Search found 13 matches

by kate2101
Thu Jul 19, 2018 8:08 am
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 9
Views: 409

Re: First folfirinox experience

Morning! Meant to post a ‘daily diary’ but all too much effort! All ok, up and down days. Never felt so exhausted! I think lack of appetite the worst problem, trying to make myself eat but not easy. Some days I think I’ve cracked it and enjoy some food only to lose it. Think I feel marginally better...
by kate2101
Sun Jul 15, 2018 9:30 am
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 9
Views: 409

Re: First folfirinox experience

Thanks Veema Not feeling brill so far this morning, think 2nd attempt anti sickness pill might just be kicking in. Nausea worse problem and makes taking other tablets very difficult but sure I’ll come to some understanding with my body and gauge what suits. Going to try some toast in a minute as nee...
by kate2101
Sat Jul 14, 2018 5:55 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 9
Views: 409

Re: First folfirinox experience

Hi toodotty You are right, holiday not important, plenty more opportunities ahead to get away! Glad treatment no 5 went well. Had morphine prescribed last week pre chemo as pain was keeping me awake. Still not remotely pinging even with the steroids! No throwing up yet today and (I think) the glimme...
by kate2101
Sat Jul 14, 2018 1:24 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 9
Views: 409

Re: First folfirinox experience

Hi Proud Wife Admit feeling a bit sorry for myself earlier, got angry at this horrible disease that has so suddenly turned our lives upside down. Over it now and positive head back on! 👍 Celebrating a minor achievement that I haven’t been sick yet today, how priorities change. Thank you again for su...
by kate2101
Sat Jul 14, 2018 1:14 pm
Forum: Advanced pancreatic cancer
Topic: Diagnosed too late for treatment
Replies: 8
Views: 779

Re: Diagnosed too late for treatment

Hi,

Words cannot express how cruel this disease is. My heart goes out to you your family and hope your husband is home soon xx
by kate2101
Sat Jul 14, 2018 10:09 am
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 9
Views: 409

Re: First folfirinox experience

Hi Veena Yes, picc line in but initial attempt in left arm didn’t work so had to try again in right which fortunately succeeded. Nurses coming to disconnect me tonight. Don’t feel too bad this morning, slept reasonably well with the help of my night time morphine friend. Biggest battle is trying to ...
by kate2101
Fri Jul 13, 2018 8:53 am
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 9
Views: 409

First folfirinox experience

First one over! Arrived at hospital 8.30am yesterday for picc line. Unfortunately my left arm veins were ‘too wobbly’ and after a few attempts had to to try right which worked immediately. Treatment - much better than I expected, I think the only real effects I felt yesterday was the oxyplatin which...
by kate2101
Wed Jul 11, 2018 6:56 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 25
Views: 2050

Re: Battling to get treament

Hi toodotty Your GP sounds brilliant, makes such a difference. Good luck with NanoKnife and Heidelberg, please keep us posted. Saw my Dr Doom today and have my first Folfirinox tomorrow. Scared but looking forward to getting things underway. My night pain has got worse recently and energy plummeting...
by kate2101
Tue Jul 03, 2018 10:19 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 25
Views: 2050

Re: Battling to get treament

Hi all Nothing like an exciting game of footy with the family to take your mind off things! Thank you proud wife for your lovely comments, toodotty...happy to chat off forum if you’d like to. Thank you Rachel too. Another ‘disappointment’ with today’s oncology meeting, I called my designated special...
by kate2101
Tue Jul 03, 2018 2:31 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 25
Views: 2050

Re: Battling to get treament

Hi Jeni and toodotty Back from meeting with oncologist, agreed to folfirinox, no specific date yet but probably 2 weeks. Although a very nice doctor, I came away full of gloom although no more bad news, diagnosis unchanged. Told in no uncertain terms if I don’t get on with folfirinox NHS won’t fund ...
by kate2101
Sat Jun 30, 2018 10:20 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 25
Views: 2050

Re: Battling to get treament

Hi again, Multiples in liver so easier to get to I think. Better day for me too, ‘normal’ day, food shopped and bbq in garden. Ate quite well and think my daughter reassured that I’m still the same mum. She disappeared out and came back with an assortment of healing crystals, wish it was that easy t...
by kate2101
Sat Jun 30, 2018 9:13 am
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 25
Views: 2050

Re: Battling to get treament

Hi toodotty Thanks very much for your advice, very helpful. Not a good day yesterday, collected my daughter from London, she’s been there for a couple of months on an internship. She is devastated. I’ve tried to play down the seriousness of it all as much as possible but she’s not stupid. Think it’s...
by kate2101
Fri Jun 29, 2018 6:43 am
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 25
Views: 2050

Re: Battling to get treament

Hi, I’ve just started on this very unexpected and horrendous journey. Diagnosed a couple of weeks ago with tumour in body of pancreas and multiples in liver. Just 60, husband, three just grown up children, fit as a fiddle and loads of plans, gutted! I’m meeting with oncologist next week and hopefull...

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