Search found 39 matches

by KeithKerry
Tue Dec 18, 2018 7:04 pm
Forum: Advanced pancreatic cancer
Topic: My big brother
Replies: 17
Views: 1824

Re: My big brother

BromsgroveSister wrote: > My big brother has worsened since my last post. He has now been told that > his cancer is now too advanced to receive chemo. This is such a cruel blow. > Especially when he was told on the 21st Nov that he shouldn’t “panic” as > his cancer wasn’t particularly active so we d...
by KeithKerry
Tue Dec 18, 2018 5:43 pm
Forum: Patient Experience Forum
Topic: Folfirinox Round 7
Replies: 38
Views: 6835

Re: Folfirinox Round 7

Hi again Sam Nab-Paclitaxel/Gemcitabine is the 'good stuff' in my book. It's what Kerry has been treated with as a first line treatment and responded so well to with very few symptoms. Certainly no seriously debilitating symptoms anyway. I'm glad you're going with your Mum for her chemo sessions. We...
by KeithKerry
Mon Dec 17, 2018 11:32 pm
Forum: Patient Experience Forum
Topic: Folfirinox Round 7
Replies: 38
Views: 6835

Re: Folfirinox Round 7

Samsavan wrote: > Hi Keith > I just want to say I have read all your posts and you and your daughter > give me hope for my mum. I sincerely hope your beautiful daughter is doing > alright. I know what it may Feel like to have all clear and to have this > lingering feeling of this wretched thing retu...
by KeithKerry
Tue Dec 11, 2018 9:03 pm
Forum: Patient Experience Forum
Topic: Folfirinox Round 7
Replies: 38
Views: 6835

Re: Folfirinox Round 7

Best of luck Erika. I really hope that the Nanoknife helps you. I wrote to my MP about getting faster treatment for PC patients and got a very nice and positive personal reply. That's a direct result of what you have started. You are a very brave and determined person that many others will take hear...
by KeithKerry
Thu Nov 22, 2018 5:43 pm
Forum: Patient Experience Forum
Topic: Folfirinox Round 7
Replies: 38
Views: 6835

Re: Folfirinox Round 7

toodotty wrote: > Hi KeithKerry, > It is difficult not to worry about the big C even if it seems to have > disappeared, it will always be there in the background. Your daughter just > needs to listen to her body, any sign of change of digestion, even > something as simple as "oh that seems to have g...
by KeithKerry
Sun Nov 18, 2018 10:00 pm
Forum: Patient Experience Forum
Topic: Folfirinox Round 7
Replies: 38
Views: 6835

Re: Folfirinox Round 7

I'm glad it's going well for you. I remember years ago reading about a man that visualised that he had a pacman running round in his body gobbling up the cancer cells. He was eventually clear of cancer. That has stuck with me since I read it as a young teenager. I really hope your next scan results ...
by KeithKerry
Tue Nov 06, 2018 8:14 pm
Forum: Advanced pancreatic cancer
Topic: Successful Surgery in Heidelberg Germany - Inoperable in UK
Replies: 29
Views: 34284

Re: Successful Surgery in Heidelberg Germany - Inoperable in UK

If anyone can share any information about experiences they know of with Heidelberg, or how anybody would go about contacting the right people to set things in motion, I would be eternally grateful. I have to explore every possibility for my Daughter.
by KeithKerry
Sun Nov 04, 2018 7:22 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 62
Views: 19959

Re: This cruel disease

We are fortunate that our hospital is the regional centre for Pancreatic Cancer (and other Cancers). It's on our doorstep (my Wife and I have worked there for many years in admin roles). I do know that our MDT that covers PC meets every week to follow up on all patients and to make sure that they ar...
by KeithKerry
Sat Nov 03, 2018 9:50 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 62
Views: 19959

Re: This cruel disease

It seems that we were extremely fortunate as treatment started 3 weeks after we got confirmation of the horrifying diagnosis. However, I read an awful lot Pancreatic Cancer Facebook pages, forums, blogs, anything that I can get my eyes on and it does seem that in the UK we are frequently very slow t...
by KeithKerry
Sat Nov 03, 2018 5:43 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 62
Views: 19959

Re: This cruel disease

I watched your video Erika. I signed the petition set up my donations and sent the link around to contacts to sign. Thank you so much from all Pancreatic Cancer patients for driving this Erika.

You're a brave person.
by KeithKerry
Sat Nov 03, 2018 11:01 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 62
Views: 19959

Re: This cruel disease

It would be good to know about all options abroad. Heaven knows how we would afford it, but I cannot simply let my Daughter slip away without having tried everything that is within our power to do. It's endlessly frustrating that in the US they still at least try to surgically prolong the lives of s...
by KeithKerry
Thu Nov 01, 2018 10:28 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 62
Views: 19959

Re: This cruel disease

Hi toodotty, Thanks for the link. That site is pretty interesting and there are some interesting links on it. I have not visited this site for a while, not long enough to post anyway. I hope everyone is doing well. Nothing to report here. A month into the chemo break, my Daughter has developed a hug...
by KeithKerry
Wed Oct 17, 2018 8:42 pm
Forum: Patient Experience Forum
Topic: Just diagnosed
Replies: 28
Views: 5385

Re: Just diagnosed

Good luck Theresa. I really do hope that you're able to tolerate the chemotherapy and that it works as well for you as is it does for a good number of other people. Although my Daughter has been on Gemcitabine/Abraxane which is generally thought to be less tough on people, we are in touch with other...
by KeithKerry
Mon Oct 15, 2018 6:23 pm
Forum: Patient Experience Forum
Topic: Just diagnosed
Replies: 28
Views: 5385

Re: Just diagnosed

Desso wrote: > Very sorry about your diagnose Theresa, but as many already has posted > there is hope. I am 53 and was diagnosed with PC stage IV in December 2016. > My chemo treatment was very effective, and I was able to convince my > medical team to perform surgery and remove the primary tumor af...
by KeithKerry
Sat Oct 13, 2018 6:57 pm
Forum: Patient Experience Forum
Topic: Just diagnosed
Replies: 28
Views: 5385

Re: Just diagnosed

Hi Theresa My Daughter is in the same boat as you. She is just 35 years of age. She was diagnosed with stage IV in March this year. The primary tumour on her pancreas was about 3cm x 3cm. There were two small patches of the same cancer on her liver and several small nodules dotted around deeper in h...

Go to advanced search