Search found 1002 matches

by PCUK Nurse Jeni
Thu Jul 12, 2018 3:58 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 25
Views: 2021

Re: Battling to get treament

Hello Toodotty and Kate, Firstly Kate, the footy was sad for England, but they have done themselves and the whole country proud! They gave us all a wonderful and entertaining time, and I am sure for some of you folks on here, something else to focus on, albeit, momentarily. Toodotty, your gp sounds ...
by PCUK Nurse Jeni
Thu Jul 05, 2018 3:13 pm
Forum: General chat
Topic: Potential PC diagnosis
Replies: 1
Views: 352

Re: Potential PC diagnosis

Hello Pippin, Thank you for your post. I am sorry to hear that you have been experiencing some health issues for a few weeks now. I can understand your concerns surrounding some of your symptoms. I wonder Pippin, if you might wish to give us a quick call tomorrow (Friday 6th July) so that we can spe...
by PCUK Nurse Jeni
Thu Jul 05, 2018 3:05 pm
Forum: Family, friends and carers
Topic: My Mum's PC Diagnosis
Replies: 9
Views: 699

Re: My Mum's PC Diagnosis

Hello H, The reason the chemo is the way round that it is, is that you cannot have Gem/Abraxane as second line treatment on the NHS presently, so if Folfirinox was not working, your mum would have no otpions left available, other than Gemcitabine, which has not had the same outcomes in clinical tria...
by PCUK Nurse Jeni
Mon Jul 02, 2018 12:49 pm
Forum: Family, friends and carers
Topic: My Mum's PC Diagnosis
Replies: 9
Views: 699

Re: My Mum's PC Diagnosis

Hello HT959, Thank you for your forum post, and although no one wants to be on here, may I just say welcome to the forums, and i hope you will find it a place of support. I am so sorry to read of your mum's diagnosis and the story so far, and the challenges you have all had to encounter. Its difficu...
by PCUK Nurse Jeni
Mon Jul 02, 2018 11:55 am
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 25
Views: 2021

Re: Battling to get treament

Hello Toodotty and Kate2101, Thank you both for such positive & inspiring posts over the weekend. You both seem to be just "getting on with things", so to speak, and being able to share stories, and support one another is lovely. I wish you both the very best in ongoing treatment. Kind regards, Jeni...
by PCUK Nurse Jeni
Mon Jul 02, 2018 11:43 am
Forum: Family, friends and carers
Topic: Mum Diagnosis
Replies: 13
Views: 1320

Re: Mum Diagnosis

Hello Margie and HT959, Thank you both for your posts. Margie, I am sorry to hear this news that your mum has not been offered any treatment - it is such a shock especially when you go there prepared for some option to help your mum. Do you know why they have not offered any treatment? Did they say ...
by PCUK Nurse Jeni
Fri Jun 29, 2018 10:21 am
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 25
Views: 2021

Re: Battling to get treament

Hello Kate2101, Thank you for your post, and welcome to the forums. I am so sorry to hear that you have recently been diagnosed with pancreatic cancer - it is such a difficult diagnosis especially as you have been fit and had been enjoying making plans for your future. It is a common theme that we e...
by PCUK Nurse Jeni
Thu Jun 28, 2018 3:24 pm
Forum: General chat
Topic: Advice - Undiagnosed (but with Mesenteric Adenitis)
Replies: 1
Views: 751

Re: Advice - Undiagnosed (but with Mesenteric Adenitis)

Hi there, Thanks for your post. Sorry to hear that you are suffering from some symptoms of late, but its very reassuring to hear that you have had a clear CT scan - this is a very accurate investigation. It sounds like some of your symptoms may be related to the mesenteric adenitis - have you been b...
by PCUK Nurse Jeni
Wed Jun 27, 2018 2:39 pm
Forum: Family, friends and carers
Topic: Dad's PC journey so far.... advice appreciated...
Replies: 1
Views: 393

Re: Dad's PC journey so far.... advice appreciated...

Hi Jenny,

I will email you directly.

KR,

Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707
by PCUK Nurse Jeni
Wed Jun 27, 2018 2:24 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 25
Views: 4256

Re: This cruel disease

Dear Keith, Thank you for your beautiful post, so heartfelt and touching. Sharing your special cuddle with your daughter was a very generous thing to do - it really is those "small moments of joy" which make all the difference. May there be many more Keith. Best Wishes, Jeni. Jeni Jones Pancreatic C...
by PCUK Nurse Jeni
Wed Jun 27, 2018 2:20 pm
Forum: General chat
Topic: advice
Replies: 16
Views: 12331

Re: advice

Hello Seth, Welcome to the forums. I am sorry to hear that you are experiencing some symptoms at present, which you equate to those of a previous poster. How long have you been having symptoms Seth? And have you been to your gp about this? Have you been given any treatment at all? Please do feel fre...
by PCUK Nurse Jeni
Tue Jun 26, 2018 11:25 am
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 40
Views: 10228

Re: Concerned husband

Hello Saxon, Thanks for your query. It is very much dependant on the severity of the issue in the first place - for example, if it was only present when handling something cold, then its less severe. However, if it was present all of the time, even when not touching anything cold, this is more sever...
by PCUK Nurse Jeni
Wed Jun 20, 2018 11:36 am
Forum: Ask the nurse
Topic: Creon Shortage
Replies: 4
Views: 700

Re: Creon Shortage

Hello Florence, Thanks for your post concerning the supply of creon. The manufacturers have a statement on their website, which you can find here: http://www.creon.co.uk/ It is hoped that this should be resolved as soon as possible. However, there is a number which you can call for further updates o...
by PCUK Nurse Jeni
Fri Jun 15, 2018 2:36 pm
Forum: Family, friends and carers
Topic: The nightmare so far....
Replies: 33
Views: 14751

Re: The nightmare so far....

Hello AndAde, Thank you for posting such good news with regards to Adrian's latest scan results. It really is incredible news! Long may it last - and have a wonderful weekend. Kind regards, Jeni. Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurse@pancreaticcancer.org.u...
by PCUK Nurse Jeni
Fri Jun 15, 2018 2:34 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 40
Views: 10228

Re: Concerned husband

Hello Saxon, Thanks for the update. Sorry to hear things are not great at the moment. Your wife has done amazingly to tolerate the chemo so far - it gets tougher as the cycles go on. I am sure that once that is finished, they will do an updated CT scan. I hope the appointment goes well next week. Pl...

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