Search found 1032 matches

by PCUK Nurse Jeni
Tue Jan 22, 2019 4:37 pm
Forum: Ask the nurse
Topic: Extreme Exhaustion
Replies: 1
Views: 103

Re: Extreme Exhaustion

Hi Vickif, Thank you for your post, and sorry that you have found yourself on these forums. I am sorry to hear that your husband was diagnosed with pancreatic cancer on his birthday - no time is a good time to get this diagnosis, but it seems particularly cruel for this to have happened on his birth...
by PCUK Nurse Jeni
Tue Jan 22, 2019 4:23 pm
Forum: Family, friends and carers
Topic: Does it get easier?
Replies: 1
Views: 18

Re: Does it get easier?

Hello ash, Welcome to the forum, and I am sorry that such sad circumstances have brought you to this site. I am sorry to hear about your dad and the issues he has been struggling with since the diagnosis of pancreatic cancer. You do seem to have a lot on your plate along with studying for your final...
by PCUK Nurse Jeni
Sun Jan 20, 2019 3:34 am
Forum: Ask the nurse
Topic: pancreatic cancer
Replies: 1
Views: 578

Re: pancreatic cancer

Hi there, Welcome to the forums, but of course, not a place you wish to be. I am so sorry to hear about your husband - can I ask, is he being regularly followed up by anyone at all? Oncologist? Gp? Is he on any treatment, such as chemotherapy? Has he had a scan to confirm the presence of the fluid? ...
by PCUK Nurse Jeni
Wed Jan 09, 2019 4:22 pm
Forum: General chat
Topic: Waterproof cover for PICC line?
Replies: 4
Views: 705

Re: Waterproof cover for PICC line?

Hi there, There are several products if you google them, however this one comes recommended by others who have had PICC lines inserted: https://www.amazon.co.uk/gp/product/B005ATZB1O/ref=oh_aui_detailpage_o05_s00?ie=UTF8&psc=1 Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Support...
by PCUK Nurse Jeni
Wed Jan 09, 2019 4:01 pm
Forum: Patient Experience Forum
Topic: Any information would help
Replies: 4
Views: 1191

Re: Any information would help

Hi Week 20, A few things might be helpful here. - Increase fluid intake - water in particular. This will hydrate the bowel and hopefully, help the movement of the bowel. - Increase natural fibre - fruit, vegetables, wholegrain. A small handful of all bran on your cereal is a really good help to regu...
by PCUK Nurse Jeni
Wed Jan 09, 2019 3:42 pm
Forum: Patient Experience Forum
Topic: CBD oil - experience
Replies: 6
Views: 1569

Re: CBD oil - experience

Hi There week 20, Thanks for your post. Sometimes, things like this can interact with chemotherapy. The best thing to do is to discuss this with your oncologist in order to be sure there is no adverse harm in taking them. They will be best placed to let you know if its OK to continue it with the che...
by PCUK Nurse Jeni
Thu Dec 27, 2018 3:25 pm
Forum: Advanced pancreatic cancer
Topic: My big brother
Replies: 22
Views: 4680

Re: My big brother

Dear Bromsgrove sister, We are so sorry to hear about this sad news - we know how difficult this has been for you all and how devastated you are. On behalf of all the nurses here, we would like to extend our deepest sympathies to you and your family - please know that you are in our thoughts. Kindes...
by PCUK Nurse Jeni
Fri Dec 14, 2018 12:43 pm
Forum: General chat
Topic: First radiotherapy
Replies: 10
Views: 2247

Re: First radiotherapy

Hi again,

This sounds positive.

Hopefully, it will settle down now.

Jeni.
by PCUK Nurse Jeni
Thu Dec 13, 2018 3:28 pm
Forum: General chat
Topic: First radiotherapy
Replies: 10
Views: 2247

Re: First radiotherapy

Hi there, Sorry to hear about this. Did you let the radiotherapy staff know yesterday when he went for his second dose? And if so, what did they say or recommend? Is he on any anti-sickness medication? Is the vomiting settling as the day goes by, or getting worse? Is he still able to tolerate fluids...
by PCUK Nurse Jeni
Thu Dec 13, 2018 3:22 pm
Forum: Treatment & side effects
Topic: Overnight Hypo
Replies: 3
Views: 1300

Re: Overnight Hypo

Hi Petal, Thank you for your post. No, it wont be the Creon which is causing this - Creon helps more food to be digested and absorbed, so this wont cause low blood sugar levels. Are you also taking good doses of Creon throughout the day? I note you mentioned the evening dose above - what about other...
by PCUK Nurse Jeni
Thu Dec 13, 2018 3:12 pm
Forum: Advanced pancreatic cancer
Topic: My big brother
Replies: 22
Views: 4680

Re: My big brother

Hi there, Thanks for your posts and all the replies also. In the UK, they will do chemo once the bilirubin levels get to approx 35 or lower. So long as the bilirubin levels are on the way down, that's all that matters, and this might take a few days. Clearly, the higher the bilirubin levels are to s...
by PCUK Nurse Jeni
Fri Nov 30, 2018 1:01 pm
Forum: Treatment & side effects
Topic: Begining radiation therapy and chemo
Replies: 6
Views: 1553

Re: Begining radiation therapy and chemo

Hi there, Thanks for the further information. A few things to consider here - has he ever had Difflam mouthwash? This is very good and also has an anaesthetic element, so helps with pain. This is available on prescription from the gp, so please do ask about this. If the thrush is not being relieved ...
by PCUK Nurse Jeni
Fri Nov 30, 2018 12:51 pm
Forum: General chat
Topic: Sign the petition
Replies: 12
Views: 2419

Re: Sign the petition

Hi Dg, Trying to find out for you regarding non-electronic signatures. Thanks for asking. And thanks to everyone for signing, and to Erika for all her hard work. Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurse@pancreaticcancer.org.uk support line: 0...
by PCUK Nurse Jeni
Fri Nov 02, 2018 1:46 pm
Forum: General chat
Topic: Feeling morbid!
Replies: 11
Views: 2402

Re: Feeling morbid!

Hi Michaela, Thanks for your honest post - I am sorry to hear that you are feeling this way, and feeling quite low. Michaela, you would not be alone in these thoughts - we do speak to folk quite often who feel like they have "hit a wall", so to speak. Its not uncommon at all when you are going throu...
by PCUK Nurse Jeni
Wed Oct 31, 2018 3:21 pm
Forum: General chat
Topic: Despairing
Replies: 3
Views: 1449

Re: Despairing

Hello Cazzza, Thank you for your post on the forums. I am so sorry to hear that you lost your husband to pancreatic cancer. It can be very difficult to handle the speed at which pancreatic cancer can take someones life - this would not be an unique situation, unfortunately, and we do speak to other ...

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