Search found 54 matches

by Marmalade
Tue Mar 06, 2018 5:52 pm
Forum: Patient Experience Forum
Topic: Im told I need a total pancreatectomy aged 70yrs
Replies: 6
Views: 2020

Re: Im told I need a total pancreatectomy aged 70yrs

I am not sure the surgeon is the right person to have this conversation with. A surgeon speaks about what he or she as a surgeon can do. It is physically possible for him to remove the pancreas but what you want to know is, what does the recovery entail, what quality of life might you expect given y...
by Marmalade
Tue Jan 16, 2018 12:20 pm
Forum: Family, friends and carers
Topic: Question re time in end stage
Replies: 19
Views: 4309

Re: Question re time in end stage

Dear Staystrong, I'm so sorry you find yourself on here but heartened to know your Mum has already beaten the statistics for survival by a huge margin, she must she must have had great strength and good support from you all. I know how hard it must be for you but sadly no one can tell you how long s...
by Marmalade
Sun Jan 07, 2018 2:11 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 191720

Re: Thanks for sharing your experiences . . .

Darling Mo, The words will not come through the tears, I am reliving these days with you but I remembered this poem which says it all really. We who have kept vigil are all walking beside you and we hope our prayers hold you up when you are too exhausted. Let us come in where you are weeping, friend...
by Marmalade
Sat Jan 06, 2018 6:29 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 191720

Re: Thanks for sharing your experiences . . .

Well done Mo, you got him to the right place and you can rest from caring now and be his wife. You could never let the side down so don't worry about the state of your clothes and hair. Have a tidy up if it makes you feel better and don't if it is too much effort.

Love to you all,

M xxx
by Marmalade
Sat Jan 06, 2018 6:25 pm
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 14902

Re: Don’t know where to start

I think a pad on the bed and some incontinence pants would give your Mum a bit more confidence and it sounds like it would be helpful to have the items listed earlier in the thread to help keep your Mum clean and fresh unless she is able to shower or bathe herself.

Marmalade
by Marmalade
Sat Jan 06, 2018 6:19 pm
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 14902

Re: Don’t know where to start

Hi Christine, This is a question for the GP I'm afraid. As to the fact that your Mum needs help with her personal care, that is what the attendance allowance is for. I strongly suggest that you arrange to go with Mum to the GP or ask the GP to call when you are at home with your Mum so that the appr...
by Marmalade
Wed Jan 03, 2018 8:22 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 191720

Re: Thanks for sharing your experiences . . .

Well done Mo, Good course of action, I'm sure they are the right people to make him comfortable. I've known this happen a few times, just needs a bit more palliative experience to get them back on an even keel. I think you might rest easier too knowing he is safe. Good old Saint Jude x I know what y...
by Marmalade
Tue Jan 02, 2018 11:16 pm
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 14902

Re: Don’t know where to start

Hi Christine, You can ask for an appointment to speak with your Mum's GP. The GP does not have to share information with you but you can give him or her information on what is happening with your Mum at the moment and your concerns about how she will be cared for and kept comfortable. I was not a pa...
by Marmalade
Sun Dec 31, 2017 12:22 am
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 14902

Re: Don’t know where to start

Dear Christine, I'm sure you are finding this all very difficult, it is not easy for any of us. If your Mum's symptoms are under control (all of them) and if she wants to be cared for at home then the hospital will allow her to go home but should ensure a care plan is in place if there is no one abl...
by Marmalade
Fri Dec 29, 2017 7:31 am
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 14902

Re: Don’t know where to start

Dear Christine, So sorry to hear your news, it doesn't matter if it is something you have encountered before, you only have one Mum and it's ghastly news, my heart goes out to you. I'm glad you have found the forum and hope you will get comfort and the information you seek from it. One of the many i...
by Marmalade
Mon Dec 25, 2017 11:38 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 191720

Re: Thanks for sharing your experiences . . .

Dear Mo, I agree about the insulin, I stopped Louis’ if he wasn’t eating otherwise his bloods fell like a stone and made him feel terrible. The nice thing about only having to bother about yourselves is there is no pressure to spend the day in the kitchen with a turkey if what you want is a pyjama d...
by Marmalade
Sat Dec 23, 2017 10:46 pm
Forum: Patient Experience Forum
Topic: Diagnosed in May 2017
Replies: 18
Views: 4490

Re: Diagnosed in May 2017

Hi Tina, Sorry you are having some discomfort following your Radiotherapy. Sadly no one can't say how long the effects are likely to last with you as everyone reacts differently. I guess the nurses on here are away now until after the holiday but perhaps you can telephone the radiotherapy unit for s...
by Marmalade
Fri Dec 22, 2017 9:44 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 191720

Re: Thanks for sharing your experiences . . .

Write whatever you like my lovely, whenever you feel like it and don't feel bad because you went out and sat in the traffic! You are doing your best and that is all anyone can do. You and I both believe that Christmas is about the birth of a baby and it doesn't matter one jot what we eat. Left to my...
by Marmalade
Wed Dec 20, 2017 5:24 pm
Forum: Family, friends and carers
Topic: Help over Christmas
Replies: 4
Views: 2168

Re: Help over Christmas

Hi 9ham, We all worry that we could have/should have done more it's a normal reaction but we do what we can. I think the very best gift your Mum could have is to know that you are well, happy and confident or at least much better than you were. I agree with Didge that you should let your Mum do what...
by Marmalade
Tue Dec 19, 2017 11:01 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 191720

Re: Thanks for sharing your experiences . . .

Well done Mo, you did well xxxx

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