Pancreatic Cancer UK

Michaela1 wrote: > Hi Fairy, > No it is ok, you have not scared me, only this God awful disease does that! > I wouldn't say I am scared, although moments of dread do go through your > mind when you read others experiences. However equally so the words of > stories also bring you comfort and hope. > ...

Michaela1 wrote: > So sorry for your loss fairy. I doubt I will be any consolation to you > knowing that there is no more physical pain anymore! I know you will be > going through huge emotional pain, but please try and take some comfort > from your mum's relief from her pain. Again so sorry for you...

Well, now I get to post what I was dreading posting. Mum passed away at 4.53pm yesterday 08/10/18.
The disease won. I have no words and have never seen or experienced anything like it. My heart goes out to all who continue to battle and to their families. I am lost.

Dear Jeni, Apologies for not replying sooner, I haven’t had a minute, but thank you so much for the reply. If I’m honest I feel really down at the moment, mum didn’t want to go to hospital after her fall, we got her up, cleaned her up and back to bed. I did ring the hospice for advice and whilst the...

PCUK Nurse Rachel R wrote: > Hi Fairy > > I am glad to hear that Mum is going to the hospice for a time and I do hope > they are able to get on top of her symptoms. Please do keep us updated. > Thinking of you. > > Rachel > > Rachel Richardson > Pancreatic Cancer Specialist Nurse > Support Team > Pa...

Kerry, I am truly sorry to hear about your dad, there is no limit to this disease and it’s wickedness. I think counselling sounds like a way to talk some of your feelings out, it’s so hard to know what to do with it all. The hospice are talking about sending mum home next week if she remains stable ...

Sandra, Thank you so much for your kind words. I just hope as you say the hospice can find the right drugs to keep mum comfortable. Think that’s about all I can hope for. Sending you some love too, I’m sure losing your husband has been so very hard. Thank you for caring enough to post, Love from Fai...

Kerry, thank you so much for your reply. I can so relate to all the “knowledge “ but feeling utterly helpless as to what to do with it. Unfortunately I cannot “talk” to my husband about anything let alone this. I’m feeling more and more alone. I’m not long home from the hospice and this afternoon th...

So, we are just over a week at the hospice and what a week it’s been. Mum improved on the driver with the increased meds, so the doctor thought he would see if he could get all the meds in a patch with a view to mum returning home without the driver. Poor mum, the patch was a disaster, she looked an...

Oh my goodness.........no two days are the same. I was lucky to get mum into the hospice yesterday and I have never seen anywhere so marvellous. The nurses, doctors, volunteers are all amazing people and made mum so welcome. The doctor spent ages with us trying to assess mums needs and I felt huge c...

Dear Marmalade, Thank you for your kind words. I’ve had so much frustration with gps who simply won’t help, it’s as if well in their eyes mum is “terminal” and quite frankly they don’t care. Mum is going into the hospice tomorrow so they can try to manage her pain and little bit of jaundice. She’s s...

toodotty wrote: > Hi Fairy, > I agree with the nurses, you need and are entitled to a second opinion. > Clearly something is not right if after being given 12+ months to live that > your mum has suffered so much. It can be a postcode lottery for cancer > treatment and it is wrong that she has been w...

PCUK Nurse Jeni wrote: > Hello fairy, > > Thank you for your post, and sorry that you have ended up on this forum and > that your family has been affected by pancreatic cancer. > > I am sorry to hear how difficult things are right now. > > Can I ask, do you know what chemo your mum has had? And has ...

Veema wrote: > Don't feel guilty. You are doing your best in an almost impossible > situation. We've all had those guilty feelings that we aren't doing enough > or what we are doing isn't actually helping much. But you can only do what > you can. I'm sure there should be some additional support you ...

I feel as if time has stood still. My mum was diagnosed with pc in January 2018 and given 12-18months to live without any treatment. She started palliative chemo in February and managed two rounds before neutropenic sepsis took hold. Got out of hospital in April. Was relatively pain free for a month...