Search found 17 matches

by PCUK Nurse Rachel R
Sat Aug 11, 2018 2:43 am
Forum: Ask the nurse
Topic: Creon Shortage
Replies: 5
Views: 1230

Re: Creon Shortage

Hi there Thought it was useful to share this here as an update; Pharmaceutical company, Mylan have announced that supplies of pancreatic enzyme supplement, Creon, of 25,000 and 40,000 capsules have been received in the UK. This may take some time to be sent to your local pharmacy . If you have any c...
by PCUK Nurse Rachel R
Fri Aug 03, 2018 2:44 pm
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 20
Views: 1186

Re: Nano knife for Stage IV PC.

Hi Folks I thought it might be a good opportunity to update you on some aspects that you are mentioning in these posts. Currently in the UK we are still lacking sufficient data to recommend Nanoknife in certain conditions. We are aware that the provision of this may differ with each individual and a...
by PCUK Nurse Rachel R
Fri Aug 03, 2018 10:19 am
Forum: General chat
Topic: Time
Replies: 17
Views: 1303

Re: Time

Hi Fairy I am glad to hear that Mum is going to the hospice for a time and I do hope they are able to get on top of her symptoms. Please do keep us updated. Thinking of you. Rachel Rachel Richardson Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurse@pancreaticcancer.or...
by PCUK Nurse Rachel R
Tue Jul 31, 2018 2:57 pm
Forum: Advanced pancreatic cancer
Topic: Diagnosed too late for treatment
Replies: 11
Views: 1901

Re: Diagnosed too late for treatment

Hi Kimmac Good news that your Husband is now back home. I do really hope that you can have some special time together along with your Children. In relation to antidepressant medication please don’t hesitate to give us Nurses a call on the support line – our details are in the signature below. You ra...
by PCUK Nurse Rachel R
Tue Jul 31, 2018 2:38 pm
Forum: Family, friends and carers
Topic: Put the brakes on!
Replies: 5
Views: 430

Re: Put the brakes on!

Dear Ange I just wanted to welcome you here to the forum on behalf of the nurses. I am sorry to hear about your Brother's diagnosis. I can only imagine how difficult and anxious a time this is. I do hope that his condition improves to enable him to receive some chemotherapy if this is his wish. Plea...
by PCUK Nurse Rachel R
Fri Jul 13, 2018 9:45 am
Forum: Family, friends and carers
Topic: pnet husband having surgery soon
Replies: 6
Views: 1714

Re: pnet husband having surgery soon

Dear Tessa48

That's is wonderful news. Thanks for sharing and for your kind words for the Forum Family.

Best wishes

Rachel

Rachel Richardson
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707
by PCUK Nurse Rachel R
Tue Jul 03, 2018 4:07 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 4028

Re: Battling to get treament

Hi there kate2101 It’s Rachel here, I’m one of the other Nurses on the support line. I am glad to hear that you have now been seen by Oncology and that you have opted for folfirinox. We know that this regime is difficult to tolerate but is also showing us the best results in terms of outcome. I can ...
by PCUK Nurse Rachel R
Tue Jun 12, 2018 1:05 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 4028

Re: Battling to get treament

Dear toodotty I wanted to say a big welcome you to the forum, particularly from the Nursing team here. I do hope that you will find the forum family here a great source of support and comfort as so many do. Thank you for sharing your story so far. I am extremely sorry to hear of your diagnosis and a...
by PCUK Nurse Rachel R
Wed Jun 06, 2018 3:39 pm
Forum: Family, friends and carers
Topic: Mum Diagnosis
Replies: 13
Views: 1721

Re: Mum Diagnosis

Hi Margie I also wanted to welcome you to the forum on behalf of the Nurses here. Unfortunately we do often find that people with pancreatic cancer do have a complex diagnostic pathway. It does sound as if Mum has been diagnosed on the basis of her CT scan but it is the histological diagnosis that i...
by PCUK Nurse Rachel R
Tue May 22, 2018 2:47 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 30
Views: 5531

Re: This cruel disease

Hi KeithKerry That is so good to hear that your Daughter is keeping so well. Well done her. As you say another treatment down. I do wish you all the best as she heads towards the re-staging scan. With Kind wishes Rachel Rachel Richardson Pancreatic Cancer Specialist Nurse Support Team Pancreatic Can...
by PCUK Nurse Rachel R
Tue May 22, 2018 2:41 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 40
Views: 11296

Re: Concerned husband

Hi Saxon That is great news to hear. You must both be extremely pleased with that outcome. In terms of the POLO trial I have a couple of other links here for you to look at. I wasn't sure if you have seen these. To be honest there is probably not a great deal more information contained within them b...
by PCUK Nurse Rachel R
Mon Apr 23, 2018 2:27 pm
Forum: Advanced pancreatic cancer
Topic: Mum diagnosed with advanced PC - head is in a whirlwind
Replies: 7
Views: 2286

Re: Mum diagnosed with advanced PC - head is in a whirlwind

Dear jchops Thanks so much for your post, its a big step putting your story out there. Welcome to the forum on behalf of the Nursing team. I am sorry for Mum's diagnosis of pancreatic cancer. Both Mum and you sound as if you have an awful lot on your plate and I do hope that you can access the suppo...
by PCUK Nurse Rachel R
Mon Apr 23, 2018 2:19 pm
Forum: Family, friends and carers
Topic: Family PC
Replies: 5
Views: 4641

Re: Family PC

Hi there Elle Thanks for posting. I am sorry that you are feeling anxious at the moment especially in regard to your family history of pancreatic cancer. As you may be aware, sometimes cancers are said to 'run in the family'. This means there is a faulty gene in the family that is linked to a type o...
by PCUK Nurse Rachel R
Mon Apr 23, 2018 2:06 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 30
Views: 5531

Re: This cruel disease

Dear KeithKerry I just wanted to welcome you to the forum on behalf of the Nurses here. What an amazing post, thank you for finding such bravery to express your thoughts and feelings. I am sure it will have touched and inspired many. I do wish your Daughter all the very best as she continues with he...
by PCUK Nurse Rachel R
Wed Mar 28, 2018 2:32 pm
Forum: General chat
Topic: Protandim
Replies: 2
Views: 1374

Re: Protandim

Hi there I'm afraid that this is not a product that I have come across. I'm certainly not aware of any people that have used it. Having a quick look I can see that it claims to be a product that aims 'to boost cognitive performance and brain health, as well as reduce oxidative stress that contribute...

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