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by PCUK Nurse Jeni
Fri Mar 22, 2019 4:48 pm
Forum: Patient Experience Forum
Topic: Result worries
Replies: 10
Views: 1442

Re: Result worries

Hi Mohammad, Its likely that the consultant who gave you the results is aware of the EUS request, so if he has stated that it is not necessary, then that's probably the case. Good news that the issues have come back as a cyst - just ensure that you find out what follow up you need now. Kind regards,...
by PCUK Nurse Jeni
Fri Mar 08, 2019 2:19 pm
Forum: Patient Experience Forum
Topic: Result worries
Replies: 10
Views: 1442

Re: Result worries

Hi Mohammad, Just to let you know that I have deleted your other post as it is a duplicate of the above, and both threads had responses. We can consolidate the responses to this thread. I trust this is satisfactory? Kind regards, Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Pancreatic ...
by PCUK Nurse Jeni
Thu Mar 07, 2019 3:28 pm
Forum: Patient Experience Forum
Topic: Some general advice please.
Replies: 1
Views: 415

Re: Some general advice please.

Hello Paul, Many thanks for your post and welcome to the forums, no doubt not a place you thought you would find yourself. Paul, I will email you directly with some information. Kind regards, Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurse@pancreaticcance...
by PCUK Nurse Jeni
Thu Mar 07, 2019 3:19 pm
Forum: Patient Experience Forum
Topic: Result worries
Replies: 10
Views: 1442

Re: Result worries

Hello Mohammad, I would like to welcome you to the forum, however, realise its not a place anyone wants to be. I am very sorry to hear what you have been going through recently, and the waiting for results must be an anxious time for you. Mohammad, I wonder if you have a telephone number for a clini...
by PCUK Nurse Jeni
Wed Feb 27, 2019 4:33 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 90
Views: 38787

Re: This cruel disease

Dear Keith, Your response is most humbling, and of course, it is an honour and privilege to be able to support any of you in a small way. Good to hear things have not been so bad this time around. Keith, has anyone ever considered placing a line for Kerry? Or does she already have one? it would real...
by PCUK Nurse Jeni
Wed Feb 20, 2019 4:00 pm
Forum: Advanced pancreatic cancer
Topic: My Mum
Replies: 15
Views: 2998

Re: My Mum

Hello LST, That's great that there has been some progress in terms of the palliative care services. Hopefully, as you say, the morphine will be helpful. I hope the oncology appointment goes well on Friday LST. I wonder, LST, whether you might be able to see your gp and explain the pressure and exhau...
by PCUK Nurse Jeni
Wed Feb 20, 2019 3:46 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 56
Views: 21354

Re: My mum - Stage 4 PC with liver mets

Hello Janine,

Thanks for sharing this very good news! How fantastic!

And well done to your mum!

Long may this continue.

Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707
by PCUK Nurse Jeni
Tue Feb 19, 2019 4:39 pm
Forum: Advanced pancreatic cancer
Topic: My Mum
Replies: 15
Views: 2998

Re: My Mum

Hi LST, Just wondering how your mum is now? Are the pain levels improved? Please do feel free to contact us - we are all ex-NHS nurses, and can offer specialised advice regarding pain relief and other pancreatic cancer related matters. Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurs...
by PCUK Nurse Jeni
Tue Feb 19, 2019 4:35 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 90
Views: 38787

Re: This cruel disease

Hello Keith and also, Theresa, Great to hear the updates, as well as the challenges. Keith, it must be hard when both you and your wife work at the same hospital where Kerry is being treated - it must seem hard to get a "respite", so to speak, not that you want this more than likely, but you will ap...
by PCUK Nurse Jeni
Tue Feb 19, 2019 4:14 pm
Forum: General chat
Topic: New to this
Replies: 2
Views: 1030

Re: New to this

Hi there, Thank you for your post, and you are welcome to the forums, although understandably, not a place of your choosing. I am so sorry to hear that your life has been affected by pancreatic cancer and that your husband has been diagnosed. Has your husband had a biopsy yet in order to find out th...
by PCUK Nurse Jeni
Tue Feb 19, 2019 3:42 pm
Forum: Coping with loss/ Memorial
Topic: Jeff lost his battle
Replies: 3
Views: 1211

Re: Jeff lost his battle

Hello Suzyma, Thank you for sharing the sad news of Jeff's passing. I am so sorry to hear this news - but I want to say thank you for taking the time and having the courage to post Suzyma. Its always a difficult time when a loved one passes away, and it does affect the "forum family" also. I would l...
by PCUK Nurse Jeni
Mon Feb 11, 2019 4:29 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 45
Views: 26640

Re: Concerned husband

Hi Saxon,

I will email you.

KR,

Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707
by PCUK Nurse Jeni
Thu Feb 07, 2019 4:04 pm
Forum: Family, friends and carers
Topic: loosing hope
Replies: 9
Views: 2367

Re: loosing hope

Hello Charlotte, Thank you for sharing your very moving post and speaking so beautifully about your dad and the relationship you have. As others have said, its a very precious relationship, and you are fortunate that you have had the privilege of this. But as Kate said, it comes with a price. I am s...
by PCUK Nurse Jeni
Thu Feb 07, 2019 3:55 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 45
Views: 26640

Re: Concerned husband

Hello saxon, Thanks for the update. A lot has been going on. Just wondering, where is the main pain which your wife is suffering from? And what medication is she on currently to help her? If you prefer, you can email us directly, and perhaps we might be able to offer a few suggestions? Kind regards,...
by PCUK Nurse Jeni
Tue Jan 29, 2019 10:31 am
Forum: Family, friends and carers
Topic: Does it get easier?
Replies: 7
Views: 3633

Re: Does it get easier?

Hello All, I just wanted to post a short message of thanks to Erika for her inspiring and insightful words of wisdom on this thread. Truly an encouragement I am sure - and to have such a positive outlook when facing such difficult times, Erika, you are truly amazing. Thank you for all that you have ...

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