Search found 19 matches

by Dee123
Thu Feb 14, 2019 11:11 pm
Forum: General chat
Topic: Sign the petition
Replies: 15
Views: 3463

Re: Sign the petition

Please sign this petition if you haven't already, for Erika xx
by Dee123
Thu Feb 14, 2019 10:22 pm
Forum: Advanced pancreatic cancer
Topic: RIP Erika xxx
Replies: 7
Views: 438

Re: RIP Erika xxx

This is such sad news. Erika was a huge inspiration to me, my mum and I am sure everyone that she has met or who have read her posts. Every single one of her messages were positive and full of hope. She had such good advice which my mum has followed in her fight against PC. I always shared her posts...
by Dee123
Mon Feb 11, 2019 7:50 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 49
Views: 18057

Re: My mum - Stage 4 PC with liver mets

Hi all, Just a quick update on my Mum's CT scan results today after the end of her Gemcitabine and Abraxane chemotherapy. The pancreas tumour and liver mets have not changed since they reduced in the last scan, so this is good news. However her lymph nodes have now been mentioned for the first time....
by Dee123
Sun Dec 23, 2018 2:47 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 77
Views: 32630

Re: This cruel disease

Hi Keith, sounds like mixed results from the scan but overall good news that she is in good health with a healthy appetite and leading a normal life. We have been told that my mum can continue on the same chemo indefinitely but we will see what happens. She is hoping to be offered a break next month...
by Dee123
Wed Dec 19, 2018 7:17 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 49
Views: 18057

Re: My mum - Stage 4 PC with liver mets

Good luck Kate with your treatment! Looking forward to hearing about it! My mum had her usual blood test before chemo today and they said that her tumour markers are the lowest they have been since we started this journey in July 2018, so that must be good news! I hope everyone is doing ok. I am thi...
by Dee123
Sun Dec 16, 2018 11:18 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 77
Views: 32630

Re: This cruel disease

Hi Keith. How is your daughter doing? Have you had any news on what happens next after her break? I hope you and your daughter and family are doing well.
by Dee123
Sun Dec 16, 2018 11:10 pm
Forum: Patient Experience Forum
Topic: Folfirinox Round 7
Replies: 40
Views: 12444

Re: Folfirinox Round 7

Good luck for your Nanoknife treatment Erika. I hope it goes well! Looking forward to your updates x
by Dee123
Sun Dec 16, 2018 11:05 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 49
Views: 18057

Re: My mum - Stage 4 PC with liver mets

Samsavan wrote: > Hi Dee > > Just wondering how your mum is doing?? I find my self in the same > predicament as you. My mum starts chemo on the 21/12. > I hope you mum is well and fighting strong . > > Sam x Hi Sam, my mum is doing ok so far. She has chemo again this Thursday and then a 2 week break...
by Dee123
Sun Dec 16, 2018 10:55 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 49
Views: 18057

Re: My mum - Stage 4 PC with liver mets

J9pkr wrote: > Mum is finally over the virus after a brief stay in hospital. We are back > on the chemo, dose 2 last week and dose 3 booked for Thursday. She is still > battling the nausea which is making her feel weak. She is still eating > every meal which is a struggle when she feels so sick. Jus...
by Dee123
Sun Dec 16, 2018 10:52 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 49
Views: 18057

Re: My mum - Stage 4 PC with liver mets

Dandygal76 wrote: > I am on catch up... Dee, has your mum got onto Emend yet? Also, if your > mum is 'thinking' sickness then speak to the nurses. We had a big problem > with dad called 'anticipatory sickness'.. he just associated a situation in > his head and was very nausea's or sick. It is very w...
by Dee123
Mon Nov 19, 2018 11:00 pm
Forum: General chat
Topic: Sign the petition
Replies: 15
Views: 3463

Re: Sign the petition

Signed x
by Dee123
Sun Nov 18, 2018 8:47 am
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 49
Views: 18057

Re: My mum - Stage 4 PC with liver mets

Hi J, yes my mum has a heightened sense of smell which affects her nausea. For example we received a magazine in the post which had plastic wrapping and she could smell a plastic smell from the other end of the room (no one else could smell it) and we had to throw it away. She is the same with candl...
by Dee123
Sat Nov 10, 2018 3:26 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 49
Views: 18057

Re: My mum - Stage 4 PC with liver mets

J9pkr wrote: > I am new to this and reading Dee’s first post could be me. My Mum 72 has PC > in the tail of the Pancreas and it is spread to her liver. We are a month > post diagnosis and we are all still in shock and devastated. She is not > very symptomatic but feels nauseous almost constantly and...
by Dee123
Wed Nov 07, 2018 1:53 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 49
Views: 18057

Re: My mum - Stage 4 PC with liver mets

Just thought I would provide an update. My mum was diagnosed in July 2018 and has had 12 weeks of Gemcitabane and paclitaxel albumin (Abraxane) chemotherapy. We have just been given the results of her first CT scan (since the one before chemo) and the tumour on her pancreas has shrunk. The spots on ...
by Dee123
Sun Sep 23, 2018 9:16 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 49
Views: 18057

Re: My mum - Stage 4 PC with liver mets

Thank you for your replies regarding neuropathy and Creon. The next side effect is sensitive teeth - has anyone got any tips on how to deal with this? My mum will ask her doctor next week. In the meantime I am going to research the best sensitive toothpaste and mouthwash for her to use! I hope every...

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