Search found 989 matches

by PCUK Nurse Jeni
Fri Jun 15, 2018 2:36 pm
Forum: Family, friends and carers
Topic: The nightmare so far....
Replies: 33
Views: 13918

Re: The nightmare so far....

Hello AndAde, Thank you for posting such good news with regards to Adrian's latest scan results. It really is incredible news! Long may it last - and have a wonderful weekend. Kind regards, Jeni. Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurse@pancreaticcancer.org.u...
by PCUK Nurse Jeni
Fri Jun 15, 2018 2:34 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 36
Views: 8806

Re: Concerned husband

Hello Saxon, Thanks for the update. Sorry to hear things are not great at the moment. Your wife has done amazingly to tolerate the chemo so far - it gets tougher as the cycles go on. I am sure that once that is finished, they will do an updated CT scan. I hope the appointment goes well next week. Pl...
by PCUK Nurse Jeni
Mon Jun 11, 2018 2:15 pm
Forum: Treatment & side effects
Topic: Constipation
Replies: 1
Views: 167

Re: Constipation

Hello Jan, Thanks for your above post - I am wondering if you have been able to sort this out and whether your mum was able to see the gp today? If not, please do not hesitate to contact us - our contact details are in the signature. Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse ...
by PCUK Nurse Jeni
Thu Jun 07, 2018 11:50 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 22
Views: 3253

Re: This cruel disease

Dear Keith, This is really positive news, and its great to hear how well your daughter is tolerating the chemo. I am sure it is reassuring for you all, and as you say, take every positive you get. Wishing your daughter all the best for her future treatments. Kind regards, Jeni. Jeni Jones, Pancreati...
by PCUK Nurse Jeni
Wed Jun 06, 2018 12:14 pm
Forum: Advanced pancreatic cancer
Topic: THE HIDDEN ENEMY
Replies: 9
Views: 1628

Re: THE HIDDEN ENEMY

Hello Jennifer, My name is Jeni, and I am one of the nurses working for the charity. I am aware that my colleague Dianne has previously responded to your post. I am very sorry to hear of these latest events for G and how unwell he has been again. Your story is so heartwarming, and the fact that you ...
by PCUK Nurse Jeni
Fri May 18, 2018 12:41 pm
Forum: Family, friends and carers
Topic: Today was a hard day
Replies: 4
Views: 681

Re: Today was a hard day

Hello Fiona, I am so sorry to hear that your mum has been diagnosed with pancreatic cancer. It is a shock, and waiting for the outcomes on Monday, as to whether she is able to have the stent fitted or not, must be difficult for you all, not least your mum. Hopefully, they have treated some of the sy...
by PCUK Nurse Jeni
Thu Apr 26, 2018 2:37 pm
Forum: Patient Experience Forum
Topic: Feeling frightened
Replies: 2
Views: 1491

Re: Feeling frightened

Hi Sue, Welcome to the forums - a place where nobody wants to end up of course. I am sure that you will get great support on this forum. I am sorry to hear about your husbands diagnosis Sue. I have sent you an email. Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Panc...
by PCUK Nurse Jeni
Wed Apr 25, 2018 3:41 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 36
Views: 8806

Re: Concerned husband

Hello Saxon, That's good news to hear that your wife is to carry on with the folfirinox. It seems sensible to carry on if she is clinically improving and that the tumour markers are reducing - it indicates there is a response, which is good. Not sure what the drugs might be - do you have a name at a...
by PCUK Nurse Jeni
Fri Apr 20, 2018 4:09 pm
Forum: Family, friends and carers
Topic: Diet help and advice
Replies: 16
Views: 2371

Re: Diet help and advice

Hi Elle, So sorry to hear this, but its wonderful that your dad is in a hospice - they are kind and caring places. I hope the weekend is not to bad for you all. Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Pancreatic Cancer UK Support Service Ph: 0808 801 0707 (10-4 Monday to Fr...
by PCUK Nurse Jeni
Tue Apr 17, 2018 4:06 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 36
Views: 8806

Re: Concerned husband

Hello Saxon,

Apologies for the late response.

Do you know the name of the chemotherapy drugs at all?

Kind regards,

Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707
by PCUK Nurse Jeni
Tue Apr 17, 2018 3:34 pm
Forum: Family, friends and carers
Topic: Help please - what to ask the doctors
Replies: 4
Views: 1115

Re: Help please - what to ask the doctors

Hello Mrshappy, Thank you for your post on the forums, and welcome to the forums, although, understandably, not a place which you might like to be. I am sorry to hear that your dad has recently been diagnosed with pancreatic cancer. By now, you will have had the appointment with your dad's team - I ...
by PCUK Nurse Jeni
Tue Apr 17, 2018 3:11 pm
Forum: Advanced pancreatic cancer
Topic: Pancreatic Cancer Timeline - 2018
Replies: 3
Views: 1232

Re: Pancreatic Cancer Timeline - 2018

Hello Hyperfocus, Thank you for your courage and bravery in posting your dad's story on the forum. I would like to extend our sincere condolences to you and your family at this tragic time - we are sorry for your loss. It is heartbreaking to hear your dad's story, but the way you have written this o...
by PCUK Nurse Jeni
Tue Apr 17, 2018 2:52 pm
Forum: Patient Experience Forum
Topic: 46 Year old dad with pancreatic cyst
Replies: 2
Views: 937

Re: 46 Year old dad with pancreatic cyst

Hello Robert, This sounds like a sensible next step, and during the EUS, they will take a biopsy or some tissue or fluid in order to determine what the make up of the cyst is. Its difficult when you are in the process of investigation, of course, but it would be wise to wait and see what the results...
by PCUK Nurse Jeni
Tue Apr 17, 2018 12:46 pm
Forum: Family, friends and carers
Topic: pnet husband having surgery soon
Replies: 3
Views: 888

Re: pnet husband having surgery soon

Hi Tessa, Thank you for your post. I am sorry to hear that your husband has been diagnosed with a Neuro Endocrine tumour. As you say, a lot of learning to take on board and a new area to gain information about. Tessa, I wonder whether you have been in touch with the NET foundation at all? https://ww...
by PCUK Nurse Jeni
Fri Apr 06, 2018 3:47 pm
Forum: Patient Experience Forum
Topic: Help !!!
Replies: 3
Views: 1194

Re: Help !!!

Hi Robert,

This is great news - this is all very positive.

You know where we are should you need us.

Have a lovely weekend.

Kind regards,

Jeni.
Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707

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