Search found 10 matches

by violetmia
Thu Nov 16, 2017 8:43 am
Forum: Advanced pancreatic cancer
Topic: Metastatic adenocarcinoma
Replies: 19
Views: 16895

Re: Metastatic adenocarcinoma

Hi DandyGal, Very late response, sorry. Yes the Folfox stopped working. Lesions had appeared in his liver, and scan showed more nodules in peritoneum. So he's now on Gemcitabine, but had to miss 2 weeks due to low white blood count. We have applied directly to Celgene, who make Abraxane, to ask if t...
by violetmia
Mon Oct 23, 2017 11:43 am
Forum: Advanced pancreatic cancer
Topic: Metastatic adenocarcinoma
Replies: 19
Views: 16895

Re: Metastatic adenocarcinoma

Hello DG, Sorry I thought I had replied, but my reply seems to have disappeared. Yes, Folfirinox has stopped working. Gem-Cap also didn't work. So Abraxane is the obvious choice. Wales is quite radical idea! I do see the logic though, although its pretty far from where we live, and we have children ...
by violetmia
Mon Oct 23, 2017 10:51 am
Forum: Advanced pancreatic cancer
Topic: Molecular Profiling
Replies: 4
Views: 6180

Re: Molecular Profiling

Dear Stephus, Thank you for your reply. I'm being a bit thick with this forum, and keep getting lost, so my apologies for the late response. We went ahead with the profiling. It revealed that my husband has the KRAS gene (very common) and should therefore be considered for a new trial drug targeting...
by violetmia
Mon Oct 23, 2017 10:42 am
Forum: Advanced pancreatic cancer
Topic: Metastatic adenocarcinoma
Replies: 19
Views: 16895

Re: Metastatic adenocarcinoma

DG, Thanks so much for your reply. Yes Folfirinox has stopped working. Also, the disease progressed on GEM-CAP as adjuvant chemo, so I'm not very optimistic about Gem alone.
Hmmm Wales is a radical idea, but I can see the logic. Thank you.
by violetmia
Fri Oct 20, 2017 6:31 pm
Forum: Advanced pancreatic cancer
Topic: Gem-Abraxane as second-line therapy
Replies: 0
Views: 3128

Gem-Abraxane as second-line therapy

We have just been told that Abraxane is not funded by the NHS if the patient has already had FOLFIRINOX.
Has anyone had Abraxane on the NHS after having had FOLFIRINOX first?
by violetmia
Fri Oct 20, 2017 6:26 pm
Forum: Advanced pancreatic cancer
Topic: Metastatic adenocarcinoma
Replies: 19
Views: 16895

Re: Metastatic adenocarcinoma

We have just been told that Abraxane is not funded by the NHS if the patient has already had FOLFIRINOX.
Has anyone had Abraxane on the NHS after having had FOLFIRINOX first?
by violetmia
Fri Oct 20, 2017 4:59 pm
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 99477

Re: Thoughts from the PC frontline

We have just been told that Abraxane is not funded by the NHS if the patient has already had FOLFIRINOX.
Has anyone had Abraxane on the NHS after having had FOLFIRINOX first?
by violetmia
Thu Sep 28, 2017 8:51 pm
Forum: Advanced pancreatic cancer
Topic: Metastatic adenocarcinoma
Replies: 19
Views: 16895

Re: Metastatic adenocarcinoma

My husband is now 11 months from initial diagnosis at stage 2B. He had 6 cycles of FOLFIRINOX then whipples. Histology showed lymph nodes were diseased. Recurrence after only 3 months.. so back on FOLFOX (dropped irinotecan due to liver toxicity) Hes tired, often in pain, but we are now holidaying i...
by violetmia
Fri Jul 21, 2017 8:10 am
Forum: Advanced pancreatic cancer
Topic: Molecular Profiling
Replies: 4
Views: 6180

Molecular Profiling

Has anyone had tissue analysed for molecular profiling? This is being offered privately. It aims to diagnose the precise nature of your mutated cells, and show which biomarkers and enzymes they express. This can be matched to existing treatments to show a likelihood of good response. The question, I...
by violetmia
Sat Jun 17, 2017 7:16 am
Forum: Treatment & side effects
Topic: Ascites
Replies: 4
Views: 5779

Ascites

Can anyone tell me about how best to manage ascites? I'm aware the prognosis is very bad. I just want to help reduce my husband's pain and discomfort so he can enjoy some time with our family.

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