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by Carole McGregor
Mon Aug 10, 2015 2:03 am
Forum: Treatment & side effects
Topic: Folfirinox and fatigue
Replies: 12
Views: 11996

Re: Folfirinox and fatigue

Hi Sue - my husband Clive did become progressively fatigued after each cycle. Don't know if it was the cumulative effect of folfirinox. He had a break after 6 cycles and regained a lot of strength and began eating again. All seems to be a bit of trial and error with this particular chemo regime - we...
by Carole McGregor
Thu Aug 28, 2014 11:25 pm
Forum: Family, friends and carers
Topic: lurking on the fringes for 10 months
Replies: 135
Views: 55074

Re: lurking on the fringes for 10 months

Jayne, I don't log onto the forum much since my husband died last year and haven't posted on your thread before but just happened to read your last message and can't bear the thought of you sitting tonight with your world falling apart without knowing how many of us out there feel your pain. This is...
by Carole McGregor
Tue Apr 15, 2014 5:50 pm
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 109960

Re: My Journey So Far

This is so inspiring Mark and will give hope to many people. My husband Clive died last October, just a few weeks before his 60th birthday so I understand what a landmark this must be for you. Funnily enough we are off to California in the summer (though with BA fortunately !). Had originally intend...
by Carole McGregor
Sun Mar 30, 2014 11:27 pm
Forum: General chat
Topic: Mike - Cestrian
Replies: 26
Views: 12903

Re: Mike - Cestrian

A lovely man who was a great comfort and support to many users of this forum throughout his own illness. So sad to hear this news.

Carole xxx
by Carole McGregor
Sun Mar 23, 2014 9:49 pm
Forum: Family, friends and carers
Topic: Lost in a nightmare
Replies: 86
Views: 30832

Re: Lost in a nightmare

Amanda - I so hoped you wouldn't be in this position. So many of us have gone through the same nightmare recently with husbands who were all far too young to be leaving us so soon. Ironic isn't it that finally, Phil seems to be getting the care he deserves. All my love to you and your family. We'll ...
by Carole McGregor
Sun Mar 16, 2014 12:46 am
Forum: Family, friends and carers
Topic: Lost in a nightmare
Replies: 86
Views: 30832

Re: Lost in a nightmare

Oh Amanda, this is just awful. You and Phil have had so little decent quality time since his diagnosis. It's been one crisis after another. Hang on in there girl. You will find the strength from somewhere. Sending lots of virtual hugs.

Carole xxx
by Carole McGregor
Mon Mar 10, 2014 11:45 pm
Forum: Family, friends and carers
Topic: Palliative care concerns from Marie Curie
Replies: 14
Views: 6388

Re: Palliative care concerns from Marie Curie

I am so glad you made your views known Julia and it's clear from the response you received that this was taken very seriously. I always felt such a huge sense of responsibility to do the right thing for Clive throughout his illness but never more so than in those last few days when he was not able t...
by Carole McGregor
Mon Mar 10, 2014 12:59 pm
Forum: Family, friends and carers
Topic: Palliative care concerns from Marie Curie
Replies: 14
Views: 6388

Re: Palliative care concerns from Marie Curie

I thought same too. Bitter experience has proved that palliative care is really hit and miss. We have birthing plans for new mums, why not death plans for people approaching end of life that medics are obliged to follow where possible ? Big issue for us was that Clive's decline was rapid and unexpec...
by Carole McGregor
Sun Mar 09, 2014 9:44 pm
Forum: Family, friends and carers
Topic: Palliative care concerns from Marie Curie
Replies: 14
Views: 6388

Re: Palliative care concerns from Marie Curie

Thanks for sharing this Steve. My complaint about Clive's treatment in hospital the weekend before he died is still under consideration by the NHS board concerned. I don't know what it is like elsewhere in the UK but here in Glasgow there are NO palliative care specialists available at weekends. A s...
by Carole McGregor
Thu Feb 27, 2014 12:41 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 180138

Re: Carls story

Hi Rob I've been in your shoes and know what it's like waiting in Princess Grace for your loved one to come back up from theatre - tough gig ! Just wanted to say don't be too distressed if Carl is in pain and not a happy bunny when you see him. This sometimes happens after Nanoknife. Clive was prett...
by Carole McGregor
Tue Feb 18, 2014 10:26 pm
Forum: Advanced pancreatic cancer
Topic: Devastated
Replies: 46
Views: 22529

Re: Devastated

I am so sorry for your loss Cheryl. You and Steve had such an awful time of it. I don't know if it is of any help to you at all but I think often of the words spoken at my husband's funeral - today your loss and grief is very raw. In time, if you allow it, you will move to a gentler place, a place w...
by Carole McGregor
Mon Feb 10, 2014 11:54 pm
Forum: Family, friends and carers
Topic: Overwhelmed - husband diagnosed, in hospital - decisions.
Replies: 41
Views: 15933

Re: Overwhelmed - husband diagnosed, in hospital - decisions

Hi Larrybee - this is just awful isn't it ? All I would say its that it seems to me that surgery is only ever offered if there seems to be a really good chance of success so I would certainly wait until you have heard from the surgeon. I would add that you should discuss with him or her, what would ...
by Carole McGregor
Fri Feb 07, 2014 7:02 pm
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 54894

Re: Chemotherapy options

Hi everyone Thought I'd give you an update on how my complaint about Clive's treatment is progressing. I didn't sleep for two nights after receiving the initial response from the NHS. Most of it, particularly as regards his 'care' in hospital the weekend before he died was a shameful attempt to cobb...
by Carole McGregor
Mon Jan 27, 2014 12:12 am
Forum: Coping with loss/ Memorial
Topic: How are all your Ladies coping ?
Replies: 19
Views: 19178

Re: How are all your Ladies coping ?

Hello ladies It's now 3 months since Clive died. Some days are ok. On others, I make packed lunches for the kids, wave them off to school and go back to bed and cry all day. I have great friends and a really supportive family but nothing can fill the void that Clive has left. Everything that happene...
by Carole McGregor
Tue Jan 14, 2014 6:44 pm
Forum: Advanced pancreatic cancer
Topic: Jonathan's final performance
Replies: 73
Views: 29554

Re: My hero, lover and best friend gone..

Oh Cathy. I was thinking about you earlier today and wondering how Jonathan was doing. It's been a wee while since you last posted and I feared the worst. I am so very sorry. I have no wise words, just huge respect for the way in which you both dealt with this awful disease and made the most of your...

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