Search found 14 matches

by Winkle
Tue Nov 19, 2013 2:17 pm
Forum: Patient Experience Forum
Topic: Folfirinox or Capecitabine ?
Replies: 8
Views: 6511

Re: Folfirinox or Capecitabine ?

Hi Dianne, I am sorry and not too great with PDFs etc. Article; Increased Survival in Pancreatic Cancer with nab-Paclitaxel plus gemcitabine. October 31st 2013 Article published October 16 2013 Clinical Trails.gov number NCT00844649 www.nejm.org/doi/full/10.1056/NEJMoa1304369 I hope that get's anyon...
by Winkle
Tue Nov 19, 2013 1:41 pm
Forum: Patient Experience Forum
Topic: Folfirinox or Capecitabine ?
Replies: 8
Views: 6511

Re: Folfirinox or Capecitabine ?

Hi, Well I had my first blast of folfirinox, I reacted very badly, we didn't get home till 11pm the night we finished the chemo at the hospital. Came home with the pump, slept through till 9 in the morning, which I think made a difference ,as we didn't have the anti sickness when we should have at a...
by Winkle
Sat Nov 09, 2013 6:27 pm
Forum: Advanced pancreatic cancer
Topic: Successful Surgery in Heidelberg Germany - Inoperable in UK
Replies: 29
Views: 34035

Re: Successful Surgery in Heidelberg Germany - Inoperable in UK

Dear Amanda and David, Your story is fantastic and whatever needs to be done to improve the profile of pancreatic cancer and indeed the other less well supported cancers count me and a legion of helpers in. I have on the basis of what you have written decided to set up a consultation as soon as my f...
by Winkle
Thu Nov 07, 2013 8:22 pm
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 109935

Re: My Journey So Far

Hi Mark, I have just been to have my bloods taken and get the results before I start my Folfirinox tomorrow. Unfortunately the scan has shown another two or three lesions on my liver. My surgeon who was up for operation if my liver lesion shrank, now seems to have given up on that option. I am fairl...
by Winkle
Wed Nov 06, 2013 10:08 am
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 109935

Re: My Journey So Far

Hi Mark,
I am due to start my first dose of Folfirinox on Friday and your descriptions are very helpful. Thank you
Kathy
by Winkle
Wed Oct 30, 2013 6:57 pm
Forum: Advanced pancreatic cancer
Topic: Heidelberg University Hospital
Replies: 87
Views: 35647

Re: Heidelberg University Hospital

Dear Holly and Family,
What a terrible time for you all, I can only repeat what everyone here seems to feel, that your dad's attitude will help him beat this horror.
He is giving us all hope, what an amazing man, sending all my love.
Kathy xxxx
by Winkle
Tue Oct 29, 2013 9:34 am
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 260334

Re: So far so good!

Hi Steve and family,
I can't stop thinking about you and your op tomorrow, I wish you all the best and can't wait
to hear how you get on.
Lots of love
Kathy
by Winkle
Mon Oct 28, 2013 10:24 pm
Forum: Advanced pancreatic cancer
Topic: Starting a long long journey
Replies: 69
Views: 28037

Re: Starting a long long journey

Hi Cathy and David, and everyone else, Thank you for your replies. I will take your advice. it is amazing to have you there, as much as my poor family try, I feel so guilty for putting them all through this, so this forum is a way to voice my fears without upsetting my family more than they already ...
by Winkle
Mon Oct 28, 2013 6:15 pm
Forum: Patient Experience Forum
Topic: Folfirinox or Capecitabine ?
Replies: 8
Views: 6511

Re: Folfirinox or Capecitabine ?

Hi Linda, I am due to start my first cycle of folfirinox on Friday, I went to Christies and was not offered this option at first, however after looking at this site and speaking to a friend of mine who in an oncologist at the Royal Marsden, Folfirinox although it appears to be a more hardcore regime...
by Winkle
Sun Oct 27, 2013 9:45 pm
Forum: Advanced pancreatic cancer
Topic: Starting a long long journey
Replies: 69
Views: 28037

Re: Starting a long long journey

Hi David, I had my Hickman Line fitted the Thursday before last, unfortunately got home from the hospital and started suffering massive pain, in the end we called the ambulance. I ended up staying in for two weeks, I had infection of the pancreas and the gall bladder, they finally got the infection ...
by Winkle
Sun Oct 27, 2013 9:27 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 260334

Re: So far so good!

Hi Steve,
I am thinking about you every minute, reading about your experiences and the way you have dealt with each situation, you are an inspiration and fill me with so much hope. You are making others brave.
Wishing you and your family the very best.
Love Kathy
by Winkle
Fri Oct 04, 2013 8:28 pm
Forum: Advanced pancreatic cancer
Topic: Heidelberg University Hospital
Replies: 87
Views: 35647

Re: Heidelberg University Hospital

Hi Steve,
Really hope everything goes well for you, the "saint doctor" I mentioned earlier, mentioned Heidelberg University to me today. He spoke of their progress in awe.
All the very best and I will be waiting to hear how you go on.
Lots of love
Kathy
by Winkle
Fri Oct 04, 2013 3:50 pm
Forum: Advanced pancreatic cancer
Topic: Starting a long long journey
Replies: 69
Views: 28037

Re: Starting a long long journey

Hi David, I went to the clinic this morning, I had sent a email saying that I wanted to go for the folfirinox and that I had made an appointment with another surgeon after our appointment. I went with my great friend Kirstie, we went, they didn't think much of Folfirinox but they agreed to let me ha...
by Winkle
Thu Oct 03, 2013 6:16 pm
Forum: Advanced pancreatic cancer
Topic: Starting a long long journey
Replies: 69
Views: 28037

Re: Starting a long long journey

Hi David, I have tried to post a reply before, so if you have received it sorry for repeating myself. I am 52, fairly fit, certainly not in your league but not too bad. I went in with suspected gall stones, Wednesday 11th September, after the ultra sound where they couldn't find any gallstones, I ha...

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