Search found 85 matches

by kate2101
Thu May 16, 2019 8:52 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 65
Views: 32225

Re: First folfirinox experience

Look forward to talking x
by kate2101
Thu May 16, 2019 7:59 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 65
Views: 32225

Re: First folfirinox experience

Hi Theresa

Be lovely to talk to you and exchange notes, should be here all day. Are you being treated at Derby?
by kate2101
Thu May 16, 2019 4:17 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 65
Views: 32225

Re: First folfirinox experience

Hi Theresa, Still here! All ok at the moment, had number 13 Folfirinox last Thursday and admit this week has been a bit challenging. Nausea and tiredness are definitely worse this time but I feel much better today so hopefully on the way up. My US doctor wants me to have radiotherapy now but hospita...
by kate2101
Wed May 15, 2019 11:01 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 60886

Re: This cruel disease

Dear Keith and family,

I’m so dreadfully sorry to hear your sad news and know how devastated you must be. Kerry was blessed to have such a wonderful family, I know how much you will miss her. My thoughts are with you at this horrible time xx
by kate2101
Tue Apr 09, 2019 1:04 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 52
Views: 36461

Re: Concerned husband

Devasted to hear your sad news, thinking of you and your family at this horrible time. X
by kate2101
Thu Mar 21, 2019 9:16 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 60886

Re: This cruel disease

Dear Keith, So sad to read your post. I really hope Kerry is able to regain her strength over the next few weeks. I know from my own experience Folfirinox is a battle in itself to deal with, the side effects are horrible. Wishing you lots of luck for the next few weeks, Kerry is amazing! Thinking of...
by kate2101
Wed Mar 13, 2019 11:59 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 65
Views: 32225

Re: First folfirinox experience

Hi Theresa, In London at the moment, I think you are too? Hope you manage to get on the trial, I’m hoping to pick up some info re trials, new treatments etc tomorrow. I’m looking for that elusive magic wand but I don’t think I’ll find it! Hope you’ve enjoyed your ‘time out’, I’m hoping for a chemo b...
by kate2101
Mon Mar 11, 2019 11:27 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 65
Views: 32225

Re: First folfirinox experience

Hi Theresa I’m fine! Just had a few days away in Cornwall, blew a few cobwebs away in the gales! Back on chemo, last one about 10 days ago. Not too bad, bit of sickness for a couple of days, descended into the tired phase now on the way up. Had some stomach issues over the weekend, usual cramps and ...
by kate2101
Mon Feb 25, 2019 8:36 am
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 65
Views: 32225

Re: First folfirinox experience

Hi Theresa..and anyone else interested.

Details for annual summit can be found on the home page here. Scroll past Erika and ‘demand faster treatment’ on top banner.
by kate2101
Sat Feb 23, 2019 10:52 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 65
Views: 32225

Re: First folfirinox experience

Hi Theresa It’s a big decision to make, especially when things are going well for you at the moment. I was convinced I wasn’t going to come home! The fact that my hospital were supportive swung it for me and i was able to fund it with my life insurance. I have no regrets, it wasn’t easy but hopefull...
by kate2101
Fri Feb 22, 2019 11:19 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 65
Views: 32225

Re: First folfirinox experience

Hi Theresa Six weeks yesterday since my op, pleased to say all good so far. The recovery has taken me longer than I expected but my family say I’m too impatient! I’m still uncomfortable but I’m getting better every day, I’m driving again now and slowly getting my energy back. My appetite was non exi...
by kate2101
Wed Feb 20, 2019 5:33 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 59
Views: 32013

Re: My mum - Stage 4 PC with liver mets

Hi Janine,

So happy to hear your good news, love to you and your mum. xx
by kate2101
Thu Feb 14, 2019 8:09 pm
Forum: Advanced pancreatic cancer
Topic: RIP Erika xxx
Replies: 7
Views: 2989

Re: RIP Erica xxx

I was also privileged to meet Erika and her husband Jerry last November. She was an inspiration and gave hope to me and fellow sufferers with her positive attitude. She fought her corner hard and it’s so sad she lost the battle much too soon. RIP Erika, love and strength to your friends and family a...
by kate2101
Wed Feb 06, 2019 11:32 pm
Forum: Family, friends and carers
Topic: loosing hope
Replies: 9
Views: 4243

Re: loosing hope

Hi Charlotte I’ve been trying to find some words of comfort for you since reading your post a couple of days ago. I am 60, diagnosed stage VI in June. I have three children (big ones!) 33, 27 and 23. Unfortunately, although I had a wonderful step father for most of my adult life until he passed away...
by kate2101
Sat Feb 02, 2019 10:53 pm
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 41
Views: 26610

Re: Nano knife for Stage IV PC.

Hi all, Don’t mean to hijack Erika’s post but content closely related. I followed Erika to America and had open nanoknife on 10th January. You can read more of my story in previous posts from my diagnosis in June 2018 but briefly, I was diagnosed stage IV with multiple liver mets and offered palliat...

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