Search found 33 matches

by KeithKerry
Tue Nov 06, 2018 8:14 pm
Forum: Advanced pancreatic cancer
Topic: Successful Surgery in Heidelberg Germany - Inoperable in UK
Replies: 29
Views: 33511

Re: Successful Surgery in Heidelberg Germany - Inoperable in UK

If anyone can share any information about experiences they know of with Heidelberg, or how anybody would go about contacting the right people to set things in motion, I would be eternally grateful. I have to explore every possibility for my Daughter.
by KeithKerry
Sun Nov 04, 2018 7:22 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 61
Views: 18301

Re: This cruel disease

We are fortunate that our hospital is the regional centre for Pancreatic Cancer (and other Cancers). It's on our doorstep (my Wife and I have worked there for many years in admin roles). I do know that our MDT that covers PC meets every week to follow up on all patients and to make sure that they ar...
by KeithKerry
Sat Nov 03, 2018 9:50 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 61
Views: 18301

Re: This cruel disease

It seems that we were extremely fortunate as treatment started 3 weeks after we got confirmation of the horrifying diagnosis. However, I read an awful lot Pancreatic Cancer Facebook pages, forums, blogs, anything that I can get my eyes on and it does seem that in the UK we are frequently very slow t...
by KeithKerry
Sat Nov 03, 2018 5:43 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 61
Views: 18301

Re: This cruel disease

I watched your video Erika. I signed the petition set up my donations and sent the link around to contacts to sign. Thank you so much from all Pancreatic Cancer patients for driving this Erika.

You're a brave person.
by KeithKerry
Sat Nov 03, 2018 11:01 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 61
Views: 18301

Re: This cruel disease

It would be good to know about all options abroad. Heaven knows how we would afford it, but I cannot simply let my Daughter slip away without having tried everything that is within our power to do. It's endlessly frustrating that in the US they still at least try to surgically prolong the lives of s...
by KeithKerry
Thu Nov 01, 2018 10:28 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 61
Views: 18301

Re: This cruel disease

Hi toodotty, Thanks for the link. That site is pretty interesting and there are some interesting links on it. I have not visited this site for a while, not long enough to post anyway. I hope everyone is doing well. Nothing to report here. A month into the chemo break, my Daughter has developed a hug...
by KeithKerry
Wed Oct 17, 2018 8:42 pm
Forum: Patient Experience Forum
Topic: Just diagnosed
Replies: 28
Views: 4692

Re: Just diagnosed

Good luck Theresa. I really do hope that you're able to tolerate the chemotherapy and that it works as well for you as is it does for a good number of other people. Although my Daughter has been on Gemcitabine/Abraxane which is generally thought to be less tough on people, we are in touch with other...
by KeithKerry
Mon Oct 15, 2018 6:23 pm
Forum: Patient Experience Forum
Topic: Just diagnosed
Replies: 28
Views: 4692

Re: Just diagnosed

Desso wrote: > Very sorry about your diagnose Theresa, but as many already has posted > there is hope. I am 53 and was diagnosed with PC stage IV in December 2016. > My chemo treatment was very effective, and I was able to convince my > medical team to perform surgery and remove the primary tumor af...
by KeithKerry
Sat Oct 13, 2018 6:57 pm
Forum: Patient Experience Forum
Topic: Just diagnosed
Replies: 28
Views: 4692

Re: Just diagnosed

Hi Theresa My Daughter is in the same boat as you. She is just 35 years of age. She was diagnosed with stage IV in March this year. The primary tumour on her pancreas was about 3cm x 3cm. There were two small patches of the same cancer on her liver and several small nodules dotted around deeper in h...
by KeithKerry
Sun Oct 07, 2018 10:04 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 61
Views: 18301

Re: This cruel disease

Dandygal76 wrote: > Just a quick look at the forum whilst waiting. If you are planning a > holiday abroad go to Dr's and get some broad spectrum and very strong > antibiotics etc. The doctor will know what to give so you have emergency > things. You need an emergency pack - including extra creon to ...
by KeithKerry
Sun Oct 07, 2018 1:23 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 61
Views: 18301

Re: This cruel disease

toodotty wrote: > Hi KeithKerry, > Thanks for the link, I haven't seen this link but it completely ties into > what I feel about approaching any cancer. I have changed my diet, I am > almost totally vegan and exercise on a regular basis (I did 70 miles over 5 > days on my bike last week.) Everyone t...
by KeithKerry
Sun Oct 07, 2018 1:04 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 61
Views: 18301

Re: This cruel disease

kate2101 wrote: > Hi, > > I’m so pleased to hear the brilliant news about your daughter. I know it’s > always at the back of your mind but to get ‘normality’ back again must be a > wonderful. > > I’m at the scanxiety stage at the moment (first since diagnosis) and > worrying about every little pain ...
by KeithKerry
Sat Oct 06, 2018 12:40 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 61
Views: 18301

Re: This cruel disease

toodotty wrote: > Hi Keithkerry, > That is indeed wonderful news, it is good to have something positive on the > site for a change. Even better to get some normality back to your > daughter's life. > > Sending you all a big happy hug, > toodotty Thank you toodotty. I am following your own story very...
by KeithKerry
Sat Oct 06, 2018 12:32 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 61
Views: 18301

Re: This cruel disease

Dandygal76 wrote: > Excellent news. We all got the scanxiety (as we called it) before results. > Enjoy this moment, enjoy your holidays, enjoy your family. I know you > will be concerned her not having chemo but it is only now (that I am not a > rabbit in the headlights) that I really understand the...
by KeithKerry
Tue Oct 02, 2018 7:05 pm
Forum: Family, friends and carers
Topic: Dealing With The Loss
Replies: 10
Views: 2087

Re: Dealing With The Loss

AGiles wrote: > How do you do stay strong? I’ve read your reply a couple times and it’s > just crazy .. does this come with experience? I think the best and most honest way to answer the first part of your question is that I don't stay strong. I cry sometimes. I cry tears for my Mum on certain days ...

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