Search found 45 matches

by PCUK Nurse Rachel R
Wed Mar 20, 2019 3:36 pm
Forum: Family, friends and carers
Topic: Advice please, NET
Replies: 1
Views: 288

Re: Advice please, NET

Hi jac98, Welcome to the forum on behalf of the Nursing team here at the charity. I am sorry to hear of your Dad’s diagnosis of a pancreatic neuroendocrine tumour. I imagine it must be incredibly hard and often frustrating to live quite a distance from your parents and not be able to be there at the...
by PCUK Nurse Rachel R
Wed Mar 20, 2019 2:50 pm
Forum: Ask the nurse
Topic: Unsure diagnosis
Replies: 1
Views: 310

Re: Unsure diagnosis

Hi Soo123, I'm sorry to hear that you've had a frustrating time over recent months and that you are still bothered with abdominal and back pain and other symptoms too. I imagine this is having a significant impact on you day to day. It may be best if we speak or email directly if you'd find this hel...
by PCUK Nurse Rachel R
Wed Mar 20, 2019 2:33 pm
Forum: Patient Experience Forum
Topic: Result worries
Replies: 10
Views: 1299

Re: Result worries

Hi Mohammed, I'm sorry that you're going through such an incredibly anxious time at the moment. It is positive that you are having all the appropriate investigations as you should and that they seem to be happening in a timely manner. Some Hospitals do not offer an EUS service so that is likely to r...
by PCUK Nurse Rachel R
Wed Mar 20, 2019 12:32 pm
Forum: Treatment & side effects
Topic: Affect of morphine
Replies: 1
Views: 235

Re: Affect of morphine

Hi The_petal, Doing a little search of the literature I see there is some conflicting evidence out there regarding this, some papers even suggest that it can increase white blood cells. However I think it is unlikely that a taking low dose of morphine will be contributing to your low neutrophil coun...
by PCUK Nurse Rachel R
Wed Mar 20, 2019 11:04 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 90
Views: 38377

Re: This cruel disease

Hi there KeithKerry, I’m sorry to be reading your post. You must all be incredibly sad and disheartened that despite what she has gone through your Daughter’s treatment has not had the impact you and all of us on the forum were hoping for. I just wanted to let you know that we are thinking of you an...
by PCUK Nurse Rachel R
Mon Mar 04, 2019 2:06 pm
Forum: Advanced pancreatic cancer
Topic: My Mum
Replies: 15
Views: 2946

Re: My Mum

Hi LST, I'm sorry to hear Mum's pain is not well controlled at the moment. I imagine you must be incredibly anxious for her. Do give us a call LST or send an email if you would like to discuss directly with us - details below. Kind wishes, Rachel Rachel Richardson Pancreatic Cancer Specialist Nurse ...
by PCUK Nurse Rachel R
Fri Mar 01, 2019 5:01 pm
Forum: Treatment & side effects
Topic: Looking for an integrative oncologist in the UK
Replies: 2
Views: 775

Re: Looking for an integrative oncologist in the UK

Hi there, Lisa47, I’m very sorry to hear that your Mom has been diagnosed with advanced pancreatic cancer. I can appreciate that you are going through an incredibly anxious time as you try and navigate your way through treatment options and do all you can to help Mom. I will send you an email so tha...
by PCUK Nurse Rachel R
Fri Feb 15, 2019 4:17 pm
Forum: General chat
Topic: Sign the petition
Replies: 15
Views: 4280

Re: Sign the petition

Some of you may now know the very sad news that Erika Vincent, who has been at the forefront of our Demand Faster Treatment campaign, passed away last week. All of our thoughts are with her loved ones at this extremely difficult time. I’m sure so many of you will be aware of Erika and her amazing, i...
by PCUK Nurse Rachel R
Fri Feb 15, 2019 4:15 pm
Forum: Advanced pancreatic cancer
Topic: RIP Erika xxx
Replies: 7
Views: 1089

Re: RIP Erika xxx

Thank you all for all your lovely comments about Erika. She was such an amazing and brave lady who has helped so many with her posts on the forum, always so keen to offer help and support to those affected. She has inspired and spurred on the pancreatic cancer community and I have no doubt that she ...
by PCUK Nurse Rachel R
Mon Feb 11, 2019 1:56 pm
Forum: Advanced pancreatic cancer
Topic: My Mum
Replies: 15
Views: 2946

Re: My Mum

Thanks Proud Wife for your lovely words and wise advice. Hi LST, I also wanted to welcome you to the forum on behalf of the Nurses. I'm sorry also to hear of your Mum's diagnosis and all the anxiety and upset that you are going through. Please know that we are here for you and stand with you in the ...
by PCUK Nurse Rachel R
Mon Jan 14, 2019 4:25 pm
Forum: Advanced pancreatic cancer
Topic: This evil disease
Replies: 14
Views: 4531

Re: This evil disease

Dear drtzzr1100, I'm so very sorry to hear of the loss of your brave Husband. On behalf of us nurses here, we would like to extend our deepest sympathies to you and your family - please know that you are in our thoughts. It is lovely to hear that he was at home surrounded by all his Family. Thinking...
by PCUK Nurse Rachel R
Fri Jan 11, 2019 3:22 pm
Forum: Ask the nurse
Topic: Folfirinox
Replies: 2
Views: 1077

Re: Folfirinox

Hi there, Folfirinox was first introduced to the UK around 2012, initially this was only given to very fit and younger patients (initially 50 yrs and under). This was well tolerated and had some impressive results in some patients and over the last years older patients have had access to this too. H...
by PCUK Nurse Rachel R
Fri Jan 04, 2019 4:39 pm
Forum: Patient Experience Forum
Topic: Any information would help
Replies: 5
Views: 2603

Re: Any information would help

Hi Week20, A big welcome to the forum on behalf of the Nurses, I do hope you'll find valuable support here. I am sorry to hear of your recent diagnosis. Yes I can only imagine how many different things are going through your head as you contemplate the road ahead, I'm sure lots of the forum family c...
by PCUK Nurse Rachel R
Thu Jan 03, 2019 4:57 pm
Forum: Family, friends and carers
Topic: Lots of questions about this awful disease :(
Replies: 1
Views: 1043

Re: Lots of questions about this awful disease :(

Hi there shazc1964, Welcome to the forum on behalf on the Nurses here at the charity, I know that this not a place you would wish to find yourself in but I do hope that you find some support and care here. I'm sure folk will make you feel very welcome. I am very sorry to hear of your Mum's diagnosis...
by PCUK Nurse Rachel R
Thu Jan 03, 2019 4:47 pm
Forum: Patient Experience Forum
Topic: Distal pancreatectomy operation
Replies: 3
Views: 1256

Re: Distal pancreatectomy operation

Hi there Lesfleur, Welcome to the forum on behalf of the Nurses here. I'm sure one of the 'forum family' will soon respond to your post. I am sorry for the difficult time you are going through at the moment and the anxiety you are experiencing. Please do feel able to call or email us Nurses on the s...

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