Pancreatic Cancer UK

Hello Florence, Thanks for your post concerning the supply of creon. The manufacturers have a statement on their website, which you can find here: http://www.creon.co.uk/ It is hoped that this should be resolved as soon as possible. However, there is a number which you can call for further updates o...

Hello AndAde, Thank you for posting such good news with regards to Adrian's latest scan results. It really is incredible news! Long may it last - and have a wonderful weekend. Kind regards, Jeni. Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurse@pancreaticcancer.org.u...

Hello Saxon, Thanks for the update. Sorry to hear things are not great at the moment. Your wife has done amazingly to tolerate the chemo so far - it gets tougher as the cycles go on. I am sure that once that is finished, they will do an updated CT scan. I hope the appointment goes well next week. Pl...

Hello Jan, Thanks for your above post - I am wondering if you have been able to sort this out and whether your mum was able to see the gp today? If not, please do not hesitate to contact us - our contact details are in the signature. Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse ...

Dear Keith, This is really positive news, and its great to hear how well your daughter is tolerating the chemo. I am sure it is reassuring for you all, and as you say, take every positive you get. Wishing your daughter all the best for her future treatments. Kind regards, Jeni. Jeni Jones, Pancreati...

Hello Jennifer, My name is Jeni, and I am one of the nurses working for the charity. I am aware that my colleague Dianne has previously responded to your post. I am very sorry to hear of these latest events for G and how unwell he has been again. Your story is so heartwarming, and the fact that you ...

Hello Fiona, I am so sorry to hear that your mum has been diagnosed with pancreatic cancer. It is a shock, and waiting for the outcomes on Monday, as to whether she is able to have the stent fitted or not, must be difficult for you all, not least your mum. Hopefully, they have treated some of the sy...

Hi Sue, Welcome to the forums - a place where nobody wants to end up of course. I am sure that you will get great support on this forum. I am sorry to hear about your husbands diagnosis Sue. I have sent you an email. Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Panc...

Hello Saxon, That's good news to hear that your wife is to carry on with the folfirinox. It seems sensible to carry on if she is clinically improving and that the tumour markers are reducing - it indicates there is a response, which is good. Not sure what the drugs might be - do you have a name at a...

Hi Elle, So sorry to hear this, but its wonderful that your dad is in a hospice - they are kind and caring places. I hope the weekend is not to bad for you all. Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Pancreatic Cancer UK Support Service Ph: 0808 801 0707 (10-4 Monday to Fr...

Hello Saxon,

Apologies for the late response.

Do you know the name of the chemotherapy drugs at all?

Kind regards,

Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707

Hello Mrshappy, Thank you for your post on the forums, and welcome to the forums, although, understandably, not a place which you might like to be. I am sorry to hear that your dad has recently been diagnosed with pancreatic cancer. By now, you will have had the appointment with your dad's team - I ...

Hello Hyperfocus, Thank you for your courage and bravery in posting your dad's story on the forum. I would like to extend our sincere condolences to you and your family at this tragic time - we are sorry for your loss. It is heartbreaking to hear your dad's story, but the way you have written this o...

Hello Robert, This sounds like a sensible next step, and during the EUS, they will take a biopsy or some tissue or fluid in order to determine what the make up of the cyst is. Its difficult when you are in the process of investigation, of course, but it would be wise to wait and see what the results...

Hi Tessa, Thank you for your post. I am sorry to hear that your husband has been diagnosed with a Neuro Endocrine tumour. As you say, a lot of learning to take on board and a new area to gain information about. Tessa, I wonder whether you have been in touch with the NET foundation at all? https://ww...