Search found 11 matches

by The_petal
Wed Dec 12, 2018 1:04 pm
Forum: Treatment & side effects
Topic: Overnight Hypo
Replies: 3
Views: 226

Re: Overnight Hypo

I have had my pancreas (and spleen and gall bladder) removed and hence now have induced diabetes ~ hence the constant blood sugar monitoring.
by The_petal
Tue Dec 11, 2018 8:06 am
Forum: Treatment & side effects
Topic: Overnight Hypo
Replies: 3
Views: 226

Overnight Hypo

Last night at 10.00 my blood sugar was 8.4 but I thought to be on the safe side I would have 2 small slices of malt loaf and a small milky coffee, but in the morning at 7.00 my blood sugar was 2.8 ! Recently I have increased my Creon to 6*25000 for my evening meal due to experiencing diarrhea and ex...
by The_petal
Fri Dec 07, 2018 1:23 pm
Forum: Ask the nurse
Topic: Conflicting advice/medicine
Replies: 3
Views: 567

Re: Conflicting advice/medicine

Many thanks for the DM
by The_petal
Sat Dec 01, 2018 9:20 am
Forum: Ask the nurse
Topic: Conflicting advice/medicine
Replies: 3
Views: 567

Conflicting advice/medicine

Like most here I have a well stocked medicine cupboard and am taking a large number of different medicines and I am not always sure that they are compatable! I am on Folfirinox ( 3 infusions so far, every 2 weeks) and in addition to the usual meds I am having daily blood thinning injections of Tinza...
by The_petal
Thu Nov 08, 2018 10:01 am
Forum: Patient Experience Forum
Topic: Just started Folfirinox
Replies: 16
Views: 3831

Re: Just started Folfirinox

Well my count was 2.89 on Tuesday so had my 2 course on Wednesday, went reasonably well although I did feel a bit nauseous afterwards ~ and my sugar levels are well up. Because of my concerns with my hair loss I had a cool cap on whilst I was being infused ~ judging by all the faffing around I got t...
by The_petal
Fri Nov 02, 2018 6:07 pm
Forum: Patient Experience Forum
Topic: Just started Folfirinox
Replies: 16
Views: 3831

Re: Just started Folfirinox

More bad news as my treatment has been delayed again due to a low neutrophil count of 1.1 rather than the 1.5 they want!

The only 'good' point was that I discovered that when it was delayed before my count was 0.35 so at least they have increased over the last week.
by The_petal
Sun Oct 28, 2018 8:19 am
Forum: Patient Experience Forum
Topic: Just started Folfirinox
Replies: 16
Views: 3831

Re: Just started Folfirinox

My reaction to the first session was not as bad as I had first expected so that went well.

However had my bloods checked and my cell count was low so my 2nd session has been delayed for a week which is a bit of a bummer.
by The_petal
Wed Oct 24, 2018 6:13 pm
Forum: Patient Experience Forum
Topic: Just started Folfirinox
Replies: 16
Views: 3831

Re: Just started Folfirinox

As an aside, above I meant I dont drink enough fluid!

But

What is the consensus on having a small glass of beer whilst having chemotherapy.
by The_petal
Wed Oct 24, 2018 5:56 pm
Forum: Patient Experience Forum
Topic: Just started Folfirinox
Replies: 16
Views: 3831

Re: Just started Folfirinox

Janey

Funny you should mention the hair loss, it has started after the surgery but before the chemo! I have put it down to the fact that I dont drink enough.
by The_petal
Sat Oct 20, 2018 8:06 am
Forum: Patient Experience Forum
Topic: Just started Folfirinox
Replies: 16
Views: 3831

Re: Just started Folfirinox

Thanks, my other problem is that I just don't feel hungry!
by The_petal
Thu Oct 18, 2018 1:54 pm
Forum: Patient Experience Forum
Topic: Just started Folfirinox
Replies: 16
Views: 3831

Just started Folfirinox

I have just started Folfirinox (post whipple so no pancreas or spleen) so far it hasn't been too bad but I know the affects will ramp up as I go through the course (12 over 6 months). The problem I have is trying to keep my blood sugar levels within bounds, I only had a boiled egg and a slice of toa...

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