Search found 80 matches

by kate2101
Thu Mar 21, 2019 9:16 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 90
Views: 38800

Re: This cruel disease

Dear Keith, So sad to read your post. I really hope Kerry is able to regain her strength over the next few weeks. I know from my own experience Folfirinox is a battle in itself to deal with, the side effects are horrible. Wishing you lots of luck for the next few weeks, Kerry is amazing! Thinking of...
by kate2101
Wed Mar 13, 2019 11:59 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 57
Views: 21148

Re: First folfirinox experience

Hi Theresa, In London at the moment, I think you are too? Hope you manage to get on the trial, I’m hoping to pick up some info re trials, new treatments etc tomorrow. I’m looking for that elusive magic wand but I don’t think I’ll find it! Hope you’ve enjoyed your ‘time out’, I’m hoping for a chemo b...
by kate2101
Mon Mar 11, 2019 11:27 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 57
Views: 21148

Re: First folfirinox experience

Hi Theresa I’m fine! Just had a few days away in Cornwall, blew a few cobwebs away in the gales! Back on chemo, last one about 10 days ago. Not too bad, bit of sickness for a couple of days, descended into the tired phase now on the way up. Had some stomach issues over the weekend, usual cramps and ...
by kate2101
Mon Feb 25, 2019 8:36 am
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 57
Views: 21148

Re: First folfirinox experience

Hi Theresa..and anyone else interested.

Details for annual summit can be found on the home page here. Scroll past Erika and ‘demand faster treatment’ on top banner.
by kate2101
Sat Feb 23, 2019 10:52 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 57
Views: 21148

Re: First folfirinox experience

Hi Theresa It’s a big decision to make, especially when things are going well for you at the moment. I was convinced I wasn’t going to come home! The fact that my hospital were supportive swung it for me and i was able to fund it with my life insurance. I have no regrets, it wasn’t easy but hopefull...
by kate2101
Fri Feb 22, 2019 11:19 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 57
Views: 21148

Re: First folfirinox experience

Hi Theresa Six weeks yesterday since my op, pleased to say all good so far. The recovery has taken me longer than I expected but my family say I’m too impatient! I’m still uncomfortable but I’m getting better every day, I’m driving again now and slowly getting my energy back. My appetite was non exi...
by kate2101
Wed Feb 20, 2019 5:33 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 56
Views: 21355

Re: My mum - Stage 4 PC with liver mets

Hi Janine,

So happy to hear your good news, love to you and your mum. xx
by kate2101
Thu Feb 14, 2019 8:09 pm
Forum: Advanced pancreatic cancer
Topic: RIP Erika xxx
Replies: 7
Views: 1118

Re: RIP Erica xxx

I was also privileged to meet Erika and her husband Jerry last November. She was an inspiration and gave hope to me and fellow sufferers with her positive attitude. She fought her corner hard and it’s so sad she lost the battle much too soon. RIP Erika, love and strength to your friends and family a...
by kate2101
Wed Feb 06, 2019 11:32 pm
Forum: Family, friends and carers
Topic: loosing hope
Replies: 9
Views: 2367

Re: loosing hope

Hi Charlotte I’ve been trying to find some words of comfort for you since reading your post a couple of days ago. I am 60, diagnosed stage VI in June. I have three children (big ones!) 33, 27 and 23. Unfortunately, although I had a wonderful step father for most of my adult life until he passed away...
by kate2101
Sat Feb 02, 2019 10:53 pm
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 41
Views: 20578

Re: Nano knife for Stage IV PC.

Hi all, Don’t mean to hijack Erika’s post but content closely related. I followed Erika to America and had open nanoknife on 10th January. You can read more of my story in previous posts from my diagnosis in June 2018 but briefly, I was diagnosed stage IV with multiple liver mets and offered palliat...
by kate2101
Fri Dec 21, 2018 11:59 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 56
Views: 21355

Re: My mum - Stage 4 PC with liver mets

Thanks very much Theresa. Must admit I’m a mixture of emotions, excited, hopeful, mainly scared but what an adventure! But one I wish I wasn’t involved in. I now have to concentrate on getting as fit as possible and avoid any nasty bugs going around. Thanks again for good wishes, I’ll keep you poste...
by kate2101
Fri Dec 21, 2018 3:59 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 56
Views: 21355

Re: My mum - Stage 4 PC with liver mets

Hi Dianne, Thanks for your good wishes, who would have thought a year ago I’d be in this position, I didn’t appreciate how simple life was. Looking forward to my trip but also scared stiff! Like Erika, I’m fortunate that my life insurance paid out so I can pay for the treatment without remortgaging ...
by kate2101
Wed Dec 19, 2018 11:26 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 56
Views: 21355

Re: My mum - Stage 4 PC with liver mets

Good news Dee about your mums tumour markers, really pleased for you. I think a good day for me. I was hoping for CT scan results but not filtered through yet. My bloods were good, tumour marker dropped a bit more, started at 500,000 (yes!) 148 today. Liver function improved (must be because I’ve cu...
by kate2101
Wed Dec 19, 2018 11:42 am
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 56
Views: 21355

Re: My mum - Stage 4 PC with liver mets

Thanks for support and good wishes. I’m sitting at the hospital waiting to see my oncologist and wondering if he has the results of my CT scan, scary! Number 10 chemo tomorrow. Another scary happening..... I booked my flight this week to follow Erika for treatment in America leaving here 8 January! ...
by kate2101
Tue Dec 18, 2018 12:37 pm
Forum: Patient Experience Forum
Topic: Folfirinox Round 7
Replies: 40
Views: 14024

Re: Folfirinox Round 7

Hi all, A positive story for you all....I met a lovely lady last week when I went for a CT scan. I’m sure she wouldn’t mind me saying she’s an older lady but she looked the picture of health. She was diagnosed 3 years ago and has had 10 x 6 sessions of folfirinox and now on a maintenance treatment, ...

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