Search found 271 matches

by PCUK Nurse Dianne
Fri Sep 14, 2018 5:05 pm
Forum: Family, friends and carers
Topic: Travel insurance...
Replies: 2
Views: 488

Re: Travel insurance...

Hi Mrs Happy, Toodotty's advice is sound, and i think you would find that most places may re-imburse your money if you mention the situation. There are some travel insurance companies that will specifically cover the cost of travel/holidays etc for patients with a cancer diagnosis. It might be helpf...
by PCUK Nurse Dianne
Tue Sep 04, 2018 3:46 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 14
Views: 2477

Re: My mum - Stage 4 PC with liver mets

Thanks Dee for your post, I thought it might be helpful to explain about the numbness/tingling/cold hands and feet as this is not always explained to patients having chemotherapy. Many patients are aware of it, with Folfirinox chemotherapy it may take longer to recover - it is a side effect of the O...
by PCUK Nurse Dianne
Fri Aug 24, 2018 3:28 pm
Forum: News from Pancreatic Cancer UK
Topic: Supplies of Pancreatic Enzymes - Creon 40k units
Replies: 0
Views: 653

Supplies of Pancreatic Enzymes - Creon 40k units

Pharmaceutical company, Mylan have announced that there is current reduction in supplies of pancreatic enzyme supplement, Creon, 40,000 capsules in the UK. This may take some time to be resolved however we hope to be able to update you with any information from Mylan. Your local Pharmacists are able...
by PCUK Nurse Dianne
Fri Aug 17, 2018 10:05 am
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 14
Views: 2477

Re: My mum - Stage 4 PC with liver mets

Good morning Dee, Welcome to the forum, and as we find, the great forum family are already responding to you. Dee we can give you some information about the chemotherapy treatments, and also managing symptoms, and of course the pancreatic enzymes. Please feel free to touch base with us today if it i...
by PCUK Nurse Dianne
Fri Aug 17, 2018 9:59 am
Forum: Family, friends and carers
Topic: Sadness
Replies: 11
Views: 2244

Re: Sadness

Dear Kerry, It is with great sadness we hear of Dad's passing. Please accept our deepest sympathies from all the nurses at PCUK. Kerry of course this time is sad and you must all feel so raw. It sounds that the hospice was the best environment for Dad as we know is so often the situation and I am su...
by PCUK Nurse Dianne
Tue Aug 07, 2018 4:57 pm
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 36
Views: 5791

Re: Nano knife for Stage IV PC.

Dear Forum users, You will notice that this thread has been edited as some aspects do not meet the rules and regulations of using this Discussion forum. I would hope that you have all read through the forum rules and be reminded that we do have to be respectful of all health professionals and health...
by PCUK Nurse Dianne
Tue Jul 10, 2018 4:51 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 40
Views: 14004

Re: Concerned husband

Good afternoon Saxon, thank you for your question, always welcome. Saxon it may be that your wife's platelets will continue to increase as she has completed her previous chemotherapy in recent weeks. I wonder how frequently these are being checked on bloods, and are you able to see a steady incline ...
by PCUK Nurse Dianne
Tue Jul 10, 2018 3:52 pm
Forum: Advanced pancreatic cancer
Topic: Diagnosed too late for treatment
Replies: 11
Views: 3625

Re: Diagnosed too late for treatment

Dear Kimmac, Our heart goes out to you and the difficult journey you face. I am sure you have found an 'inner strength' in coping with all you have and wonder where you find the reserves at such a time. You will find great support and encouragement from the amazing 'family' here, and you know to tou...
by PCUK Nurse Dianne
Tue Jul 10, 2018 3:44 pm
Forum: Family, friends and carers
Topic: My Mum's PC Diagnosis
Replies: 9
Views: 1848

Re: My Mum's PC Diagnosis

Dear all, I really wanted to post more in a 'general manner' here. It is great that you have all found the benefit of belonging to this wonderful 'forum family' and we do appreciate it is so difficult to open your hearts and share these difficult days. We never underestimate how difficult this journ...
by PCUK Nurse Dianne
Tue Jul 10, 2018 2:55 pm
Forum: Family, friends and carers
Topic: Can not believe I’m here again
Replies: 9
Views: 2093

Re: Can not believe I’m here again

Dear 'Staystrong', I am so sorry to read your post and understand that this must be so incredibly difficult for you at present. I am sure you are still dealing with your loss of Mum and to have this news must feel so unjust. This must be such a test of your own inner strength and resolve and I canno...
by PCUK Nurse Dianne
Thu Jun 21, 2018 3:25 pm
Forum: Family, friends and carers
Topic: Mum Diagnosis
Replies: 13
Views: 2699

Re: Mum Diagnosis

Margie i have just sent you an email. Dianne
by PCUK Nurse Dianne
Thu Jun 21, 2018 2:37 pm
Forum: Family, friends and carers
Topic: Mum Diagnosis
Replies: 13
Views: 2699

Re: Mum Diagnosis

Hi Margie, I might take the opportunity to email you, there may be several reasons for Mum having the fluid in her tummy, and i can explain this further for you in direct contact. With kind regards, Dianne Pancreatic Cancer Specialist Nurse Pancreatic Cancer UK Support line 0808 801 0707 Email: nurs...
by PCUK Nurse Dianne
Fri May 11, 2018 9:45 am
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 40
Views: 14004

Re: Concerned husband

Good morning Saxon, Good to hear that your wife has been able to continue on treatment and I am sure she may be looking forward to a short break from chemotherapy, maybe an opportunity to have some time away from hospitals and all that it involves. If you have any further information about the PARP ...
by PCUK Nurse Dianne
Fri May 11, 2018 9:37 am
Forum: Coping with loss/ Memorial
Topic: She's gone
Replies: 34
Views: 28166

Re: She's gone

Dear Sarah, Thank you for such an amazing post. You words, I am sure will resonate with so many of our 'forum family', bring tears, shared emotions and nods of agreement for many familiar feelings. Your sense of self and the world around you has naturally changed within the last years Sarah with you...
by PCUK Nurse Dianne
Fri May 04, 2018 1:08 pm
Forum: Advanced pancreatic cancer
Topic: THE HIDDEN ENEMY
Replies: 9
Views: 3500

Re: THE HIDDEN ENEMY

Good morning Jennifer, Thank you for taking the time to share your story so eloquently. We do appreciate it takes some courage and humility to be able to do this. As you have already found, this is a very supportive place and we are sure you will value the input from your new 'forum family and frien...

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