Search found 984 matches

by PCUK Nurse Jeni
Fri May 18, 2018 12:41 pm
Forum: Family, friends and carers
Topic: Today was a hard day
Replies: 4
Views: 419

Re: Today was a hard day

Hello Fiona, I am so sorry to hear that your mum has been diagnosed with pancreatic cancer. It is a shock, and waiting for the outcomes on Monday, as to whether she is able to have the stent fitted or not, must be difficult for you all, not least your mum. Hopefully, they have treated some of the sy...
by PCUK Nurse Jeni
Thu Apr 26, 2018 2:37 pm
Forum: Patient Experience Forum
Topic: Feeling frightened
Replies: 2
Views: 1125

Re: Feeling frightened

Hi Sue, Welcome to the forums - a place where nobody wants to end up of course. I am sure that you will get great support on this forum. I am sorry to hear about your husbands diagnosis Sue. I have sent you an email. Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Panc...
by PCUK Nurse Jeni
Wed Apr 25, 2018 3:41 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 33
Views: 7802

Re: Concerned husband

Hello Saxon, That's good news to hear that your wife is to carry on with the folfirinox. It seems sensible to carry on if she is clinically improving and that the tumour markers are reducing - it indicates there is a response, which is good. Not sure what the drugs might be - do you have a name at a...
by PCUK Nurse Jeni
Fri Apr 20, 2018 4:09 pm
Forum: Family, friends and carers
Topic: Diet help and advice
Replies: 16
Views: 2045

Re: Diet help and advice

Hi Elle, So sorry to hear this, but its wonderful that your dad is in a hospice - they are kind and caring places. I hope the weekend is not to bad for you all. Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Pancreatic Cancer UK Support Service Ph: 0808 801 0707 (10-4 Monday to Fr...
by PCUK Nurse Jeni
Tue Apr 17, 2018 4:06 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 33
Views: 7802

Re: Concerned husband

Hello Saxon,

Apologies for the late response.

Do you know the name of the chemotherapy drugs at all?

Kind regards,

Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707
by PCUK Nurse Jeni
Tue Apr 17, 2018 3:34 pm
Forum: Family, friends and carers
Topic: Help please - what to ask the doctors
Replies: 4
Views: 943

Re: Help please - what to ask the doctors

Hello Mrshappy, Thank you for your post on the forums, and welcome to the forums, although, understandably, not a place which you might like to be. I am sorry to hear that your dad has recently been diagnosed with pancreatic cancer. By now, you will have had the appointment with your dad's team - I ...
by PCUK Nurse Jeni
Tue Apr 17, 2018 3:11 pm
Forum: Advanced pancreatic cancer
Topic: Pancreatic Cancer Timeline - 2018
Replies: 3
Views: 1035

Re: Pancreatic Cancer Timeline - 2018

Hello Hyperfocus, Thank you for your courage and bravery in posting your dad's story on the forum. I would like to extend our sincere condolences to you and your family at this tragic time - we are sorry for your loss. It is heartbreaking to hear your dad's story, but the way you have written this o...
by PCUK Nurse Jeni
Tue Apr 17, 2018 2:52 pm
Forum: Patient Experience Forum
Topic: 46 Year old dad with pancreatic cyst
Replies: 2
Views: 806

Re: 46 Year old dad with pancreatic cyst

Hello Robert, This sounds like a sensible next step, and during the EUS, they will take a biopsy or some tissue or fluid in order to determine what the make up of the cyst is. Its difficult when you are in the process of investigation, of course, but it would be wise to wait and see what the results...
by PCUK Nurse Jeni
Tue Apr 17, 2018 12:46 pm
Forum: Family, friends and carers
Topic: pnet husband having surgery soon
Replies: 3
Views: 694

Re: pnet husband having surgery soon

Hi Tessa, Thank you for your post. I am sorry to hear that your husband has been diagnosed with a Neuro Endocrine tumour. As you say, a lot of learning to take on board and a new area to gain information about. Tessa, I wonder whether you have been in touch with the NET foundation at all? https://ww...
by PCUK Nurse Jeni
Fri Apr 06, 2018 3:47 pm
Forum: Patient Experience Forum
Topic: Help !!!
Replies: 3
Views: 1056

Re: Help !!!

Hi Robert,

This is great news - this is all very positive.

You know where we are should you need us.

Have a lovely weekend.

Kind regards,

Jeni.
Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707
by PCUK Nurse Jeni
Thu Apr 05, 2018 11:57 am
Forum: Patient Experience Forum
Topic: Help !!!
Replies: 3
Views: 1056

Re: Help !!!

Hi Robert, Thank you for your post, and welcome to the forum - although I am sure that you would rather not be here. I am sure that its a worrying time for you right now - I hope its OK, but I will e mail you directly. Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Pa...
by PCUK Nurse Jeni
Wed Mar 14, 2018 3:27 pm
Forum: Advanced pancreatic cancer
Topic: Don't know what to do next
Replies: 1
Views: 1597

Re: Don't know what to do next

Hello Rjohns, Thank you for your post. I am sorry to hear that you are experiencing some concerns over your health at this time. Please do feel free to touch base with us at the phone number in the email signature below. Just for your reassurance, a CT scan is the most routine investigation to detec...
by PCUK Nurse Jeni
Fri Feb 16, 2018 1:01 pm
Forum: Treatment & side effects
Topic: My 84 Year old mother finally diagnosed with PC...
Replies: 3
Views: 2341

Re: My 84 Year old mother finally diagnosed with PC...

Hi Michelle, I have checked this with one of our Medical Advisory Board consultants and at present there is no strong evidence base for its use, and certainly not without chemotherapy. Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurse@pa...
by PCUK Nurse Jeni
Fri Feb 16, 2018 12:57 pm
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 14867

Re: Don’t know where to start

Hi Christine, GemCap - the tablet chemo is usually for 21 days - please do clarify at the chemo unit for her though. she would need to follow her prescription, rather than the packet insert - this should also be clear on the patient information leaflet. Great that you have recapped on the side effec...
by PCUK Nurse Jeni
Thu Feb 15, 2018 5:02 pm
Forum: Treatment & side effects
Topic: My 84 Year old mother finally diagnosed with PC...
Replies: 3
Views: 2341

Re: My 84 Year old mother finally diagnosed with PC...

Hi Michelle, Thanks for your post and welcome to the forums. Its not the place anyone wishes to find themselves, but you have already seen that it is hugely supportive, and I am sure this will help you also. The options you mention above in terms of the first one - which would commonly be referred t...

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