Search found 38 matches
- Fri Feb 15, 2019 4:17 pm
- Forum: General chat
- Topic: Sign the petition
- Replies: 15
- Views: 3458
Re: Sign the petition
Some of you may now know the very sad news that Erika Vincent, who has been at the forefront of our Demand Faster Treatment campaign, passed away last week. All of our thoughts are with her loved ones at this extremely difficult time. I’m sure so many of you will be aware of Erika and her amazing, i...
- Fri Feb 15, 2019 4:15 pm
- Forum: Advanced pancreatic cancer
- Topic: RIP Erika xxx
- Replies: 7
- Views: 434
Re: RIP Erika xxx
Thank you all for all your lovely comments about Erika. She was such an amazing and brave lady who has helped so many with her posts on the forum, always so keen to offer help and support to those affected. She has inspired and spurred on the pancreatic cancer community and I have no doubt that she ...
- Mon Feb 11, 2019 1:56 pm
- Forum: Advanced pancreatic cancer
- Topic: My Mum
- Replies: 7
- Views: 869
Re: My Mum
Thanks Proud Wife for your lovely words and wise advice. Hi LST, I also wanted to welcome you to the forum on behalf of the Nurses. I'm sorry also to hear of your Mum's diagnosis and all the anxiety and upset that you are going through. Please know that we are here for you and stand with you in the ...
- Mon Jan 14, 2019 4:25 pm
- Forum: Advanced pancreatic cancer
- Topic: This evil disease
- Replies: 14
- Views: 3891
Re: This evil disease
Dear drtzzr1100, I'm so very sorry to hear of the loss of your brave Husband. On behalf of us nurses here, we would like to extend our deepest sympathies to you and your family - please know that you are in our thoughts. It is lovely to hear that he was at home surrounded by all his Family. Thinking...
- Fri Jan 11, 2019 3:22 pm
- Forum: Ask the nurse
- Topic: Folfirinox
- Replies: 2
- Views: 845
Re: Folfirinox
Hi there, Folfirinox was first introduced to the UK around 2012, initially this was only given to very fit and younger patients (initially 50 yrs and under). This was well tolerated and had some impressive results in some patients and over the last years older patients have had access to this too. H...
- Fri Jan 04, 2019 4:39 pm
- Forum: Patient Experience Forum
- Topic: Any information would help
- Replies: 5
- Views: 2196
Re: Any information would help
Hi Week20, A big welcome to the forum on behalf of the Nurses, I do hope you'll find valuable support here. I am sorry to hear of your recent diagnosis. Yes I can only imagine how many different things are going through your head as you contemplate the road ahead, I'm sure lots of the forum family c...
- Thu Jan 03, 2019 4:57 pm
- Forum: Family, friends and carers
- Topic: Lots of questions about this awful disease :(
- Replies: 1
- Views: 835
Re: Lots of questions about this awful disease :(
Hi there shazc1964, Welcome to the forum on behalf on the Nurses here at the charity, I know that this not a place you would wish to find yourself in but I do hope that you find some support and care here. I'm sure folk will make you feel very welcome. I am very sorry to hear of your Mum's diagnosis...
- Thu Jan 03, 2019 4:47 pm
- Forum: Patient Experience Forum
- Topic: Distal pancreatectomy operation
- Replies: 3
- Views: 966
Re: Distal pancreatectomy operation
Hi there Lesfleur, Welcome to the forum on behalf of the Nurses here. I'm sure one of the 'forum family' will soon respond to your post. I am sorry for the difficult time you are going through at the moment and the anxiety you are experiencing. Please do feel able to call or email us Nurses on the s...
- Wed Jan 02, 2019 4:01 pm
- Forum: Advanced pancreatic cancer
- Topic: This evil disease
- Replies: 14
- Views: 3891
Re: This evil disease
Dear drtzzr1100, I'm incredibly sorry to hear this news. My heart goes out to you all. Please know we are here if you want to talk. Thinking of you, Rachel Rachel Richardson Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurse@pancreaticcancer.org.uk support line: 0808 8...
- Fri Dec 28, 2018 2:50 pm
- Forum: Advanced pancreatic cancer
- Topic: This evil disease
- Replies: 14
- Views: 3891
Re: This evil disease
Hi drtzzr1100 I am sorry to hear that your Husband has been deteriorating very recently. I hope the visit from Macmillan yesterday went well. Please know that the nurses are here on the support line to offer advice and support, or even just to listen, the contact details are in the strip below. Thin...
- Tue Dec 04, 2018 3:06 pm
- Forum: Ask the nurse
- Topic: Conflicting advice/medicine
- Replies: 3
- Views: 1713
Re: Conflicting advice/medicine
Hi The_petal, It's Rachel here, one of the support line nurses. I will email you to try and help answer your queries - hope that's okay. Kind wishes, Rachel Rachel Richardson Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurse@pancreaticcancer.org.uk support line: 0808 ...
- Thu Nov 15, 2018 4:14 pm
- Forum: Ask the nurse
- Topic: Large liver
- Replies: 4
- Views: 1516
Re: Large liver
Hi Theresa It's Rachel here, one of the support line nurses. Please do give us a call if you would like to talk more about the enlarged liver that you mention, we'd be more than happy to have a chat. Contact details are in the signature below. Best wishes, Rachel Rachel Richardson Pancreatic Cancer ...
- Fri Nov 09, 2018 3:07 pm
- Forum: General chat
- Topic: ADVICE ON GOING TO HEIDLEBERG GREMANY FOR TREATMENT
- Replies: 1
- Views: 1296
Re: ADVICE ON GOING TO HEIDLEBERG GREMANY FOR TREATMENT
Hi Rachelneal, I wanted to say hi and welcome you to the forum here on behalf of the Nurses. I do hope that you'll find valuable support here. I am very sorry to hear of Mum's diagnosis of pancreatic cancer. I imagine this must be a very difficult and anxious time for you all. Would it be helpful fo...
- Wed Oct 24, 2018 3:05 pm
- Forum: Advanced pancreatic cancer
- Topic: Diagnosed too late for treatment
- Replies: 17
- Views: 10850
Re: Diagnosed too late for treatment
Dear Kimmac, I just wanted to echo people's messages and send our sincere condolences to you from the nurses here. We are thinking of you and your Family. You have been so brave and courageous in your Husband's journey. Our hearts go out to you. We are here if you ever wish to talk or to simply be a...
- Fri Oct 12, 2018 12:02 pm
- Forum: Ask the nurse
- Topic: Pancreatic cancer with lung secondaries
- Replies: 2
- Views: 2593
Re: Pancreatic cancer with lung secondaries
Hi Maryjd I'm Rachel, one of the nurses that works on the support line. I just wanted to respond to your post to welcome you to the forum, I do hope that you'll find valuable support here. I am sorry to hear of your SIL's diagnosis of pancreatic cancer, I imagine this must be a very anxious time for...