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by PCUK Nurse Jeni
Mon Feb 11, 2019 4:29 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 45
Views: 24642

Re: Concerned husband

Hi Saxon,

I will email you.

KR,

Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707
by PCUK Nurse Jeni
Thu Feb 07, 2019 4:04 pm
Forum: Family, friends and carers
Topic: loosing hope
Replies: 9
Views: 1718

Re: loosing hope

Hello Charlotte, Thank you for sharing your very moving post and speaking so beautifully about your dad and the relationship you have. As others have said, its a very precious relationship, and you are fortunate that you have had the privilege of this. But as Kate said, it comes with a price. I am s...
by PCUK Nurse Jeni
Thu Feb 07, 2019 3:55 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 45
Views: 24642

Re: Concerned husband

Hello saxon, Thanks for the update. A lot has been going on. Just wondering, where is the main pain which your wife is suffering from? And what medication is she on currently to help her? If you prefer, you can email us directly, and perhaps we might be able to offer a few suggestions? Kind regards,...
by PCUK Nurse Jeni
Tue Jan 29, 2019 10:31 am
Forum: Family, friends and carers
Topic: Does it get easier?
Replies: 7
Views: 3134

Re: Does it get easier?

Hello All, I just wanted to post a short message of thanks to Erika for her inspiring and insightful words of wisdom on this thread. Truly an encouragement I am sure - and to have such a positive outlook when facing such difficult times, Erika, you are truly amazing. Thank you for all that you have ...
by PCUK Nurse Jeni
Tue Jan 29, 2019 10:23 am
Forum: Ask the nurse
Topic: Extreme Exhaustion
Replies: 4
Views: 3231

Re: Extreme Exhaustion

Hi Vickif, I am sorry to hear that you are feeling like progress is minimal. Has your husband had his liver biopsy yet? Or, has he had a date for this? I hope that this does take place as there seems to have been a wait for him to start his chemo. Has he seen an oncologist yet? Please do give us a c...
by PCUK Nurse Jeni
Tue Jan 29, 2019 10:12 am
Forum: Family, friends and carers
Topic: My husband Dan
Replies: 11
Views: 3415

Re: My husband Dan

Hi Fernack, So sorry to read all of this - the weight loss is of course a concern. Its understandable that the oncologist would be thinking about therapeutic benefit versus quality of life - its a difficult decision to make, but having such severe side effects is also very debilitating. Perhaps as E...
by PCUK Nurse Jeni
Tue Jan 29, 2019 9:58 am
Forum: Family, friends and carers
Topic: Husband
Replies: 2
Views: 699

Re: Husband

Hello Debz, Thank you for your post, and I am sorry that you have found yourself on these forums - understandably, not a place you would wish to be. I know that you will find some great support from others on here who are going through the same or similar stories. Debz, its very likely that the seco...
by PCUK Nurse Jeni
Tue Jan 22, 2019 4:37 pm
Forum: Ask the nurse
Topic: Extreme Exhaustion
Replies: 4
Views: 3231

Re: Extreme Exhaustion

Hi Vickif, Thank you for your post, and sorry that you have found yourself on these forums. I am sorry to hear that your husband was diagnosed with pancreatic cancer on his birthday - no time is a good time to get this diagnosis, but it seems particularly cruel for this to have happened on his birth...
by PCUK Nurse Jeni
Tue Jan 22, 2019 4:23 pm
Forum: Family, friends and carers
Topic: Does it get easier?
Replies: 7
Views: 3134

Re: Does it get easier?

Hello ash, Welcome to the forum, and I am sorry that such sad circumstances have brought you to this site. I am sorry to hear about your dad and the issues he has been struggling with since the diagnosis of pancreatic cancer. You do seem to have a lot on your plate along with studying for your final...
by PCUK Nurse Jeni
Sun Jan 20, 2019 3:34 am
Forum: Ask the nurse
Topic: pancreatic cancer
Replies: 1
Views: 1171

Re: pancreatic cancer

Hi there, Welcome to the forums, but of course, not a place you wish to be. I am so sorry to hear about your husband - can I ask, is he being regularly followed up by anyone at all? Oncologist? Gp? Is he on any treatment, such as chemotherapy? Has he had a scan to confirm the presence of the fluid? ...
by PCUK Nurse Jeni
Wed Jan 09, 2019 4:22 pm
Forum: General chat
Topic: Waterproof cover for PICC line?
Replies: 4
Views: 1485

Re: Waterproof cover for PICC line?

Hi there, There are several products if you google them, however this one comes recommended by others who have had PICC lines inserted: https://www.amazon.co.uk/gp/product/B005ATZB1O/ref=oh_aui_detailpage_o05_s00?ie=UTF8&psc=1 Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Support...
by PCUK Nurse Jeni
Wed Jan 09, 2019 4:01 pm
Forum: Patient Experience Forum
Topic: Any information would help
Replies: 5
Views: 2174

Re: Any information would help

Hi Week 20, A few things might be helpful here. - Increase fluid intake - water in particular. This will hydrate the bowel and hopefully, help the movement of the bowel. - Increase natural fibre - fruit, vegetables, wholegrain. A small handful of all bran on your cereal is a really good help to regu...
by PCUK Nurse Jeni
Wed Jan 09, 2019 3:42 pm
Forum: Patient Experience Forum
Topic: CBD oil - experience
Replies: 6
Views: 2195

Re: CBD oil - experience

Hi There week 20, Thanks for your post. Sometimes, things like this can interact with chemotherapy. The best thing to do is to discuss this with your oncologist in order to be sure there is no adverse harm in taking them. They will be best placed to let you know if its OK to continue it with the che...
by PCUK Nurse Jeni
Thu Dec 27, 2018 3:25 pm
Forum: Advanced pancreatic cancer
Topic: My big brother
Replies: 22
Views: 5909

Re: My big brother

Dear Bromsgrove sister, We are so sorry to hear about this sad news - we know how difficult this has been for you all and how devastated you are. On behalf of all the nurses here, we would like to extend our deepest sympathies to you and your family - please know that you are in our thoughts. Kindes...
by PCUK Nurse Jeni
Fri Dec 14, 2018 12:43 pm
Forum: General chat
Topic: First radiotherapy
Replies: 10
Views: 3036

Re: First radiotherapy

Hi again,

This sounds positive.

Hopefully, it will settle down now.

Jeni.

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