Search found 61 matches

by kate2101
Wed Nov 14, 2018 9:17 pm
Forum: General chat
Topic: Sign the petition
Replies: 1
Views: 185

Re: Sign the petition

Signed!
by kate2101
Wed Nov 14, 2018 9:16 pm
Forum: General chat
Topic: Medical tourist insurance
Replies: 4
Views: 265

Re: Medical tourist insurance

Ps

Thanks for spirulina tip re hair. I have some in the cupboard but haven’t taken it religiously as it’s so foul and I take so many other supplements. I haven’t lost my hair but it’s started to thin quite dramatically the last couple of weeks, I will definitely add it back into my routine!
by kate2101
Wed Nov 14, 2018 9:11 pm
Forum: General chat
Topic: Medical tourist insurance
Replies: 4
Views: 265

Re: Medical tourist insurance

Hi Erika I don’t know what planet your hospital are on, apparently my hospital are still treating a patient with Folfirinox after 2 years, adjustments made but as long as it’s working they carry on! Decided to send discs FedEx, dropping them off tomorrow...thanks for £52 shock! Looking for insurance...
by kate2101
Mon Nov 12, 2018 10:42 pm
Forum: General chat
Topic: Medical tourist insurance
Replies: 4
Views: 265

Re: Medical tourist insurance

Hi Erika That’s a question I have too as I am also hoping to go to US. I was wondering if Dr Donoway might have any info from previous UK patients? Can I ask how you sent your scans to US? Finally managed to get hold of my disc and wondered if Dr Donoway will accept them electronically. I seem to re...
by kate2101
Wed Nov 07, 2018 8:31 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 23
Views: 6943

Re: My mum - Stage 4 PC with liver mets

Hi Dee Brilliant news about your mum, really pleased her pain is so much better too. I have number 8 chemo tomorrow (Folfirinox), delayed a week because of low platelets. Like Erika I visualise my tumours, my scenario is red hot smouldering tumours that get hotter and hotter and burn themselves out ...
by kate2101
Sun Nov 04, 2018 11:43 am
Forum: General chat
Topic: Feeling morbid!
Replies: 11
Views: 1253

Re: Feeling morbid!

Hi Michaela and Erika Hope you are both ok today, and Michaela .... hope your mood has lifted. Re platelets... they don’t seem too worried at the moment as my levels rise again but my last few ‘Dr Doom’ appointments have been with the registrar, I am booked for an extra appointment with the oncologi...
by kate2101
Sat Nov 03, 2018 11:39 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 61
Views: 18392

Re: This cruel disease

It doesn’t seem fair we have to spend time and money to stay alive. Fortunately my life insurance paid out, I’m worried I’m not going to leave enough behind for the family but they want me to pursue all options and are behind me all the way. The thought of travelling all that way for surgery is real...
by kate2101
Sat Nov 03, 2018 9:35 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 61
Views: 18392

Re: This cruel disease

Hi Erika I am also thinking of Dr Donaway, I’ve had a couple of conversations with him. I finally got my latest CT scan disc from the hospital and need to send to him, I’m worried about my multiple liver mets but will see what he has to say, they have shrunk considerably which is good news. Is this ...
by kate2101
Sat Nov 03, 2018 9:02 am
Forum: General chat
Topic: Feeling morbid!
Replies: 11
Views: 1253

Re: Feeling morbid!

Hi Toodotty

Chemo delayed till next Thursday (number 8), low platelets again. Quite nice to have a week off, admit I have been more tired than usual which is probably why.
by kate2101
Sat Nov 03, 2018 12:16 am
Forum: General chat
Topic: Feeling morbid!
Replies: 11
Views: 1253

Re: Feeling morbid!

Hi Michaela You wouldn’t be human if you didn’t feel this way! Nurse Jeni has posted some good advice if you feel it’s too much for you. I get really down when I get home after chemo. I go for my treatment feeling quite well then it all becomes real again and I come home feeling a wreck. I just wish...
by kate2101
Fri Nov 02, 2018 8:24 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 61
Views: 18392

Re: This cruel disease

Hi Keith Brilliant news that your daughter is doing so well, I’m so pleased for you. Quick update on me .... should have had number 8 Folfirinox last Thursday but my platelets were too low again so a week off for me. My CA19-19 levels are down again, now right at the bottom of the scale instead of b...
by kate2101
Wed Oct 31, 2018 7:34 pm
Forum: Patient Experience Forum
Topic: Just diagnosed
Replies: 28
Views: 4735

Re: Just diagnosed

Hi Theresa Good luck for tomorrow. I was supposed to have number 8 tomorrow but my platelets were low again so a week off for me. Not too worried as my CA19-9 levels down again. Been really tired this week so hopefully the week off will give my body chance to recover and get my energy back. Hope it ...
by kate2101
Thu Oct 25, 2018 8:56 am
Forum: Patient Experience Forum
Topic: Just started Folfirinox
Replies: 16
Views: 3490

Re: Just started Folfirinox

Petal I have the occasional glass of wine now if I feel like it, my oncologist says it’s ok and could even help my appetite. I have a big glass of water with it too. Life holds few pleasures now! Re hair loss - after 7 Folfirinox my hair is still there! It’s hardly growing and has thinned but I feel...
by kate2101
Wed Oct 24, 2018 11:46 am
Forum: Advanced pancreatic cancer
Topic: Diagnosed too late for treatment
Replies: 17
Views: 7857

Re: Diagnosed too late for treatment

Dear Kimmac

So sorry to hear your sad news, this is truly a dreadful disease. Thinking of you.

Kate xxx
by kate2101
Sun Oct 21, 2018 6:54 am
Forum: Patient Experience Forum
Topic: Just diagnosed
Replies: 28
Views: 4735

Re: Just diagnosed

Hi Theresa Glad all going well so far. Good you managed to get out and you’re eating. Got rid of my bottle last night, I’m always pleased to say goodbye to it! You will probably find you will get more tired as the week goes on. My ‘dip’ is usually days 6/7 and you are at your most vulnerable as your...

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