Pancreatic Cancer UK

Hi Michaela, Thanks for your honest post - I am sorry to hear that you are feeling this way, and feeling quite low. Michaela, you would not be alone in these thoughts - we do speak to folk quite often who feel like they have "hit a wall", so to speak. Its not uncommon at all when you are going throu...

Hello Cazzza, Thank you for your post on the forums. I am so sorry to hear that you lost your husband to pancreatic cancer. It can be very difficult to handle the speed at which pancreatic cancer can take someones life - this would not be an unique situation, unfortunately, and we do speak to other ...

Hi there Jmorphy, Apologies for the delay in replying to your post due to staff shortages. Has there been any decision made concerning your mum and inserting a duodenal stent or having bypass surgery? How is your mum doing now? Is she still vomiting? You can read some more about bypass surgery here:...

Hi Suzyma61, So sorry to hear this. Have you been able to have a discussion with his care team about what might be going on? You mention antibiotics, does he currently have an infection and is it within the stent or elsewhere? Have they tested his blood and electrolyte levels to ensure they are ok? ...

Hello Fairy, Sorry to hear about your mum, and that she has had a fall - just wondering, did you call the ambulance when she fell to make sure she was ok? Has she complained at all since then, or is there any obvious injury? Has the gp checked her over or not? You mention the tummy feeling tight - d...

Hi Michaela, I assume you are taking creon for your digestion? If so, what dose are you taking? Its possible that you are not taking enough, and this might be contributing to the issue. Do email us - details below. Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Pancre...

Hello Staystrong, I am so sorry to learn that your dad passed away so quickly after his diagnosis. Our thoughts go to you and your family - and our condolences to you all from all of the nurses on here, myself, Dianne and Rachel. I think Kerry has a point about going back to work so soon - aware tha...

Hi Toodotty, Sorry to hear all of this. The reason you would have had all the work up is that they will follow a neutropaenic sepsis protocol until proven otherwise - its the same across the country. Because you are on chemotherapy, it is something which needs to be acted upon quickly - so, antibiot...

Hi Toodotty, No we have not heard of this, actually, but it sounds really good. It looks like it was first set up for Kidney Transplant patients, but seems it is branching out. The local unit has to have the Patient View facility as far as I can make out - I haven't delved into it in depth, but have...

Hi there,

Perhaps email our fundraising team, and they may be able to help you?

The details are: fundraise@pancreaticcancer.org.uk

Kind regards,

Jeni

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707

Hi Michaela, Sounds as though you need more creon also - certainly double the 40,000 dose, and more for the crisp snacks - at least 20,000. You are welcome to call us or email us if you want more advice on creon. Details below. Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Suppor...

Hello Kerry, I am also so pleased to hear that your dad has got a place at the hospice - and you are right, they are peaceful and happy places and not in the slightest bit rushed. He will be so well cared for there. Also great to hear that you might be able to access some support via the hospice you...

Hello Keith, Thanks for posting this absolutely fantastic news! I am so happy for your daughter, and yourself, and the family - you have been amazing going through this together. This really is a fantastic result - after 3 months of chemo! lets hope the next 3 cycles will make a good fist of the rem...

Hi timefortiffin, And, thanks all for the posts. I wasn't sure, timefortiffin, whether your relative has already had the Whipples and now has local recurrence or not? Or, what did you mean by local recurrence? You are welcome to drop us an email to explain a bit more if that's OK, and hopefully, we ...

Hello Kerry, I am so sorry to read your post and the news about your dad. Certainly, it is very difficult to watch your dad going downhill, and no doubt, your desire is for him not to suffer in a protracted way. It has not been easy for your dad, reading your post, with all the complications also, a...