Search found 282 matches

by PCUK Nurse Dianne
Fri Dec 21, 2018 2:08 pm
Forum: Patient Experience Forum
Topic: Folfirinox Round 7
Replies: 40
Views: 9816

Re: Folfirinox Round 7

Dear Erika, Thank you for continuing to be such an inspiration to many on this forum. Well done on all you have achieved and we hope that you are able to relax and enjoy your Christmas with family. I am sure your experience and strength will be a major inspiration for many others. We are all have gr...
by PCUK Nurse Dianne
Fri Dec 21, 2018 2:04 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 47
Views: 13373

Re: My mum - Stage 4 PC with liver mets

Kate, Wishing you strength and safe travel, along with Erika, you are paving the way for many other patients in making such epic trips. We are all thinking of you and hope that you and Erika will be able to update us on this journey when you feel able. All best wishes, safe journey. Dianne Pancreati...
by PCUK Nurse Dianne
Fri Dec 21, 2018 1:59 pm
Forum: General chat
Topic: First radiotherapy
Replies: 10
Views: 2068

Re: First radiotherapy

Dear Undyddarytro, I am sorry to hear your husband is struggling at present. I wonder if you might wish to touch base with us by phone or email. The sickness may be due to other causes perhaps, ie is this due to the radiotherapy, or is this due to some stricture in the digestive area. My thoughts ar...
by PCUK Nurse Dianne
Thu Dec 06, 2018 2:04 pm
Forum: Patient Experience Forum
Topic: CBD oil - experience
Replies: 6
Views: 1397

Re: CBD oil - experience

HI Sparklyrebecca, I am sorry to hear that you are hear due to Dad's diagnosis, and I am sure this must be an overwhelming time for you all. From a perspective of CBD oil (this does not contain the THC component you would find in Cannabis) this is available in local high street stores, ie Holland & ...
by PCUK Nurse Dianne
Thu Dec 06, 2018 12:49 pm
Forum: Treatment & side effects
Topic: Brownish/black marks on soles of feet
Replies: 2
Views: 821

Re: Brownish/black marks on soles of feet

Good morning Undyddarytro, Thank you for your question. I have checked with Jeni one of our specialist nurses who has an excellent chemotherapy background about this symptom and I have a few questions and considerations for you? -do you have any other problems with your feet, ie cracked skin or sore...
by PCUK Nurse Dianne
Thu Nov 29, 2018 4:43 pm
Forum: Treatment & side effects
Topic: Begining radiation therapy and chemo
Replies: 6
Views: 1286

Re: Begining radiation therapy and chemo

Thanks Unyddarytro for your post. It is good to hear that your husband has managed so well after 15 months, well done on all of your support to him too. It might be helpful to understand a little more about your husbands symptoms, are these secondary to his chemotherapy, has he had any treatment for...
by PCUK Nurse Dianne
Thu Nov 29, 2018 4:01 pm
Forum: Family, friends and carers
Topic: husband 50 months post diagnosis stage 4 - endoxan
Replies: 5
Views: 1663

Re: husband 50 months post diagnosis stage 4 - endoxan

Dear Patrigib, Such a great achievement and one to be celebrated. Thank you ladies for your responses too. Patrigib, Endoxan is a trade name for a chemotherapy treatment called Cyclophosphamide. This is a treatment that has been around for a long time, usually given more frequently for other cancers...
by PCUK Nurse Dianne
Thu Nov 29, 2018 3:43 pm
Forum: Advanced pancreatic cancer
Topic: Just diagnosed PC with spread to the brain
Replies: 3
Views: 1252

Re: Just diagnosed PC with spread to the brain

Dear Paddy's sister, Thank you for your post. I am so sorry to hear your news about your brother, and as with so many people using this forum I am sure this must be such a shock to you all. I am also sorry to hear that this is the second incidence in your family, this must be even more difficult to ...
by PCUK Nurse Dianne
Thu Nov 29, 2018 3:36 pm
Forum: Advanced pancreatic cancer
Topic: Getting confused with all the information
Replies: 3
Views: 1030

Re: Getting confused with all the information

Theresa it might help to touch base with us on the support line, we could have a long discussion with you about second opinions and some treatment options, probably a bit lengthy for purposes of this discussion forum. Please do be in touch as you may need. With kind regards, Dianne Pancreatic Cancer...
by PCUK Nurse Dianne
Thu Nov 29, 2018 3:21 pm
Forum: General chat
Topic: Sleepless nights..
Replies: 1
Views: 683

Re: Sleepless nights..

Hallo Eanicah03,

Thank you for your post on this forum. I will email you directly as this may not be the most appropriate place for your support.

With kind regards,

Dianne
Pancreatic Cancer Specialist Nurse,
Pancreatic Cancer UK
Support line: 0808 801 0707
Email: nurse@ pancreaticcancer.org.uk
by PCUK Nurse Dianne
Tue Oct 23, 2018 4:51 pm
Forum: Patient Experience Forum
Topic: Just started Folfirinox
Replies: 16
Views: 5122

Re: Just started Folfirinox

Dear The Petal, Thank you for sharing your story, welcome to this discussion forum and i am sure you will be well supported by the amazing 'forum family' who use this forum. Well done also on your recovery from such extensive surgery. It may be helpful if you wish to contact us on the support line P...
by PCUK Nurse Dianne
Tue Oct 23, 2018 4:43 pm
Forum: General chat
Topic: Worried
Replies: 4
Views: 2159

Re: Worried

Dear Stellastar, Thank you for sharing your story. It might be easier if we take some time to email you directly with some thoughts and suggestions for you. I hope this might be a more satisfactory way for you to have some guidance and input. We will make contact with you in the next day or so and h...
by PCUK Nurse Dianne
Fri Sep 14, 2018 5:05 pm
Forum: Family, friends and carers
Topic: Travel insurance...
Replies: 2
Views: 1814

Re: Travel insurance...

Hi Mrs Happy, Toodotty's advice is sound, and i think you would find that most places may re-imburse your money if you mention the situation. There are some travel insurance companies that will specifically cover the cost of travel/holidays etc for patients with a cancer diagnosis. It might be helpf...
by PCUK Nurse Dianne
Tue Sep 04, 2018 3:46 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 47
Views: 13373

Re: My mum - Stage 4 PC with liver mets

Thanks Dee for your post, I thought it might be helpful to explain about the numbness/tingling/cold hands and feet as this is not always explained to patients having chemotherapy. Many patients are aware of it, with Folfirinox chemotherapy it may take longer to recover - it is a side effect of the O...
by PCUK Nurse Dianne
Fri Aug 17, 2018 10:05 am
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 47
Views: 13373

Re: My mum - Stage 4 PC with liver mets

Good morning Dee, Welcome to the forum, and as we find, the great forum family are already responding to you. Dee we can give you some information about the chemotherapy treatments, and also managing symptoms, and of course the pancreatic enzymes. Please feel free to touch base with us today if it i...

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