Search found 38 matches

by PCUK Nurse Rachel R
Fri Feb 15, 2019 4:17 pm
Forum: General chat
Topic: Sign the petition
Replies: 15
Views: 3458

Re: Sign the petition

Some of you may now know the very sad news that Erika Vincent, who has been at the forefront of our Demand Faster Treatment campaign, passed away last week. All of our thoughts are with her loved ones at this extremely difficult time. I’m sure so many of you will be aware of Erika and her amazing, i...
by PCUK Nurse Rachel R
Fri Feb 15, 2019 4:15 pm
Forum: Advanced pancreatic cancer
Topic: RIP Erika xxx
Replies: 7
Views: 434

Re: RIP Erika xxx

Thank you all for all your lovely comments about Erika. She was such an amazing and brave lady who has helped so many with her posts on the forum, always so keen to offer help and support to those affected. She has inspired and spurred on the pancreatic cancer community and I have no doubt that she ...
by PCUK Nurse Rachel R
Mon Feb 11, 2019 1:56 pm
Forum: Advanced pancreatic cancer
Topic: My Mum
Replies: 7
Views: 869

Re: My Mum

Thanks Proud Wife for your lovely words and wise advice. Hi LST, I also wanted to welcome you to the forum on behalf of the Nurses. I'm sorry also to hear of your Mum's diagnosis and all the anxiety and upset that you are going through. Please know that we are here for you and stand with you in the ...
by PCUK Nurse Rachel R
Mon Jan 14, 2019 4:25 pm
Forum: Advanced pancreatic cancer
Topic: This evil disease
Replies: 14
Views: 3891

Re: This evil disease

Dear drtzzr1100, I'm so very sorry to hear of the loss of your brave Husband. On behalf of us nurses here, we would like to extend our deepest sympathies to you and your family - please know that you are in our thoughts. It is lovely to hear that he was at home surrounded by all his Family. Thinking...
by PCUK Nurse Rachel R
Fri Jan 11, 2019 3:22 pm
Forum: Ask the nurse
Topic: Folfirinox
Replies: 2
Views: 845

Re: Folfirinox

Hi there, Folfirinox was first introduced to the UK around 2012, initially this was only given to very fit and younger patients (initially 50 yrs and under). This was well tolerated and had some impressive results in some patients and over the last years older patients have had access to this too. H...
by PCUK Nurse Rachel R
Fri Jan 04, 2019 4:39 pm
Forum: Patient Experience Forum
Topic: Any information would help
Replies: 5
Views: 2196

Re: Any information would help

Hi Week20, A big welcome to the forum on behalf of the Nurses, I do hope you'll find valuable support here. I am sorry to hear of your recent diagnosis. Yes I can only imagine how many different things are going through your head as you contemplate the road ahead, I'm sure lots of the forum family c...
by PCUK Nurse Rachel R
Thu Jan 03, 2019 4:57 pm
Forum: Family, friends and carers
Topic: Lots of questions about this awful disease :(
Replies: 1
Views: 835

Re: Lots of questions about this awful disease :(

Hi there shazc1964, Welcome to the forum on behalf on the Nurses here at the charity, I know that this not a place you would wish to find yourself in but I do hope that you find some support and care here. I'm sure folk will make you feel very welcome. I am very sorry to hear of your Mum's diagnosis...
by PCUK Nurse Rachel R
Thu Jan 03, 2019 4:47 pm
Forum: Patient Experience Forum
Topic: Distal pancreatectomy operation
Replies: 3
Views: 966

Re: Distal pancreatectomy operation

Hi there Lesfleur, Welcome to the forum on behalf of the Nurses here. I'm sure one of the 'forum family' will soon respond to your post. I am sorry for the difficult time you are going through at the moment and the anxiety you are experiencing. Please do feel able to call or email us Nurses on the s...
by PCUK Nurse Rachel R
Wed Jan 02, 2019 4:01 pm
Forum: Advanced pancreatic cancer
Topic: This evil disease
Replies: 14
Views: 3891

Re: This evil disease

Dear drtzzr1100, I'm incredibly sorry to hear this news. My heart goes out to you all. Please know we are here if you want to talk. Thinking of you, Rachel Rachel Richardson Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurse@pancreaticcancer.org.uk support line: 0808 8...
by PCUK Nurse Rachel R
Fri Dec 28, 2018 2:50 pm
Forum: Advanced pancreatic cancer
Topic: This evil disease
Replies: 14
Views: 3891

Re: This evil disease

Hi drtzzr1100 I am sorry to hear that your Husband has been deteriorating very recently. I hope the visit from Macmillan yesterday went well. Please know that the nurses are here on the support line to offer advice and support, or even just to listen, the contact details are in the strip below. Thin...
by PCUK Nurse Rachel R
Tue Dec 04, 2018 3:06 pm
Forum: Ask the nurse
Topic: Conflicting advice/medicine
Replies: 3
Views: 1713

Re: Conflicting advice/medicine

Hi The_petal, It's Rachel here, one of the support line nurses. I will email you to try and help answer your queries - hope that's okay. Kind wishes, Rachel Rachel Richardson Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurse@pancreaticcancer.org.uk support line: 0808 ...
by PCUK Nurse Rachel R
Thu Nov 15, 2018 4:14 pm
Forum: Ask the nurse
Topic: Large liver
Replies: 4
Views: 1516

Re: Large liver

Hi Theresa It's Rachel here, one of the support line nurses. Please do give us a call if you would like to talk more about the enlarged liver that you mention, we'd be more than happy to have a chat. Contact details are in the signature below. Best wishes, Rachel Rachel Richardson Pancreatic Cancer ...
by PCUK Nurse Rachel R
Fri Nov 09, 2018 3:07 pm
Forum: General chat
Topic: ADVICE ON GOING TO HEIDLEBERG GREMANY FOR TREATMENT
Replies: 1
Views: 1296

Re: ADVICE ON GOING TO HEIDLEBERG GREMANY FOR TREATMENT

Hi Rachelneal, I wanted to say hi and welcome you to the forum here on behalf of the Nurses. I do hope that you'll find valuable support here. I am very sorry to hear of Mum's diagnosis of pancreatic cancer. I imagine this must be a very difficult and anxious time for you all. Would it be helpful fo...
by PCUK Nurse Rachel R
Wed Oct 24, 2018 3:05 pm
Forum: Advanced pancreatic cancer
Topic: Diagnosed too late for treatment
Replies: 17
Views: 10850

Re: Diagnosed too late for treatment

Dear Kimmac, I just wanted to echo people's messages and send our sincere condolences to you from the nurses here. We are thinking of you and your Family. You have been so brave and courageous in your Husband's journey. Our hearts go out to you. We are here if you ever wish to talk or to simply be a...
by PCUK Nurse Rachel R
Fri Oct 12, 2018 12:02 pm
Forum: Ask the nurse
Topic: Pancreatic cancer with lung secondaries
Replies: 2
Views: 2593

Re: Pancreatic cancer with lung secondaries

Hi Maryjd I'm Rachel, one of the nurses that works on the support line. I just wanted to respond to your post to welcome you to the forum, I do hope that you'll find valuable support here. I am sorry to hear of your SIL's diagnosis of pancreatic cancer, I imagine this must be a very anxious time for...

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