Search found 120 matches

by Support Team
Thu Oct 04, 2018 5:40 pm
Forum: News from Pancreatic Cancer UK
Topic: Patient & public evening event at the Royal Marsden in London - 15th November
Replies: 0
Views: 1138

Patient & public evening event at the Royal Marsden in London - 15th November

The Royal Marsden Hospital in London will be hosting an evening of the latest clinical research innovations and what this means for cancer care and treatment on Thursday 15th November from 5pm - 7.45pm. This open evening is an opportunity for patients, their families and carers, members of the local...
by Support Team
Thu Jun 28, 2018 12:09 pm
Forum: News from Pancreatic Cancer UK
Topic: Update on Creon stock
Replies: 0
Views: 1219

Update on Creon stock

Pharmaceutical company, Mylan have announced that supplies of pancreatic enzyme supplement, Creon, of 25,000 and 40,000 capsules have been received in the UK. This may take some time to be sent to your local pharmacy . If you have any concerns about your own Creon supply and how to manage this durin...
by Support Team
Mon Apr 30, 2018 11:03 am
Forum: News from Pancreatic Cancer UK
Topic: New booklet about end of life care
Replies: 0
Views: 1622

New booklet about end of life care

You may have already seen on social media and our website that we have recently produced a new booklet, Pancreatic cancer and end of life care. We have produced this because people have told us that they struggle to find specific information about what might happen in the last few months of life and...
by Support Team
Mon Mar 05, 2018 4:00 pm
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 27232

Re: Don’t know where to start

Dear Christine 49, I am so sorry to hear that Mum has had an awful time recently. These last few weeks must have been very difficult for you. I hope you dont mind, but there appears to be several things going on for Mum right now, so I will email you separately....I hope this is okay? With kindest r...
by Support Team
Mon Jan 22, 2018 3:27 pm
Forum: News from Pancreatic Cancer UK
Topic: Share your cancer experience with The Christie, Manchester as part of their 100 Voices project
Replies: 0
Views: 2333

Share your cancer experience with The Christie, Manchester as part of their 100 Voices project

In 2018, The Christie is launching a new project about reflecting on and sharing experiences of cancer. They are asking patients and carers to become one of their '100 voices'. Each 'Voice' will be asked to describe their experience of cancer using only one word. So if you are a Christie patient, or...
by Support Team
Fri Aug 04, 2017 10:53 am
Forum: News from Pancreatic Cancer UK
Topic: Access to Abraxane granted in England
Replies: 0
Views: 4205

Access to Abraxane granted in England

We are delighted to announce that the National Institute for Health and Care Excellence (NICE) has today [4 August] notified us of their landmark decision to grant access to the life-extending drug, Abraxane, for people with advanced pancreatic cancer in England. This news is a major success for eve...
by Support Team
Wed Jul 12, 2017 2:23 pm
Forum: News from Pancreatic Cancer UK
Topic: Discussion forum feedback survey
Replies: 0
Views: 3818

Discussion forum feedback survey

Dear All, We are always interested to hear what our forum users think and would really appreciate it if you could take a moment to complete our discussion forum feedback survey. Whether you use the forum to post or contact others on the forum, or if you read the forum without posting, we are very ke...
by Support Team
Wed Jun 07, 2017 9:45 am
Forum: News from Pancreatic Cancer UK
Topic: Upcoming support group meetings
Replies: 0
Views: 4481

Upcoming support group meetings

Have you seen our Support Groups map on our website? Our map allows you to search for pancreatic cancer Support Groups near you: https://www.pancreaticcancer.org.uk/information-and-support/get-support/support-groups/support-groups-map/ You can also keep up-to-date with any forthcoming meetings here:...
by Support Team
Mon May 22, 2017 10:30 am
Forum: Guidance and rules
Topic: Aims and guidelines of the forum
Replies: 0
Views: 10174

Aims and guidelines of the forum

The forum have been set up for people affected by pancreatic cancer to offer and receive support. The aims of the forum are to: • Provide practical and emotional support • Share real life experiences with a group of people who understand and are going through similar experiences themselves • Provide...
by Support Team
Mon May 22, 2017 10:24 am
Forum: Guidance and rules
Topic: How we moderate
Replies: 0
Views: 6532

How we moderate

How we moderate Our team of specialist nurses moderate the forum during the working week. Our aim when moderating is to keep the forum safe and legal and the nurses aim to monitor all messages to preserve the supportive nature of the forums. The nurses will also occasionally post on the forums or em...
by Support Team
Mon May 22, 2017 10:21 am
Forum: Guidance and rules
Topic: Using the forums and online safety
Replies: 0
Views: 6979

Using the forums and online safety

Remember your message can be seen by anyone browsing the World Wide Web. All messages are indexed by search engines such as Google. This ensures that the site continues to attract new users and the forums remain fresh, but bear this in mind before you go into detail about your diagnosis, treatment o...
by Support Team
Wed Mar 29, 2017 11:42 am
Forum: Guidance and rules
Topic: Registering on the forum
Replies: 0
Views: 11108

Registering on the forum

To register with the Pancreatic Cancer UK Forum, click on ‘register’ on the top right hand side of the main forum page. You will need to agree with our terms and conditions and community guidelines to proceed. You will be required to choose a unique username and a password and have a valid email add...
by Support Team
Wed Mar 29, 2017 11:41 am
Forum: Guidance and rules
Topic: How to post messages
Replies: 0
Views: 7454

How to post messages

Before you post on the forum, make sure you are logged in. You can then either start a new topic or reply to other posts. Selecting the “New Topic” button in a forum will take you to the posting screen. After submitting your post, a new topic will appear in that forum with your post as the last disp...
by Support Team
Mon Jan 16, 2017 12:34 pm
Forum: Family, friends and carers
Topic: Thank you and our story... but we are not that far yet!
Replies: 433
Views: 124716

Re: Thank you and our story... but we are not that far yet!

Dandygal76 wrote: > Still no results! I will be kicking some arse tomorrow and so we will have > them come what may. > > I am crusading (when am I not)! I have e-mailed on various fronts and > requested a 10 minute slot at the next PC parliamentary committee to give a > 10 minute presentation from t...
by Support Team
Fri Nov 18, 2016 3:43 pm
Forum: Treatment & side effects
Topic: Irinotecan hydrochloride nanoliposomal injections
Replies: 11
Views: 9937

Re: Irinotecan hydrochloride nanoliposomal injections

Hi all,

Pancreatic Cancer UK is preparing responses to current consultations about Onivyde and will be considering all comments on this thread when doing so, so please keep them coming.

Kevin Armstrong
Head of Policy and Campaigns (Maternity Cover)

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