Search found 70 matches

by kate2101
Fri Dec 21, 2018 11:59 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 47
Views: 13473

Re: My mum - Stage 4 PC with liver mets

Thanks very much Theresa. Must admit I’m a mixture of emotions, excited, hopeful, mainly scared but what an adventure! But one I wish I wasn’t involved in. I now have to concentrate on getting as fit as possible and avoid any nasty bugs going around. Thanks again for good wishes, I’ll keep you poste...
by kate2101
Fri Dec 21, 2018 3:59 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 47
Views: 13473

Re: My mum - Stage 4 PC with liver mets

Hi Dianne, Thanks for your good wishes, who would have thought a year ago I’d be in this position, I didn’t appreciate how simple life was. Looking forward to my trip but also scared stiff! Like Erika, I’m fortunate that my life insurance paid out so I can pay for the treatment without remortgaging ...
by kate2101
Wed Dec 19, 2018 11:26 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 47
Views: 13473

Re: My mum - Stage 4 PC with liver mets

Good news Dee about your mums tumour markers, really pleased for you. I think a good day for me. I was hoping for CT scan results but not filtered through yet. My bloods were good, tumour marker dropped a bit more, started at 500,000 (yes!) 148 today. Liver function improved (must be because I’ve cu...
by kate2101
Wed Dec 19, 2018 11:42 am
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 47
Views: 13473

Re: My mum - Stage 4 PC with liver mets

Thanks for support and good wishes. I’m sitting at the hospital waiting to see my oncologist and wondering if he has the results of my CT scan, scary! Number 10 chemo tomorrow. Another scary happening..... I booked my flight this week to follow Erika for treatment in America leaving here 8 January! ...
by kate2101
Tue Dec 18, 2018 12:37 pm
Forum: Patient Experience Forum
Topic: Folfirinox Round 7
Replies: 40
Views: 9894

Re: Folfirinox Round 7

Hi all, A positive story for you all....I met a lovely lady last week when I went for a CT scan. I’m sure she wouldn’t mind me saying she’s an older lady but she looked the picture of health. She was diagnosed 3 years ago and has had 10 x 6 sessions of folfirinox and now on a maintenance treatment, ...
by kate2101
Mon Dec 17, 2018 8:12 am
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 47
Views: 13473

Re: My mum - Stage 4 PC with liver mets

Hi Sam and Dee Hope both your mums are doing well. I’m sorry you are going through this, it must be very hard for you. I have three children, my daughter still lives at home and I hate watching her deal with this. I’m lucky that I’m still relatively well and don’t need much help but this illness cha...
by kate2101
Thu Dec 06, 2018 12:59 pm
Forum: General chat
Topic: Fund raising - Amazon Smile
Replies: 1
Views: 649

Fund raising - Amazon Smile

Hi All If anyone buying from Amazon, did you know you can sign up to Amazon Smile (dead easy and makes no difference to your buying experience, same account etc) and 0.5% of your purchase will be credited to the charity of your choice - Pancreatic Cancer being one of the choices. Do all your Christm...
by kate2101
Wed Dec 05, 2018 8:35 pm
Forum: General chat
Topic: Sign the petition
Replies: 12
Views: 2276

Re: Sign the petition

Hi All If anyone buying from Amazon, did you know you can sign up to Amazon Smile (dead easy and makes no difference to your buying experience) and .5% of your purchase will be credited to the charity of your choice - Pancreatic Cancer being one of the choices. Do all your Christmas shopping in one ...
by kate2101
Thu Nov 29, 2018 11:25 pm
Forum: General chat
Topic: Sign the petition
Replies: 12
Views: 2276

Re: Sign the petition

Well done Erika for all you’ve done this week, much appreciated. Come on all, only 8,000 to go. Christmas card idea a good one!

Kate x
by kate2101
Wed Nov 14, 2018 9:17 pm
Forum: General chat
Topic: Sign the petition
Replies: 12
Views: 2276

Re: Sign the petition

Signed!
by kate2101
Wed Nov 14, 2018 9:16 pm
Forum: General chat
Topic: Medical tourist insurance
Replies: 4
Views: 951

Re: Medical tourist insurance

Ps

Thanks for spirulina tip re hair. I have some in the cupboard but haven’t taken it religiously as it’s so foul and I take so many other supplements. I haven’t lost my hair but it’s started to thin quite dramatically the last couple of weeks, I will definitely add it back into my routine!
by kate2101
Wed Nov 14, 2018 9:11 pm
Forum: General chat
Topic: Medical tourist insurance
Replies: 4
Views: 951

Re: Medical tourist insurance

Hi Erika I don’t know what planet your hospital are on, apparently my hospital are still treating a patient with Folfirinox after 2 years, adjustments made but as long as it’s working they carry on! Decided to send discs FedEx, dropping them off tomorrow...thanks for £52 shock! Looking for insurance...
by kate2101
Mon Nov 12, 2018 10:42 pm
Forum: General chat
Topic: Medical tourist insurance
Replies: 4
Views: 951

Re: Medical tourist insurance

Hi Erika That’s a question I have too as I am also hoping to go to US. I was wondering if Dr Donoway might have any info from previous UK patients? Can I ask how you sent your scans to US? Finally managed to get hold of my disc and wondered if Dr Donoway will accept them electronically. I seem to re...
by kate2101
Wed Nov 07, 2018 8:31 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 47
Views: 13473

Re: My mum - Stage 4 PC with liver mets

Hi Dee Brilliant news about your mum, really pleased her pain is so much better too. I have number 8 chemo tomorrow (Folfirinox), delayed a week because of low platelets. Like Erika I visualise my tumours, my scenario is red hot smouldering tumours that get hotter and hotter and burn themselves out ...
by kate2101
Sun Nov 04, 2018 11:43 am
Forum: General chat
Topic: Feeling morbid!
Replies: 11
Views: 2284

Re: Feeling morbid!

Hi Michaela and Erika Hope you are both ok today, and Michaela .... hope your mood has lifted. Re platelets... they don’t seem too worried at the moment as my levels rise again but my last few ‘Dr Doom’ appointments have been with the registrar, I am booked for an extra appointment with the oncologi...

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