Search found 24 matches

by Saxon
Mon Apr 08, 2019 4:33 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 52
Views: 33281

Re: Concerned husband

Just to let you know that my wife sadly succumbed to complications related to her pancreatic cancer on 29th March 2019. The end was quite sudden, with being admitted to hospital on the Monday and everyday there was a plan to take some action to address her ailments, but on the Friday morning, with h...
by Saxon
Tue Mar 26, 2019 1:02 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 52
Views: 33281

Re: Concerned husband

It’s been a very up and down few weeks since I last posted. My wife finally started the parp inhibitor drug and has been on that for 4 weeks. In the meantime the pain management initially improved and then went down hill together with a loss of appetite and increased sickness. The sickness got so ba...
by Saxon
Fri Feb 08, 2019 2:18 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 52
Views: 33281

Re: Concerned husband

Jeni, My wife's pain moves around, but can be in the upper stomach and then in her back on either side. The oncologist says it's to do with the celiac axis being affected. They're talking about doing something to anaesthetise the celiac access. As well as pain medication (cocodamol and oramorph), my...
by Saxon
Wed Feb 06, 2019 2:10 pm
Forum: Family, friends and carers
Topic: loosing hope
Replies: 9
Views: 3558

Re: loosing hope

Charlie, Read your story and really feel for you. You have obviously been blessed with loving parents and a devoted father who is full of life and been a strong and positive influence on your life. The journey ahead will not be easy, but he has the benefit of a loving daughter and family that will s...
by Saxon
Wed Feb 06, 2019 1:55 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 52
Views: 33281

Re: Concerned husband

Not posted for a while. Whoever thought of comparing this journey to a roller coaster ride couldn't have hit the nail on the head more precisely. My wife got the trial parp inhibitor drug and started back in August 2018. Things went well, she regained her normal self after the Folfirinox and returne...
by Saxon
Mon Jul 09, 2018 11:44 am
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 52
Views: 33281

Re: Concerned husband

Morning! Another recovery based question My wife has been accepted onto the Parp inhibitor trial, but her platelet levels need to be over 100 and they are currently around 75. Assuming that this is a side effect of th chemo, is their recovery period quick or slow or does it depend on the individual?...
by Saxon
Tue Jun 26, 2018 12:12 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 52
Views: 33281

Re: Concerned husband

Afternoon, Just a quick question. My wife has now complete her chemo sessions and is starting her recovery from the side effects of that. She is suffering quite badly from numbness in her fingers and feet, we knew that this was a side effect. Do you know how long this will take to recover, or is it ...
by Saxon
Fri Jun 15, 2018 7:58 am
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 52
Views: 33281

Re: Concerned husband

Thanks for the responses. Not been in a good place recently, so not been logging on much. My wife has 1 chemo treatment left out of 12. It's really taking it's toll on her, so will be glad to finish that. The tumour markers have gone up again a little (we don't get told the actual figures so that we...
by Saxon
Tue May 22, 2018 9:07 am
Forum: Family, friends and carers
Topic: Today was a hard day
Replies: 4
Views: 4396

Re: Today was a hard day

Definitely you should tell them. We told our children that my wife had it before anyone else. They will probably know that something is going on by your demeanour and be wondering what it is. It may sound selfish, but also by telling them it's one less thing for you to stress about and they will be ...
by Saxon
Tue May 22, 2018 9:00 am
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 52
Views: 33281

Re: Concerned husband

Morning! We've had some good news back from the latest scan results. They are now showing a 25% reduction in the main tumour and some reduction in the secondary's on the liver. This means that she is now eligible for the PARP inhibitor trial - I've been sent a link from this site and it is the POLO ...
by Saxon
Wed May 09, 2018 9:57 am
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 52
Views: 33281

Re: Concerned husband

My wife had her latest treatment yesterday. Just had a nurse led consultation. She is now having to have an anti histamine drip as having allergic reactions to the chemo, but it all went well. The plan is for a scan next week to see what the treatment is doing. All things going well, she is being pu...
by Saxon
Thu Apr 26, 2018 3:58 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 52
Views: 33281

Re: Concerned husband

Jeni,

Thanks, will ask at next appointment.

The consultant did say that it's not currently part of a clinical trial.
by Saxon
Tue Apr 24, 2018 2:57 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 52
Views: 33281

Re: Concerned husband

Update. Sticking with the folfirinox and she will be having another scan after the next treatment. Her normal consultant agrees that as the symptoms are reducing and tumour markers coming down, it must be working. Everyone is excited as genetic tests have shown that she has the BRC A genetic mutatio...
by Saxon
Fri Apr 13, 2018 5:03 pm
Forum: Family, friends and carers
Topic: This seems to be all happening too fast
Replies: 7
Views: 6414

Re: This seems to be all happening too fast

Derek's Daughter, My wife is currently undergoing chemo for PC and she has gone from a seemingly healthy wife and mother with a career to a shadow of her former self. She previously survived breast cancer, but that was nothing like this. Everyone uses the words 'fast' and 'roller coaster', but never...
by Saxon
Thu Apr 12, 2018 5:34 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 52
Views: 33281

Re: Concerned husband

Got the scan results on Monday. The tumours have grown quite a lot and the radiologists view is that the chemo is doing nothing. They're recommending a change to another chemo drug. All very numb at the moment. Are the other drugs as effective, or is it a case of you can be lucky and have one that d...

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