views: 2436

Re: Diet help and advice

Hi Elle, I am so sorry to hear about your Dad, this disease is truly horrendous. The big thing I think we have all learnt is not to insist that the patients eats, we were lucky in that my husband had a good appetite, but lots of others are just like your Dad. The drinks on prescription from the GP F...
by sandraW
Thu Apr 12, 2018 11:57 am
Forum: Family, friends and carers
Topic: This seems to be all happening too fast
Replies: 7
Views: 1761

Re: This seems to be all happening too fast

Hi Derek's daughter, please don't apologise for the length of your post, this is the place to let it all out. I am really sorry I can't answer your question, this disease is horrendous, it can strike so quickly, we were lucky my husband was well for about 18 months and had 22 rounds of chemotherapy ...
by sandraW
Tue Apr 10, 2018 7:48 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 194184

Re: Thanks for sharing your experiences . . .

Glad it was such a wonderful day Mo, and I'm glad the Proud Highlander has such a special resting place love sandrax xx
by sandraW
Thu Mar 29, 2018 10:13 am
Forum: General chat
Topic: Medication
Replies: 8
Views: 2041

Re: Medication

Hi Cathy, sorry to hear about you Mum, just to let you know your mum will get AA its per person not per household. If you contact MacMillan they will sort out the paperwork, its is very straightforward as PC is a life limiting disease, she can also get a blue badge, which can make things easier, tak...
by sandraW
Fri Mar 23, 2018 1:05 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 194184

Re: Thanks for sharing your experiences . . .

Oh Mo, I have been through all those feelings, its just so shit being on your own. I always seem to cry when I do the garden, it was very much Trevor's domain, I did the planning and choosing he did the planting and sorting, he loved it not too sure what he was doing and quite often left a nice heal...

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