Search found 1030 matches

by PCUK Nurse Jeni
Wed Jan 09, 2019 4:22 pm
Forum: General chat
Topic: Waterproof cover for PICC line?
Replies: 3
Views: 479

Re: Waterproof cover for PICC line?

Hi there, There are several products if you google them, however this one comes recommended by others who have had PICC lines inserted: https://www.amazon.co.uk/gp/product/B005ATZB1O/ref=oh_aui_detailpage_o05_s00?ie=UTF8&psc=1 Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Support...
by PCUK Nurse Jeni
Wed Jan 09, 2019 4:17 pm
Forum: Ask the nurse
Topic: pancreatic cancer
Replies: 1
Views: 386

Re: pancreatic cancer

Hi there, Welcome to the forums, but of course, not a place you wish to be. I am so sorry to hear about your husband - can I ask, is he being regularly followed up by anyone at all? Oncologist? Gp? Is he on any treatment, such as chemotherapy? Has he had a scan to confirm the presence of the fluid? ...
by PCUK Nurse Jeni
Wed Jan 09, 2019 4:01 pm
Forum: Patient Experience Forum
Topic: Any information would help
Replies: 4
Views: 941

Re: Any information would help

Hi Week 20, A few things might be helpful here. - Increase fluid intake - water in particular. This will hydrate the bowel and hopefully, help the movement of the bowel. - Increase natural fibre - fruit, vegetables, wholegrain. A small handful of all bran on your cereal is a really good help to regu...
by PCUK Nurse Jeni
Wed Jan 09, 2019 3:42 pm
Forum: Patient Experience Forum
Topic: CBD oil - experience
Replies: 6
Views: 1363

Re: CBD oil - experience

Hi There week 20, Thanks for your post. Sometimes, things like this can interact with chemotherapy. The best thing to do is to discuss this with your oncologist in order to be sure there is no adverse harm in taking them. They will be best placed to let you know if its OK to continue it with the che...
by PCUK Nurse Jeni
Thu Dec 27, 2018 3:25 pm
Forum: Advanced pancreatic cancer
Topic: My big brother
Replies: 22
Views: 4264

Re: My big brother

Dear Bromsgrove sister, We are so sorry to hear about this sad news - we know how difficult this has been for you all and how devastated you are. On behalf of all the nurses here, we would like to extend our deepest sympathies to you and your family - please know that you are in our thoughts. Kindes...
by PCUK Nurse Jeni
Fri Dec 14, 2018 12:43 pm
Forum: General chat
Topic: First radiotherapy
Replies: 10
Views: 2034

Re: First radiotherapy

Hi again,

This sounds positive.

Hopefully, it will settle down now.

Jeni.
by PCUK Nurse Jeni
Thu Dec 13, 2018 3:28 pm
Forum: General chat
Topic: First radiotherapy
Replies: 10
Views: 2034

Re: First radiotherapy

Hi there, Sorry to hear about this. Did you let the radiotherapy staff know yesterday when he went for his second dose? And if so, what did they say or recommend? Is he on any anti-sickness medication? Is the vomiting settling as the day goes by, or getting worse? Is he still able to tolerate fluids...
by PCUK Nurse Jeni
Thu Dec 13, 2018 3:22 pm
Forum: Treatment & side effects
Topic: Overnight Hypo
Replies: 3
Views: 1204

Re: Overnight Hypo

Hi Petal, Thank you for your post. No, it wont be the Creon which is causing this - Creon helps more food to be digested and absorbed, so this wont cause low blood sugar levels. Are you also taking good doses of Creon throughout the day? I note you mentioned the evening dose above - what about other...
by PCUK Nurse Jeni
Thu Dec 13, 2018 3:12 pm
Forum: Advanced pancreatic cancer
Topic: My big brother
Replies: 22
Views: 4264

Re: My big brother

Hi there, Thanks for your posts and all the replies also. In the UK, they will do chemo once the bilirubin levels get to approx 35 or lower. So long as the bilirubin levels are on the way down, that's all that matters, and this might take a few days. Clearly, the higher the bilirubin levels are to s...
by PCUK Nurse Jeni
Fri Nov 30, 2018 1:01 pm
Forum: Treatment & side effects
Topic: Begining radiation therapy and chemo
Replies: 5
Views: 1202

Re: Begining radiation therapy and chemo

Hi there, Thanks for the further information. A few things to consider here - has he ever had Difflam mouthwash? This is very good and also has an anaesthetic element, so helps with pain. This is available on prescription from the gp, so please do ask about this. If the thrush is not being relieved ...
by PCUK Nurse Jeni
Fri Nov 30, 2018 12:51 pm
Forum: General chat
Topic: Sign the petition
Replies: 12
Views: 2219

Re: Sign the petition

Hi Dg, Trying to find out for you regarding non-electronic signatures. Thanks for asking. And thanks to everyone for signing, and to Erika for all her hard work. Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurse@pancreaticcancer.org.uk support line: 0...
by PCUK Nurse Jeni
Fri Nov 02, 2018 1:46 pm
Forum: General chat
Topic: Feeling morbid!
Replies: 11
Views: 2240

Re: Feeling morbid!

Hi Michaela, Thanks for your honest post - I am sorry to hear that you are feeling this way, and feeling quite low. Michaela, you would not be alone in these thoughts - we do speak to folk quite often who feel like they have "hit a wall", so to speak. Its not uncommon at all when you are going throu...
by PCUK Nurse Jeni
Wed Oct 31, 2018 3:21 pm
Forum: General chat
Topic: Despairing
Replies: 3
Views: 1369

Re: Despairing

Hello Cazzza, Thank you for your post on the forums. I am so sorry to hear that you lost your husband to pancreatic cancer. It can be very difficult to handle the speed at which pancreatic cancer can take someones life - this would not be an unique situation, unfortunately, and we do speak to other ...
by PCUK Nurse Jeni
Wed Oct 31, 2018 3:05 pm
Forum: Family, friends and carers
Topic: My Mom’s journey - advice appreciated
Replies: 7
Views: 2975

Re: My Mom’s journey - advice appreciated

Hi there Jmorphy, Apologies for the delay in replying to your post due to staff shortages. Has there been any decision made concerning your mum and inserting a duodenal stent or having bypass surgery? How is your mum doing now? Is she still vomiting? You can read some more about bypass surgery here:...
by PCUK Nurse Jeni
Mon Sep 24, 2018 4:25 pm
Forum: Ask the nurse
Topic: Is this the end?
Replies: 2
Views: 1856

Re: Is this the end?

Hi Suzyma61, So sorry to hear this. Have you been able to have a discussion with his care team about what might be going on? You mention antibiotics, does he currently have an infection and is it within the stent or elsewhere? Have they tested his blood and electrolyte levels to ensure they are ok? ...

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