Search found 228 matches

by MSH
Sun May 29, 2016 9:52 pm
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 109935

Re: My Journey So Far

Mark passed away peacefully at home in the early hours of the 28 May, surrounded by his family as he had wished. He bravely fought this terrible cancer for over three years. Pursuing the hobbies and activities that he loved. During this time, he was able to witness important family events and enjoy ...
by MSH
Wed May 18, 2016 6:00 am
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 109935

Re: My Journey So Far

I fear this will be my last update. I had an ERCP last Friday which found a stent which was obstructing at times, fixed by inserting a second plastic stent. It also found gastroparesis. Who'd have thought that the stomach was so important? Essentially nothing seems to get past my stomach, even fluid...
by MSH
Wed May 11, 2016 8:07 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 137966

Re: Mum of 42 recently diagnosed inoperable PC

Sounds as if you're doing really well with the Folfirinox, 9 cycles is pretty tough. Excellent though that you are able to enjoy your time as well. I was in Spain last summer and have wonderful memories of Toledo and Madrid's art. Hope all goes well tomorrow.

Mark
by MSH
Tue May 10, 2016 8:45 pm
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 109935

Re: My Journey So Far

Just a quick update. I was contacted by the endoscopy unit this morning who have asked that I have an ERCP with stent this coming Friday. This is marvellous news as it would suggest that my problems have been more mechanical and hopefully relatively easily fixed. When you have this you are heavily s...
by MSH
Mon May 09, 2016 2:54 pm
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 109935

Re: My Journey So Far

I have been through the mill a bit in the past few weeks, so the fact that I am updating this thread hopefully represents progress. Looking back things merge into a kind of melting pot, with occasional outstanding features such as the Nanoknife. Anyway after being off treatment for several weeks I w...
by MSH
Sun Apr 17, 2016 2:00 am
Forum: Advanced pancreatic cancer
Topic: Totally in awe of my wonderful Husband!
Replies: 494
Views: 141193

Re: Totally in awe of my wonderful Husband!

Candidiasis or thrush is common especially with chemo. It can be easily checked for by a simple mouth swab that is if it's not clinically obvious.

https://en.wikipedia.org/wiki/Oral_candidiasis
by MSH
Thu Apr 14, 2016 10:55 am
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 109935

Re: My Journey So Far

When the NHS comes under discussion there are a number of people who claim that it could be improved by taking on features of an insurance based system as used in Europe. Whenever such claims are made I am reminded of just how such a system works for travel insurance. For our recent trip to Californ...
by MSH
Thu Apr 14, 2016 8:01 am
Forum: Family, friends and carers
Topic: Confused
Replies: 17
Views: 14292

Re: Confused

I was thinking that it would be before the days of Folfirinox. It seems Bri was diagnosed in February 2010 and had 19 Gem/Cap courses from June 2010 to November 2011, since when scans have been stable up to the last update in March 2015. This is very unusual behaviour for an adenocarcinoma. I wonder...
by MSH
Thu Apr 14, 2016 6:52 am
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 137966

Re: Mum of 42 recently diagnosed inoperable PC

Thank you for your response, and I would like to emphasise that I am in favour of complementary medication and have taken some for a number of years now. It is though very important that such treatments are used alongside conventional medication as appropriate, as your doctors have advised. Doctors ...
by MSH
Wed Apr 13, 2016 9:42 pm
Forum: Family, friends and carers
Topic: Confused
Replies: 17
Views: 14292

Re: Confused

Didge, can you say who it is, whose husband has survived over 5 years?
by MSH
Wed Apr 13, 2016 8:51 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 137966

Re: Mum of 42 recently diagnosed inoperable PC

Helliemo, I think you should provide some more evidence for some of the claims you are making. If I understand you your grandma is now off chemotherapy and only taking complementary treatment. It might well be that this is the most appropriate course for her, but the majority of people afflicted wit...
by MSH
Mon Mar 28, 2016 5:23 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 137966

Re: Mum of 42 recently diagnosed inoperable PC

Yes Filgrastim has the same function as Neulasta.
by MSH
Mon Mar 28, 2016 2:17 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 137966

Re: Mum of 42 recently diagnosed inoperable PC

It is so frustrating when treatment is postponed particularly when it impacts on travel plans. It was always my neutrophils which prevented treatment with Folfirinox. During my first course I was given Neulasta which boosts the neutrophil count. This allowed me to have treatment on schedule and prev...
by MSH
Sun Mar 27, 2016 5:38 pm
Forum: Advanced pancreatic cancer
Topic: Totally in awe of my wonderful Husband!
Replies: 494
Views: 141193

Re: Totally in awe of my wonderful Husband!

The liver biopsy does seem a little unusual. They may want to exclude other causes. I'm not sure about the risk of seeding or spread. From memory this could be more of a risk with certain tumours such as melanomas, less so with others. I think the risk from kidney stones, assuming they're not affect...
by MSH
Sun Mar 27, 2016 3:59 pm
Forum: Advanced pancreatic cancer
Topic: Totally in awe of my wonderful Husband!
Replies: 494
Views: 141193

Re: Totally in awe of my wonderful Husband!

Hi PW, I'm sorry to read of your problems and hope your husband continues to feel ok in himself. I'm afraid that only professor Leen will be able to answer your question about the nanoknife. I know that some hepatic metastases don't necessarily preclude treatment, but this is probably dependent on t...

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