Search found 737 matches

by Dandygal76
Mon Jun 18, 2018 7:05 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 4
Views: 467

Re: Battling to get treament

I am also not on here much... the same as pw. However.. dealing with nhs and systems is my skill if you look at my thread for dad.. I can help you advocate for yourself quite effectively. Ask the nurses for my e.mail address if you would like sone help. pw mentioned there were people struggling and ...
by Dandygal76
Fri May 18, 2018 9:13 am
Forum: Family, friends and carers
Topic: Today was a hard day
Replies: 4
Views: 724

Re: Today was a hard day

I am so sorry you are going through this. Until you know what the situation is on Monday it is hard to advise on care - I would update us on Monday and in the meantime call the nurses at PCUK. It will all depend on whether she stays in the hospital, goes to hospice or comes home (to your home or her...
by Dandygal76
Mon Mar 26, 2018 10:24 pm
Forum: Ask the nurse
Topic: Vitamin B12/B6 supplements
Replies: 1
Views: 1124

Re: Vitamin B12/B6 supplements

Hey Janmac, Any vitamin regime I think would help and not cause your mum any problems. Steroids of some sort could also give a bit of a boost but mum would need to see her Dr for these. Be careful if you get high doses - I think B6 can cause a flush if I recall (if it is in high doses). It is really...
by Dandygal76
Sat Mar 24, 2018 1:33 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 194195

Re: Thanks for sharing your experiences . . .

My lovely Mo... the reality is that this is normal. The wordsmith in all of us (and we know I was a mighty one) just seems to dull over time with our great losses. I never managed to post on my dads thread again and I never realised that would happen... in fact I thought I would carry on with my wor...
by Dandygal76
Tue Feb 06, 2018 6:26 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 194195

Re: Thanks for sharing your experiences . . .

Yes V - it seems to be moving house or cars on the whole. For my mum she had posh paving put out the front. Whatever it takes to get us through. I did not have the cream thing but I had emergency stashes of creon eveywhere... pockets, car, little pots in the cupboard. I even found some just weeks ag...
by Dandygal76
Mon Feb 05, 2018 2:56 pm
Forum: Family, friends and carers
Topic: Question re time in end stage
Replies: 19
Views: 4559

Re: Question re time in end stage

I am so sorry... one day they will beat this vile disease. May your mum rest in everlasting peace. x
by Dandygal76
Thu Feb 01, 2018 11:57 pm
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 15638

Re: Don’t know where to start

Hi I am glad mum was better on steroids. I have not been on much but re the wedding, I would book as you see fit and then just ask for a break. If it was me (with hindsight) and you really want mum to enjoy it then I would have the week off before as well and her dr's should go for that. People have...
by Dandygal76
Thu Feb 01, 2018 11:47 pm
Forum: Family, friends and carers
Topic: Question re time in end stage
Replies: 19
Views: 4559

Re: Question re time in end stage

Hun, if your mum is fearful and reaching the end stage then they can help with that as well and sedate her a little more or something. Have you told them that she is agitated and fearful as well? We do know how tough it is but palliative care is not just about sickness and pain - it is the whole hol...
by Dandygal76
Thu Feb 01, 2018 11:38 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 194195

Re: Thanks for sharing your experiences . . .

It is a very surreal time after the funeral Mo... I have been reading everything but we are wobbling coming up to dad's year anniversary and I don't want to say the wrong thing which I can do when a bit emotional. It is humbling to see so many come to say goodbye and people you have not met. I also ...
by Dandygal76
Sun Jan 14, 2018 11:06 am
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 15638

Re: Don’t know where to start

Hi Christine, Don't wait to get people involved, call now - you need to nip these symptoms in the bud in my experience. They can get the pain under control - she should not be in pain. Perhaps also ask for some steroids as well to get her appetite up and give her some energy before you start treatme...
by Dandygal76
Sun Jan 14, 2018 10:48 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 194195

Re: Thanks for sharing your experiences . . .

I think you are all mad - it has to be Yorkshire Tea. Just when I thought I knew you all... whatever next! We had to wait 4 weeks for dad's funeral. He died on the 9th of February and was cremated on the 8th March. I am not sure what influence it had that the only input I had to his funeral was that...
by Dandygal76
Wed Jan 10, 2018 5:25 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 194195

Re: Thanks for sharing your experiences . . .

I am so sorry Mo, he was such a brave warrior. You both did so well and we are proud of you both and humbled.

Until you two meet again we will be forever by your side - you know where we all are.

Love you Mo.

DG
by Dandygal76
Wed Jan 10, 2018 1:11 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 194195

Re: Thanks for sharing your experiences . . .

You are getting a lot of cyber hugs sent to you Mo from all of us. All of dads brothers and sister came to dad on the night he died but at the end it was just my mum and my sister and I think that is how dad would have wanted it. Such strong warriors deserve to keep their dignity. Much love. DG
by Dandygal76
Tue Jan 09, 2018 10:45 pm
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 62
Views: 15638

Re: Don’t know where to start

Hey Christine, All these tablets etc and the illness can play havoc with the bowels. You need to get the GP on board but also try Imodium and stuff over the counter as it will not hurt your mum and is a very safe medication. As for the smoking - I am an ex smoker for 6 years and used to smoke 30 - 4...
by Dandygal76
Tue Jan 09, 2018 10:24 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 194195

Re: Thanks for sharing your experiences . . .

Hey Mo, There was some things M said to me that resonated on the night of dad passing. I did not want to go in there and I found the breathing very distressing - I remember saying to her I almost breathe for him with every breath. I only went back in for 2 minutes to stand on the edge and say my goo...

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