Search found 34 matches

by Christine49
Sat Mar 10, 2018 5:21 pm
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 21568

Re: Don’t know where to start

Thank you for the replies xx And thank you to the nurses for the emails xx They’ve started mum on hydrocortisone and fludrocortisone as well as the dexamethasone as they are concerned about her adrenal function. So far it’s not really made any difference but her BP is slightly better, still dropping...
by Christine49
Sat Mar 03, 2018 2:02 pm
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 21568

Re: Don’t know where to start

Hi Sandra, Thank you for replying. Xx Mum seems to have been wiped out pretty much since diagnosis (well, a bit before that too) and was low before she started her chemo and then that has basically confined her to bed ever since. She is on strong pain meds and I think this is giving her quite bad si...
by Christine49
Thu Mar 01, 2018 12:51 pm
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 21568

Re: Don’t know where to start

Thank you Sandra for your reply. That’s really interesting and I have relayed it to mum. She’s been off chemo totally since Sunday now but still confined to bed. They have switched her meds over from slow release morphine to fentanyl patches as well and reduced her gabapentin due to side effects so ...
by Christine49
Wed Feb 28, 2018 9:48 pm
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 21568

Re: Don’t know where to start

Thank you for your thoughtful replies. We’ve had an awful few days. The levopromide injections they gave her to stop her being sick on Sunday night / Monday morning gave mum extremely low blood pressure on rising and we struggled to get her to the toilet when she needed a #2 as she felt very faint. ...
by Christine49
Sun Feb 25, 2018 10:09 pm
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 21568

Re: Don’t know where to start

Hi Dianne, thank you for the reply. The dietician has been in touch a few times but mum cannot follow her advice as has basically no appetite. She was very sick on Thursday night after the Gem round of chemo and had pain so I encouraged her to have Sevredol as advised and unfortunately this seemed t...
by Christine49
Mon Feb 19, 2018 7:09 pm
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 21568

Re: Don’t know where to start

Thanks Jeni, I will definitely clarify about the tablets when we are in for the IV chemo this week. I am sure it was 21 days as that makes more sense. Well I put a call into the chemo nurses on Friday about the steroids but no consultants available so after a bit of chasing around today the decision...
by Christine49
Fri Feb 16, 2018 10:49 am
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 21568

Re: Don’t know where to start

Hi Jeni, Thanks for confirming about the Creon. She’s generally upped her intake of them but then this week her appetite has vanished again. Yes we were given a sheet with the side effects originally, which I have now dug out of the folder and have had a read of as you’ve reminded me we had it. She ...
by Christine49
Thu Feb 15, 2018 11:51 am
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 21568

Re: Don’t know where to start

Thank you Mo & Sandra for your replies xxx Well mum didn’t get her chemo again on Tuesday so she still hasn’t started it as she had to go in for a blood transfusion instead because her hemlglobin was too low. It has given her more colour and warmth in her body and a tiny bit more energy but really n...
by Christine49
Mon Feb 12, 2018 8:42 am
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 21568

Re: Don’t know where to start

So it seems it was the iron mainly as it’s all slowing down again and becoming a bit more ‘normal’. Not fully but she’s not constantly in the bathroom now which is a relief however this has now been replaced with utter exhaustion again. I’m not sure if this is because all the extra iron has left her...
by Christine49
Wed Feb 07, 2018 8:08 am
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 21568

Re: Don’t know where to start

Well chemo didn’t happen yesterday. Mum’s still having loose BMs so I called the chemo unit before we were due to leave to discuss it with the nurses and they decided she wasn’t to come in as the tablet part of the chemo causes diarrhoea itself so she needs it more under control before she starts. N...
by Christine49
Mon Feb 05, 2018 5:35 pm
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 21568

Re: Don’t know where to start

Thanks Veema, that’s good to know. Yes I must admit the unit was much brighter and more airy than I imagined when we went in to meet the nurses and everyone was very lovely. She’ll be having Gem/Cap so that’s just a 30 minute IV but we were told we’d be there about 2 hours in all. Dreading the side ...
by Christine49
Mon Feb 05, 2018 5:25 pm
Forum: Family, friends and carers
Topic: Question re time in end stage
Replies: 19
Views: 6673

Re: Question re time in end stage

So sorry to hear this xx
by Christine49
Sat Feb 03, 2018 10:25 pm
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 21568

Re: Don’t know where to start

Hi Veema, Oh gosh that’s a fair bit more than mum was told to take so that’s worth knowing. Things are slowing down a bit in that department now she’s been off of the iron for a couple of days but she’s also slightly upped her Creon in general so could be down to that also. She’s on gabapentin, MST,...
by Christine49
Sat Feb 03, 2018 10:16 pm
Forum: Family, friends and carers
Topic: I am Struggling with Information
Replies: 3
Views: 2314

Re: I am Struggling with Information

Hope you all had better luck with getting some information today but I guess if she doesn’t want to share what is happening then it’s up to her ultimately. I guess it would help just having some idea exactly what her diagnosis is then you can do your own private research but as I have found there’s ...
by Christine49
Fri Feb 02, 2018 7:47 pm
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 21568

Re: Don’t know where to start

Thanks Vee, that’s pretty much what we’re doing currently. The dietician told us 2 with breakfast, lunch and dinner and 1 with a snack or half a Fortisip/juice. So she’s taking one with the first mouthful of food then another one half way through if it’s a main meal and now a further one with desser...

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