Search found 954 matches

by J_T
Tue Aug 15, 2017 8:27 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 178750

Re: Carls story

Hi Rob, sorry I'm late to offer condolences. I had heard through one of the cancer charities that Carl had died and was so sad to hear it. Hope you are continuing to do well. You and Carl made a magnificent team and explored all available avenues to give Carl the best chance and you succeeded in ext...
by J_T
Mon Jun 19, 2017 11:32 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 178750

Re: Carls story

Hi Rob, so saddened to hear Carl is coming to the end of his journey. His blogs and your posts were always positive and uplifting. I hope you both can find your peace.

Much love
Julia x
by J_T
Sun Mar 19, 2017 12:42 am
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 178750

Re: Carls story

Good heavens Rob (and Carl) what a lot you're having to deal with. Lesser mortals would crumble under the weight of it all but still in the end you remain upbeat and positive and thank goodness for your 'breath of fresh air' consultant. It really does make all the difference. Hoping his plans come t...
by J_T
Tue Mar 07, 2017 9:43 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 178750

Re: Carls story

Thinking of you both Rob and Carl.

KBO

Julia x
by J_T
Sat Feb 11, 2017 7:02 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 178750

Re: Carls story

Hi Rob, just dropped in and saw your post. Hoping things go well for Carl. I think of you both often.

KBO!

Love
Julia x
by J_T
Tue Dec 20, 2016 10:44 am
Forum: General chat
Topic: Hospital Diagnostics Review
Replies: 35
Views: 28886

Re: Hospital Diagnostics Review

Marmalade, what a fantastic job you have done. My husband, an ex police officer, was a stickler for diarying everything. I did have a diary whilst he was ill but was more about his day, drugs etc. I'm glad we have people like you with the energy and drive to pursue matters when inadequacies are appa...
by J_T
Tue Dec 13, 2016 9:41 am
Forum: Advanced pancreatic cancer
Topic: My beautiful Mum
Replies: 7
Views: 8578

Re: My beautiful Mum

Sorry to hear about your mum.

Ask about a syringe driver. This worked best for my husband.

Julia
by J_T
Sat Dec 10, 2016 11:42 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 178750

Re: Carls story

Hi Rob, things seem to be on the up again apart from chemo side effects which is to be expected. Poor Carl's body has been through such a lot, you must both be exhausted.

He looks flippin' fantastic in the picture, all power to him - and you, you make a great team. :)

KBO

Love Julia
by J_T
Fri Nov 25, 2016 2:26 pm
Forum: Treatment & side effects
Topic: Abraxane side effects
Replies: 8
Views: 9552

Re: Abraxane side effects

Be aware that if you go down the private funding route you will also have to pay for the nursing care etc. That's what we were told anyway.

Good luck.

Julia
by J_T
Fri Nov 11, 2016 9:09 pm
Forum: Coping with loss/ Memorial
Topic: Forum Threads II
Replies: 18
Views: 15375

Re: Forum Threads II

Hi all I am a user of old. I think this forum is primarily for support and information during very difficult times. It was certainly a life line for me and my family. Of course, during the time I used the forum I made some very good friends and we, seven of us, are all still in regular contact and m...
by J_T
Wed Nov 09, 2016 12:59 am
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 178750

Re: Carls story

Hi Rob I don't post here often now but look in now and again. Sorry to hear Carl is having a tough time of it at the moment. Sending good vibes that Carl picks up a bit and that the chemo doesn't affect him too much, also that further ablation proceeds with no hiccups. I get that it must get more di...
by J_T
Fri Sep 16, 2016 10:44 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 178750

Re: Carls story

Just dropping in to say hello to Rob and Carl. Keep on keeping on lads!

It must be exhausting but you are both doing so well and supporting each other in a phenomenal way. I salute you both!

Much love

Julia x
by J_T
Mon Jun 06, 2016 10:35 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 136662

Re: Mum of 42 recently diagnosed inoperable PC

What incredible news for you, you must be feeling so relieved!

Long may the good news continue.

Julia x
by J_T
Sun Jun 05, 2016 7:57 pm
Forum: Family, friends and carers
Topic: Farewell
Replies: 12
Views: 6766

Re: Farewell

Hi Didge, sorry you have decided to leave for good. Ray has been gone now since October 2013 and I still come back here, though it's becoming less and less especially now that Mark has left us. He was the last of the posters that were around when Ray was diagnosed. We became a group of people with a...
by J_T
Sun May 29, 2016 10:43 pm
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 109437

Re: My Journey So Far

This is just the saddest news and I am so, so sorry to hear it. My husband was diagnosed around the same time but sadly succumbed after only 7 months so I was always interested in Mark's progress which gave hope to other users of the forum and he will be sorely missed. I am glad you have had three q...

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