Search found 53 matches

by KeithKerry
Thu Feb 14, 2019 8:12 pm
Forum: Advanced pancreatic cancer
Topic: RIP Erika xxx
Replies: 7
Views: 347

Re: RIP Erika xxx

This is awful news I have been looking out for her posts and I was wondering where she had got to. I took strength from her messages of good luck and passed every single one of them on without fail. I never had the privilege of meeting her, but I saw her as a wonderful inspiration and a positive and...
by KeithKerry
Thu Feb 14, 2019 6:52 pm
Forum: Family, friends and carers
Topic: Options for my mum
Replies: 2
Views: 216

Re: Options for my mum

Hi Ozoda I can't tell you what to do as this type of decision is so very personal and different to each and every individual and their families. My Daughter was 34 when she was diagnosed as stage IV in March 2018. She had metastases to her liver and lymph nodes. She was put on Gemcitabine and Abraxi...
by KeithKerry
Thu Feb 07, 2019 10:16 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 75
Views: 32432

Re: This cruel disease

Hi Theresa Good news about your scan results! You seem to be taking a similar road to Kerry in terms of responding to treatment. She also had an essentially immediate positive response that was far better than the "no significant growth" that we were told to hope for. By the time she had completed 9...
by KeithKerry
Sat Feb 02, 2019 8:51 pm
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 41
Views: 18687

Re: Nano knife for Stage IV PC.

Erika, I thank you so much for your support and determination, despite your own battles with this awful disease. I really hope that you're recovering from your operation and that the ascites isn't making life too difficult. My Father lived with ascites for almost 4 years. He used to joke about havin...
by KeithKerry
Sat Feb 02, 2019 7:53 pm
Forum: Advanced pancreatic cancer
Topic: Newly diagnosed ... first post
Replies: 1
Views: 2229

Re: Newly diagnosed ... first post

Hi Finchy Don't give up. Some may think that's easy for me to say (nobody on this forum to be clear) as I don't have Pancreatic Cancer. But my Daughter does, and everything that she suffers, we suffer with her in the only way that we can. She is stage IV with metastases to her liver. She went from a...
by KeithKerry
Thu Jan 24, 2019 9:35 pm
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 41
Views: 18687

Re: Nano knife for Stage IV PC.

Hi Erika It's good to hear from you. I was wondering how you were getting on. Our Oncologist told us that the Nano knife treatment was entirely inappropriate for a cancer like Kerry's. I have asked around and it seems to be the staging that drives that opinion in this country. Apparently the fact th...
by KeithKerry
Wed Jan 23, 2019 8:38 pm
Forum: Advanced pancreatic cancer
Topic: Disapointed
Replies: 6
Views: 1242

Re: Disapointed

Chin up Theresa Kerry has had at least two scan results given over the phone to her, so it can be done. Perhaps it's a local policy for the hospital that you attend. If it is, it's an incredibly insensitive and unkind thing to do to make you wait yet another two weeks. It's not as if you're waiting ...
by KeithKerry
Tue Jan 22, 2019 9:05 pm
Forum: Advanced pancreatic cancer
Topic: positive thoughts
Replies: 3
Views: 892

Re: positive thoughts

Good luck tomorrow Theresa. Our Oncologist has always told Kerry that if she is feeling well and essentially leading a normal life then that is a good sign regarding the activity levels of the cancer. That has proven to be the case every time for us thus far. Eating well and gaining weight are both ...
by KeithKerry
Fri Jan 18, 2019 10:47 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 75
Views: 32432

Re: This cruel disease

Thank you so much Theresa The first day after Folfirinox Kerry was out shopping with her youngest daughter (wrapped up warm against the cold because of the risk of that particular side effect relating to cold air and cold surfaces), pump, PICC line and all. I love her "to hell with it" attitude. It ...
by KeithKerry
Wed Jan 16, 2019 10:22 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 75
Views: 32432

Re: This cruel disease

Thank you Ann

I hope things have improved for Dan.
by KeithKerry
Wed Jan 16, 2019 8:30 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 75
Views: 32432

Re: This cruel disease

Theresa Upton wrote: > Hi Keith, how is your daughter doing, has she started the trail yet? > > > My thoughts and best wishes are with you > > > Theresa Hi Theresa Despite being deemed fit enough to be considered for the trial, unfortunately Kerry's name was not one of those that 'came out of the ha...
by KeithKerry
Mon Dec 24, 2018 4:24 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 75
Views: 32432

Re: This cruel disease

Well, that wasn't as bad as I was dreading. The 2nd line treatment is indeed Folfirinox of some variety but we are lucky enough to have got a place on a trial that has 50 % chance of including a second experimental active ingredient AM0010 which is a trial of immunotherapy, which I'm very excited ab...
by KeithKerry
Sat Dec 22, 2018 10:52 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 75
Views: 32432

Re: This cruel disease

Hi Dee We had a mixture of news from the scan. The primary tumour is still dormant and much smaller than it was. Some lymph nodes have returned to normal (that was a real boost!) but there are signs of either fresh growth in her liver or regrowth of original cells that were too small to see on the s...
by KeithKerry
Wed Dec 19, 2018 12:45 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 49
Views: 17939

Re: My mum - Stage 4 PC with liver mets

Good luck Kate and Erika

I will watch for replies with great interest as I will be asking questions of our Oncolgist regarding Nanoknife myself on Monday.
by KeithKerry
Tue Dec 18, 2018 7:04 pm
Forum: Advanced pancreatic cancer
Topic: My big brother
Replies: 22
Views: 5911

Re: My big brother

BromsgroveSister wrote: > My big brother has worsened since my last post. He has now been told that > his cancer is now too advanced to receive chemo. This is such a cruel blow. > Especially when he was told on the 21st Nov that he shouldn’t “panic” as > his cancer wasn’t particularly active so we d...

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