Search found 42 matches

by Jool2504
Mon Dec 24, 2012 5:29 pm
Forum: Advanced pancreatic cancer
Topic: Sorry been a while.
Replies: 3
Views: 3408

Sorry been a while.

Hi Everyone, Just not been able to visit the forum for a few weeks now. Its been a week of firsts for me, Billys birthday was on Saturday and it was a month since we lost him on Sunday. We all thought he would make Christmas, I tried to be positive with him and say he would make next Christmas as we...
by Jool2504
Sat Nov 24, 2012 4:21 pm
Forum: Advanced pancreatic cancer
Topic: The longest days but there gone so fast
Replies: 23
Views: 13381

Re: The longest days but there gone so fast

Afternoon, Having a strange few hours since Bill passed away. Have sorted out undertaker, & registry office appointments, bank appointment. Just feel like I should be doing something all the time, guess its as I have been so busy these past few months its hard to slow down. My parents are here for t...
by Jool2504
Mon Nov 19, 2012 3:30 pm
Forum: Advanced pancreatic cancer
Topic: The longest days but there gone so fast
Replies: 23
Views: 13381

The longest days but there gone so fast

Hi, Thought I'd put a new post topic on as other was a bit big. Myself & my friend spent the night at Bills bedside, he slept peacefully. He's been slightly more awake today but seems very agitated. He also keeps getting the burps which wake up then he struggles again. He seems better slightly than ...
by Jool2504
Sun Nov 18, 2012 9:01 am
Forum: Advanced pancreatic cancer
Topic: 24/7 its non stop since diagnosis
Replies: 33
Views: 18258

Re: 24/7 its non stop since diagnosis

Morning, Dramatic change, Bills been in the hospice since Friday when he was chatting, popping out for a fag, Dr said yesterday he's now got days. He's asleep most of the time, bed bound catheter & pads on, syringe driver fitted. He said goodbye to me last night, held his hand against my face. Slept...
by Jool2504
Fri Nov 16, 2012 4:58 am
Forum: Advanced pancreatic cancer
Topic: 24/7 its non stop since diagnosis
Replies: 33
Views: 18258

Re: 24/7 its non stop since diagnosis

Morning, Can't sleep yet Bill is snoring away gently on his new chair. We went on the hospice day but since tuesday Bill has struggled to stay awake and today was no different, the nurses were shocked to see the dramatic change in him. When he was awake he didn't like it. Eventually we saw the Nurse...
by Jool2504
Wed Nov 14, 2012 5:22 pm
Forum: Advanced pancreatic cancer
Topic: 24/7 its non stop since diagnosis
Replies: 33
Views: 18258

Re: 24/7 its non stop since diagnosis

Hi everyone, More hassle, it never stops with this PC and perifical vascular disease. Bill was so drowsy yesterday managed to get him to CT scan, had to try & keep him awake to drink solution which he them vomited all over himself & my coat, so he sat there soaked & half asleep, I was frantic, he ev...
by Jool2504
Sun Nov 11, 2012 6:55 pm
Forum: Advanced pancreatic cancer
Topic: 24/7 its non stop since diagnosis
Replies: 33
Views: 18258

Re: 24/7 its non stop since diagnosis

Hi, Sorry I have not been on all week but its been hectic since Bill came home on Monday evening. His PC doesn't seem to be bothering him too much with the increased Gabapentine which has been increased twice this week. Bill is more alert again, after Tuesdays visit from the community nurse we now h...
by Jool2504
Sun Nov 11, 2012 6:24 pm
Forum: General chat
Topic: Keeping the faith...just
Replies: 3
Views: 6023

Re: Keeping the faith...just

Well done Deb, I totally feel the same way as you do, none of us really knew about PC till it took over our lives and it should be more 'out there' as are the other types of the disease. Unfortunately at the moment we are so busy with Bill, but I shall definately be campaigning when I can in the fut...
by Jool2504
Sat Nov 03, 2012 10:11 pm
Forum: Advanced pancreatic cancer
Topic: 24/7 its non stop since diagnosis
Replies: 33
Views: 18258

Re: 24/7 its non stop since diagnosis

Hi Everyone, Sorry I've not been on here since tuesday. Bill went to chemo decision made to cancel it, his legs were so bad with cellulitis and water retention, he was admitted straight to the hospice. The hospice have said he is not as bad as they expected. Hes been there since wednesday, the staff...
by Jool2504
Sat Nov 03, 2012 9:55 pm
Forum: Advanced pancreatic cancer
Topic: Living day by day
Replies: 35
Views: 17709

Re: Living day by day

Hi Sue,

Pete would be so proud of you and the children, your all doing so well.

Stay Brave.

J&B
by Jool2504
Sat Nov 03, 2012 9:53 pm
Forum: Advanced pancreatic cancer
Topic: Another 'newbie'
Replies: 35
Views: 18822

Re: Another 'newbie'

Gosh Lulu, Your Dad and Bill are just so a like, he won't walk in the garden and makes me put the car close to the door incase a neighbour sees him. Sorry your Dads bloods weren't good enough for Chemo. Hope there better next week. Going to update my post re the situation at the moment. Its 24/7 non...
by Jool2504
Wed Oct 31, 2012 3:05 am
Forum: Advanced pancreatic cancer
Topic: 24/7 its non stop since diagnosis
Replies: 33
Views: 18258

Re: 24/7 its non stop since diagnosis

Not the news I was expecting quite so soon! D Nurse came this afternoon as the blisters on Bills foot had burst, thankfully it was one of the nurses who has seen him in the last couple of weeks, she was shocked at his cellulitis and called the GP, same one as saw him yesterday he came straight out. ...
by Jool2504
Tue Oct 30, 2012 12:27 pm
Forum: Advanced pancreatic cancer
Topic: 24/7 its non stop since diagnosis
Replies: 33
Views: 18258

Re: 24/7 its non stop since diagnosis

Hi, Bills not quite so confused today and a bit more alert when hes awake. His big blister has burst on his foot during the night, so I have took his dressing off as it was all wet and starting to stick, as advised by the District Nurse I have called them out just to check it. His legs are getting m...
by Jool2504
Tue Oct 30, 2012 12:13 pm
Forum: Advanced pancreatic cancer
Topic: Recently diagnosed!
Replies: 33
Views: 19850

Re: Recently diagnosed!

Hi Sue, Bill has had a massive decrease in pain since he started Gabapentine, hes pain free most of the time now, he is also on Zomorph, Paracetamol & Ibuprofen. If I am worried about anything I go over Bills head, much to his annoyance but he is always much happier once he has been sorted out. Hope...
by Jool2504
Tue Oct 30, 2012 12:09 pm
Forum: Advanced pancreatic cancer
Topic: Unsuccessful whipple attempt
Replies: 23
Views: 27390

Re: Unsuccessful whipple attempt

Hi Heidi, Sorry to hear about your father, flaming PC its a nightmare. My husband is on gemcitabine only and seems to be doing well, light side effects but I have been proactive and after a post on here I give him in anti sickness 4 times a day which seems to really help with the nausea, the hospita...

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