Search found 1025 matches

by PCUK Nurse Jeni
Fri Dec 14, 2018 12:43 pm
Forum: General chat
Topic: First radiotherapy
Replies: 5
Views: 538

Re: First radiotherapy

Hi again,

This sounds positive.

Hopefully, it will settle down now.

Jeni.
by PCUK Nurse Jeni
Thu Dec 13, 2018 3:28 pm
Forum: General chat
Topic: First radiotherapy
Replies: 5
Views: 538

Re: First radiotherapy

Hi there, Sorry to hear about this. Did you let the radiotherapy staff know yesterday when he went for his second dose? And if so, what did they say or recommend? Is he on any anti-sickness medication? Is the vomiting settling as the day goes by, or getting worse? Is he still able to tolerate fluids...
by PCUK Nurse Jeni
Thu Dec 13, 2018 3:22 pm
Forum: Treatment & side effects
Topic: Overnight Hypo
Replies: 3
Views: 416

Re: Overnight Hypo

Hi Petal, Thank you for your post. No, it wont be the Creon which is causing this - Creon helps more food to be digested and absorbed, so this wont cause low blood sugar levels. Are you also taking good doses of Creon throughout the day? I note you mentioned the evening dose above - what about other...
by PCUK Nurse Jeni
Thu Dec 13, 2018 3:12 pm
Forum: Advanced pancreatic cancer
Topic: My big brother
Replies: 15
Views: 1655

Re: My big brother

Hi there, Thanks for your posts and all the replies also. In the UK, they will do chemo once the bilirubin levels get to approx 35 or lower. So long as the bilirubin levels are on the way down, that's all that matters, and this might take a few days. Clearly, the higher the bilirubin levels are to s...
by PCUK Nurse Jeni
Fri Nov 30, 2018 1:01 pm
Forum: Treatment & side effects
Topic: Begining radiation therapy and chemo
Replies: 5
Views: 633

Re: Begining radiation therapy and chemo

Hi there, Thanks for the further information. A few things to consider here - has he ever had Difflam mouthwash? This is very good and also has an anaesthetic element, so helps with pain. This is available on prescription from the gp, so please do ask about this. If the thrush is not being relieved ...
by PCUK Nurse Jeni
Fri Nov 30, 2018 12:51 pm
Forum: General chat
Topic: Sign the petition
Replies: 12
Views: 1346

Re: Sign the petition

Hi Dg, Trying to find out for you regarding non-electronic signatures. Thanks for asking. And thanks to everyone for signing, and to Erika for all her hard work. Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurse@pancreaticcancer.org.uk support line: 0...
by PCUK Nurse Jeni
Fri Nov 02, 2018 1:46 pm
Forum: General chat
Topic: Feeling morbid!
Replies: 11
Views: 1535

Re: Feeling morbid!

Hi Michaela, Thanks for your honest post - I am sorry to hear that you are feeling this way, and feeling quite low. Michaela, you would not be alone in these thoughts - we do speak to folk quite often who feel like they have "hit a wall", so to speak. Its not uncommon at all when you are going throu...
by PCUK Nurse Jeni
Wed Oct 31, 2018 3:21 pm
Forum: General chat
Topic: Despairing
Replies: 3
Views: 1032

Re: Despairing

Hello Cazzza, Thank you for your post on the forums. I am so sorry to hear that you lost your husband to pancreatic cancer. It can be very difficult to handle the speed at which pancreatic cancer can take someones life - this would not be an unique situation, unfortunately, and we do speak to other ...
by PCUK Nurse Jeni
Wed Oct 31, 2018 3:05 pm
Forum: Family, friends and carers
Topic: My Mom’s journey - advice appreciated
Replies: 7
Views: 2427

Re: My Mom’s journey - advice appreciated

Hi there Jmorphy, Apologies for the delay in replying to your post due to staff shortages. Has there been any decision made concerning your mum and inserting a duodenal stent or having bypass surgery? How is your mum doing now? Is she still vomiting? You can read some more about bypass surgery here:...
by PCUK Nurse Jeni
Mon Sep 24, 2018 4:25 pm
Forum: Ask the nurse
Topic: Is this the end?
Replies: 2
Views: 1514

Re: Is this the end?

Hi Suzyma61, So sorry to hear this. Have you been able to have a discussion with his care team about what might be going on? You mention antibiotics, does he currently have an infection and is it within the stent or elsewhere? Have they tested his blood and electrolyte levels to ensure they are ok? ...
by PCUK Nurse Jeni
Thu Sep 20, 2018 5:04 pm
Forum: General chat
Topic: Time
Replies: 30
Views: 10055

Re: Time

Hello Fairy, Sorry to hear about your mum, and that she has had a fall - just wondering, did you call the ambulance when she fell to make sure she was ok? Has she complained at all since then, or is there any obvious injury? Has the gp checked her over or not? You mention the tummy feeling tight - d...
by PCUK Nurse Jeni
Tue Aug 07, 2018 4:15 pm
Forum: Treatment & side effects
Topic: Severe distention and tightness
Replies: 18
Views: 5522

Re: Severe distention and tightness

Hi Michaela, I assume you are taking creon for your digestion? If so, what dose are you taking? Its possible that you are not taking enough, and this might be contributing to the issue. Do email us - details below. Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Pancre...
by PCUK Nurse Jeni
Tue Aug 07, 2018 4:11 pm
Forum: Family, friends and carers
Topic: Can not believe I’m here again
Replies: 9
Views: 3678

Re: Can not believe I’m here again

Hello Staystrong, I am so sorry to learn that your dad passed away so quickly after his diagnosis. Our thoughts go to you and your family - and our condolences to you all from all of the nurses on here, myself, Dianne and Rachel. I think Kerry has a point about going back to work so soon - aware tha...
by PCUK Nurse Jeni
Tue Aug 07, 2018 3:47 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 12459

Re: Battling to get treament

Hi Toodotty, Sorry to hear all of this. The reason you would have had all the work up is that they will follow a neutropaenic sepsis protocol until proven otherwise - its the same across the country. Because you are on chemotherapy, it is something which needs to be acted upon quickly - so, antibiot...
by PCUK Nurse Jeni
Tue Aug 07, 2018 3:34 pm
Forum: Ask the nurse
Topic: Patient View
Replies: 2
Views: 1831

Re: Patient View

Hi Toodotty, No we have not heard of this, actually, but it sounds really good. It looks like it was first set up for Kidney Transplant patients, but seems it is branching out. The local unit has to have the Patient View facility as far as I can make out - I haven't delved into it in depth, but have...

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