Search found 1016 matches

by PCUK Nurse Jeni
Mon Sep 24, 2018 4:25 pm
Forum: Ask the nurse
Topic: Is this the end?
Replies: 2
Views: 855

Re: Is this the end?

Hi Suzyma61, So sorry to hear this. Have you been able to have a discussion with his care team about what might be going on? You mention antibiotics, does he currently have an infection and is it within the stent or elsewhere? Have they tested his blood and electrolyte levels to ensure they are ok? ...
by PCUK Nurse Jeni
Thu Sep 20, 2018 5:04 pm
Forum: General chat
Topic: Time
Replies: 30
Views: 7181

Re: Time

Hello Fairy, Sorry to hear about your mum, and that she has had a fall - just wondering, did you call the ambulance when she fell to make sure she was ok? Has she complained at all since then, or is there any obvious injury? Has the gp checked her over or not? You mention the tummy feeling tight - d...
by PCUK Nurse Jeni
Tue Aug 07, 2018 4:15 pm
Forum: Treatment & side effects
Topic: Severe distention and tightness
Replies: 18
Views: 3721

Re: Severe distention and tightness

Hi Michaela, I assume you are taking creon for your digestion? If so, what dose are you taking? Its possible that you are not taking enough, and this might be contributing to the issue. Do email us - details below. Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Pancre...
by PCUK Nurse Jeni
Tue Aug 07, 2018 4:11 pm
Forum: Family, friends and carers
Topic: Can not believe I’m here again
Replies: 9
Views: 2727

Re: Can not believe I’m here again

Hello Staystrong, I am so sorry to learn that your dad passed away so quickly after his diagnosis. Our thoughts go to you and your family - and our condolences to you all from all of the nurses on here, myself, Dianne and Rachel. I think Kerry has a point about going back to work so soon - aware tha...
by PCUK Nurse Jeni
Tue Aug 07, 2018 3:47 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 9139

Re: Battling to get treament

Hi Toodotty, Sorry to hear all of this. The reason you would have had all the work up is that they will follow a neutropaenic sepsis protocol until proven otherwise - its the same across the country. Because you are on chemotherapy, it is something which needs to be acted upon quickly - so, antibiot...
by PCUK Nurse Jeni
Tue Aug 07, 2018 3:34 pm
Forum: Ask the nurse
Topic: Patient View
Replies: 2
Views: 1313

Re: Patient View

Hi Toodotty, No we have not heard of this, actually, but it sounds really good. It looks like it was first set up for Kidney Transplant patients, but seems it is branching out. The local unit has to have the Patient View facility as far as I can make out - I haven't delved into it in depth, but have...
by PCUK Nurse Jeni
Thu Aug 02, 2018 4:52 pm
Forum: General chat
Topic: Fundraising for treatment - any advice
Replies: 6
Views: 1679

Re: Fundraising for treatment - any advice

Hi there,

Perhaps email our fundraising team, and they may be able to help you?

The details are: fundraise@pancreaticcancer.org.uk

Kind regards,

Jeni

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707
by PCUK Nurse Jeni
Thu Aug 02, 2018 4:50 pm
Forum: Patient Experience Forum
Topic: Just my story....Michaela1.x
Replies: 19
Views: 3616

Re: Just my story....Michaela1.x

Hi Michaela, Sounds as though you need more creon also - certainly double the 40,000 dose, and more for the crisp snacks - at least 20,000. You are welcome to call us or email us if you want more advice on creon. Details below. Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Suppor...
by PCUK Nurse Jeni
Wed Aug 01, 2018 4:45 pm
Forum: Family, friends and carers
Topic: Sadness
Replies: 11
Views: 3065

Re: Sadness

Hello Kerry, I am also so pleased to hear that your dad has got a place at the hospice - and you are right, they are peaceful and happy places and not in the slightest bit rushed. He will be so well cared for there. Also great to hear that you might be able to access some support via the hospice you...
by PCUK Nurse Jeni
Wed Aug 01, 2018 4:37 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 50
Views: 13273

Re: This cruel disease

Hello Keith, Thanks for posting this absolutely fantastic news! I am so happy for your daughter, and yourself, and the family - you have been amazing going through this together. This really is a fantastic result - after 3 months of chemo! lets hope the next 3 cycles will make a good fist of the rem...
by PCUK Nurse Jeni
Wed Aug 01, 2018 4:31 pm
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 36
Views: 8016

Re: Nano knife for Stage IV PC.

Hi timefortiffin, And, thanks all for the posts. I wasn't sure, timefortiffin, whether your relative has already had the Whipples and now has local recurrence or not? Or, what did you mean by local recurrence? You are welcome to drop us an email to explain a bit more if that's OK, and hopefully, we ...
by PCUK Nurse Jeni
Thu Jul 26, 2018 12:16 pm
Forum: Family, friends and carers
Topic: Sadness
Replies: 11
Views: 3065

Re: Sadness

Hello Kerry, I am so sorry to read your post and the news about your dad. Certainly, it is very difficult to watch your dad going downhill, and no doubt, your desire is for him not to suffer in a protracted way. It has not been easy for your dad, reading your post, with all the complications also, a...
by PCUK Nurse Jeni
Thu Jul 26, 2018 12:04 pm
Forum: Family, friends and carers
Topic: What happens now?
Replies: 7
Views: 2074

Re: What happens now?

Hello Mrshappy, Thanks for your post, and thanks Veema for suggesting a call/email. I also agree with veema - Folfirinox is extremely toxic and difficult to tolerate. It is an aggressive regime, and can cause neutropaenic sepsis frequently - I think he should have some time off to recover from these...
by PCUK Nurse Jeni
Thu Jul 26, 2018 11:55 am
Forum: General chat
Topic: Time
Replies: 30
Views: 7181

Re: Time

Hello fairy, Thank you for your post, and sorry that you have ended up on this forum and that your family has been affected by pancreatic cancer. I am sorry to hear how difficult things are right now. Can I ask, do you know what chemo your mum has had? And has she had a second opinion from another o...
by PCUK Nurse Jeni
Thu Jul 12, 2018 4:58 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 9139

Re: Battling to get treament

Hello Toodotty and Kate, Firstly Kate, the footy was sad for England, but they have done themselves and the whole country proud! They gave us all a wonderful and entertaining time, and I am sure for some of you folks on here, something else to focus on, albeit, momentarily. Toodotty, your gp sounds ...

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