Search found 37 matches

by kate2101
Sat Sep 01, 2018 8:58 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 36
Views: 8975

Re: This cruel disease

I was so happy to read your post and delighted your daughter is doing so well. It’s so good to hear some good news, it lifts the spirits and gives us fellow sufferers hope, the best medicine there is. Love to your daughter, you and your family, I don’t need to say stay positive because you are! A po...
by kate2101
Fri Aug 31, 2018 9:45 am
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 36
Views: 5599

Re: Nano knife for Stage IV PC.

I’m so angry for you, how dare they! This is your life and your money, it’s beyond belief. Carry on fighting, behind you all the way x
by kate2101
Tue Aug 28, 2018 10:50 am
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 36
Views: 5599

Re: Nano knife for Stage IV PC.

That is devastating! This is your decision and you are in effect half way through your NanoKnife treatment. Words fail me I’m afraid.
by kate2101
Thu Aug 23, 2018 5:20 pm
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 36
Views: 5599

Re: Nano knife for Stage IV PC.

Hi,

So pleased all went well and all positive for next week, sure you’ll keep us updated with your progress. Good to hear you’re pain free so quickly after the procedure. Just home from round 4 chemo, perhaps be following in your footsteps soon if I’m a suitable candidate.

Kate x
by kate2101
Wed Aug 15, 2018 6:47 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 46
Views: 6461

Re: First folfirinox experience

Hi Michaela Glad your bloating issues improved. Think I would introduce lactulose again, I find it’s the kindest to take, I take about 20/30 ml at night if needed and it usually works gently for me. Nothing drastic to report, on the up from third chemo, definitely better than first two. Day 6 today ...
by kate2101
Wed Aug 15, 2018 8:12 am
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 46
Views: 6461

Re: First folfirinox experience

Hi Michaela I’m sure my figures were way higher than that but I didn’t take it in. It was only after 2nd chemo that it went down which I think is par for course. It’s an indicator that chemo is having some effect, early days for you so don’t worry about it. Hope you’re coping and round two easier. H...
by kate2101
Tue Aug 14, 2018 4:00 pm
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 36
Views: 5599

Re: Nano knife for Stage IV PC.

Wow!

Good luck! I’ll be folllowing your progress with great interest. Presume Prof Leen is doing it? How were your recent scan results?

Xx
by kate2101
Fri Aug 10, 2018 10:26 am
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 46
Views: 6461

Re: First folfirinox experience

Morning all, Update. Had third Folfirinox yesterday, hoping I feel as good as second which was a breeze compared to first. Had good news from oncologist Wednesday as CA 19 levels dropped by about 1/4, can’t remember figures, sounded very high so my brain glossed over those details but at least movin...
by kate2101
Fri Aug 10, 2018 10:13 am
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 6873

Re: Battling to get treament

Hi

Hope you’re back home and feeling better. Sounds like you’ve been through the mill recently! Good luck with your scan results xx
by kate2101
Wed Aug 08, 2018 7:38 pm
Forum: Treatment & side effects
Topic: Severe distention and tightness
Replies: 18
Views: 2503

Re: Severe distention and tightness

Hi Michaela

So sorry you’re still having problems but hopefully this will sort it out for you and make you more comfortable. Good luck for Friday x
by kate2101
Mon Aug 06, 2018 7:51 am
Forum: Treatment & side effects
Topic: Severe distention and tightness
Replies: 18
Views: 2503

Re: Severe distention and tightness

Hi Michaela Really sorry to hear you are still so uncomfortable. I also had bloating but by the sound of it nowhere near as bad as you. If any consolation, it has eased after my second chemo. I still get burning stomach cramps and a bit of bloating but the constipation is better. (Piles now a nuisan...
by kate2101
Thu Aug 02, 2018 7:54 am
Forum: Patient Experience Forum
Topic: Just my story....Michaela1.x
Replies: 5
Views: 1363

Re: Just my story....Michaela1.x

Hi Michaela First one down, well done! Re constipation, it makes you feel so miserable it would make a saint snappy! My first experience I found after about day 5 I got horrible stomach cramps as if I had a radioactive curry inside me...but the result was goodbye constipation! Unfortunately it comes...
by kate2101
Tue Jul 31, 2018 10:58 pm
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 36
Views: 5599

Re: Nano knife for Stage IV PC.

Hi again That’s brilliant the Professor responded so quickly and is able to pick up the scan. I suppose the smaller the tumours the better the chances of success so just hope the chemo has some effect. I’ll do anything if it will help, I wonder if your oncologist might have a different opinion if sh...
by kate2101
Tue Jul 31, 2018 8:27 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 36
Views: 8975

Re: This cruel disease

Hi,

So lovely to hear some good news, lots of love to your brave daughter, you and your family xx
by kate2101
Tue Jul 31, 2018 4:49 pm
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 36
Views: 5599

Re: Nano knife for Stage IV PC.

Hi Many thanks for posting your NanoKnife findings, certainly a route I’m interested in following. At what stage did you approach the professor and how long did it take for a response? My second Folfirinox last Thursday has been much better than the first, nausea under control, energy dipped a bit a...

Go to advanced search