Search found 58 matches

by AnneD
Mon Jul 10, 2017 12:09 am
Forum: Ask the nurse
Topic: Whipple imminent, mass in head of pancreas - is this still classified as cancer
Replies: 12
Views: 11924

Re: Whipple imminent, mass in head of pancreas - is this still classified as cancer

Hello Smileymum, If your mass is an IPMN it may well be benign but as was said above you won't know until the post-operative histology report. I had a Whipple for IPMN which turned out to have a central focus of adenocarcinoma in 2010. In 2009 I had had a distal pancreatectomy for the same reason. T...
by AnneD
Fri Jun 30, 2017 11:18 am
Forum: General chat
Topic: What shall I do
Replies: 7
Views: 11290

Re: What shall I do

Hello Diane, I am a little late to this discussion I'm afraid having just been on a short break to Bruges. I had a distal pancreatectomy and splenectomy in 2009 and a Whipple in 2010 so now have no pancreas or spleen. These surgeries followed six-monthly scanning which showed a gradually and then ra...
by AnneD
Fri May 19, 2017 8:11 pm
Forum: Family, friends and carers
Topic: A time to live
Replies: 3
Views: 7365

Re: A time to live

I agree that it is well worth watching.
I found it inspiring with people determinedly making the most of the time they have left.
There were a lot more smiles than tears.
by AnneD
Wed Apr 26, 2017 11:25 pm
Forum: Family, friends and carers
Topic: Calling all survivors!
Replies: 3
Views: 7072

Re: Calling all survivors!

Hello Everyone! I have just read the request by Didge to say hello. I do quite often read the posts and feel very upset at the sad stories and suffering. I have been very lucky in that my tumours were caught early and know that this is very unusual. I had pancreatitis from 2002 which provoked invest...
by AnneD
Fri Nov 01, 2013 4:32 pm
Forum: General chat
Topic: I was on BBC Radio Lancashire Thursday
Replies: 6
Views: 5691

Re: I was on BBC Radio Lancashire Thursday

I've just listened and was very moved by your interview.

Thank you Linda.
by AnneD
Wed May 29, 2013 10:54 pm
Forum: Family, friends and carers
Topic: Folfirinox started on Wednesday and other stuff
Replies: 241
Views: 92513

Re: Folfirinox started on Wednesday and other stuff

Hello Karen, Elastase is an enzyme produced in the pancreas. It isn't broken down in the intestine so it remains in the faeces. A sample of faeces can be tested to see how much elastase it contains ( just a "pea-sized" sample ). Low levels of faecal elastase indicate that the pancreas is not produci...
by AnneD
Wed Dec 12, 2012 11:53 pm
Forum: Advanced pancreatic cancer
Topic: creon / 2nd attempt chemo?
Replies: 15
Views: 10889

Re: creon / 2nd attempt chemo?

Just a little bit more to what Jeni has said. If you open the capsules and sprinkle the mini-microspheres on food, it is important to use acidic food, eg apple sauce or yoghurt. The little spheres have a coating which only breaks down in alkaline conditions such as in the small intestine. This ensur...
by AnneD
Tue Dec 04, 2012 10:09 pm
Forum: Family, friends and carers
Topic: My Dad just diagnosed
Replies: 18
Views: 10302

Re: My Dad just diagnosed

Just wondering if you have seen the section on diet and pancreatic cancer. It looks at the impact of pancreatic cancer on diet and nutrition and contains information on managing dietary related symptoms. http://www.pancreaticcancer.org.uk/information-and-support/diet-living-with-pancreatic-cancer/di...
by AnneD
Tue Dec 04, 2012 1:40 pm
Forum: Family, friends and carers
Topic: My mum has just been diagnosed
Replies: 44
Views: 21058

Re: My mum has just been diagnosed

Hello Catherine, I hope your mum has come home and is still in good spirits. Yes it is hard to get excited about Christmas when you have such a lot to deal with. Two years ago yesterday I had a Whipple and had already had a distal pancreatectomy eighteen months previously. This left me without a pan...
by AnneD
Sat Nov 24, 2012 11:32 pm
Forum: Advanced pancreatic cancer
Topic: The longest days but there gone so fast
Replies: 23
Views: 12849

Re: The longest days but there gone so fast

Dear Jools,
I'm so sorry to hear that Bill has passed away.
Sincere condolences to you and your family at this sad time.
Anne
by AnneD
Wed Nov 21, 2012 10:36 pm
Forum: General chat
Topic: second opinions
Replies: 4
Views: 6118

Re: second opinions

Hello - how are you getting on? I haven't been posting lately and only looking in now and again. I see you are seeking a second opinion. Are you contemplating surgery for the IPMN? It's nearly two years now since I had the Whipple and more than three and a half since the distal pancreatectomy and sp...
by AnneD
Sun Jun 17, 2012 11:29 am
Forum: General chat
Topic: Jamie at home party
Replies: 6
Views: 7200

Re: Jamie at home party

Well done Louie and thanks for all your wonderful fundraising efforts!
by AnneD
Sat May 05, 2012 2:26 pm
Forum: General chat
Topic: spyglass test
Replies: 19
Views: 16021

Re: spyglass test

Hello Dan, I'm pleased to hear that you have had the test at long last. My IPMN's were diagnosed because the duct was getting wider and wider as a result of the growth of the tumours and the production of mucus. They could see mucus seeping out through the papilla (fish-eye appearance) on ERCP. I kn...
by AnneD
Thu Apr 12, 2012 9:24 pm
Forum: Family, friends and carers
Topic: My husbands pancreatic cancer situation
Replies: 67
Views: 64832

Re: My husbands pancreatic cancer situation

Dear Sooty,
I'm so sorry to hear the news about your husband.
Sincere condolences to you and your family at this sad time.
Anne.
by AnneD
Mon Apr 09, 2012 2:20 pm
Forum: Advanced pancreatic cancer
Topic: Ted 29.8.46 - 9.4.12
Replies: 21
Views: 12013

Re: Ted 29.8.46 - 9.4.12

Dear Nicki,
I'm so sorry to read your news about Ted.
Sincere condolences to you at this sad time.
Anne.

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