Search found 45 matches

by patrigib
Fri Nov 30, 2018 5:16 pm
Forum: Family, friends and carers
Topic: husband 50 months post diagnosis stage 4 - endoxan
Replies: 5
Views: 895

Re: husband 50 months post diagnosis stage 4 - endoxan

I forgot to tell you that there is no specific condition, no kidney or any other condition, only this cruel cancer. Don't know why they choose Endoxan. I think they just try something that helps him to have a better quality of life. This afternoon, he was able to have a game of card with his friends...
by patrigib
Fri Nov 30, 2018 5:11 pm
Forum: Family, friends and carers
Topic: husband 50 months post diagnosis stage 4 - endoxan
Replies: 5
Views: 895

Re: husband 50 months post diagnosis stage 4 - endoxan

Dear nurse, Thanks for your reply No, no private care , my husband is treated at the CHU of Liège ( university hospital). Abraxane is not avalable here in Belgium for pancreatic cancer, so he was given : folfirinox, folfiri, 5 fu maintenance, Gemzar, Taxol and now one pill of Endoxan 50 mg a day. Th...
by patrigib
Thu Nov 22, 2018 8:47 pm
Forum: Family, friends and carers
Topic: husband 50 months post diagnosis stage 4 - endoxan
Replies: 5
Views: 895

husband 50 months post diagnosis stage 4 - endoxan

My husband was diagnosed Sept 2014 stage 4 - pancan - liver mets. They gave him less than one year. Here we are, scan stable, so his oncologist will put him on edoxan ( oral chemo) because he feels tired. Anyone experience with this chemo? Thanks Sept 2014 : folfirinox, then folfiri, 5 fu maintenanc...
by patrigib
Sun Oct 14, 2018 8:27 pm
Forum: Patient Experience Forum
Topic: Just diagnosed
Replies: 28
Views: 5124

Re: Just diagnosed

Just to add some positive news and to give you hope. my husband was diagnosed Sept 2014 stage 4 ( liver mets, only has had chemo and still here. The doctors gave him less than one year at diagnosis.
Pat
by patrigib
Mon Jul 30, 2018 10:02 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 12194

Re: Battling to get treament

Just to give hope : my husband, now 75 was diagnosed stage 4 on 3rd Sept. 2014. He only has had chemo, and still alive, although very tired.
Statistics are what they are....
by patrigib
Fri Jul 06, 2018 2:24 pm
Forum: Family, friends and carers
Topic: My Mum's PC Diagnosis
Replies: 9
Views: 3026

Re: My Mum's PC Diagnosis

My husband was diagnosed stage 4 sept 2014 and given about 6 months to live, so I took a long term leave from my job and spent all my time with him. Meanwhile his only son died of cancer....so we are quite isolated; anyway, my husband is still there, still on chemo ( folfirinox, folfiri, 5 fu mainte...
by patrigib
Thu Jun 21, 2018 9:58 pm
Forum: Patient Experience Forum
Topic: Weight loss and not having chemotherapy
Replies: 2
Views: 2014

Re: Weight loss and not having chemotherapy

Sometimes you get reactions to a chemo regime the first few times only, or maybe you should ask for another type of chemo. I agree with you, you have to consider quality of life. Hope you'll find a solution.
by patrigib
Tue Apr 10, 2018 8:03 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 217562

Re: Thanks for sharing your experiences . . .

"Courage" Mo!!!! Great place for Peter to rest! You're still caring for him, don't you? Hugs
by patrigib
Thu Feb 15, 2018 2:27 pm
Forum: Patient Experience Forum
Topic: stage 4 long time survival without operation
Replies: 16
Views: 18983

Re: stage 4 long time survival without operation

Update on my husband. His latest scan shows shrinkage of all liver mets, GGT are much lower and his CA 19.9 is now down to 200. He is currently on Taxol as Gemzar didn't work anymore. As he feels quite tired and had infection ( cleared with antibiotics), he will have 2 weeks on and one week off inst...
by patrigib
Mon Feb 05, 2018 7:08 pm
Forum: Family, friends and carers
Topic: Question re time in end stage
Replies: 19
Views: 8923

Re: Question re time in end stage

So sorry for your Mum!
Pat
by patrigib
Mon Feb 05, 2018 7:05 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 217562

Re: Thanks for sharing your experiences . . .

Mo,
You don't need to be "efficient", or a "soldier" anymore. You just have to be nice to yourself ( and Boris).
Howl whenever you need, spoil Boris and yourself. Hope the car is nice.
Hugs
Pat
by patrigib
Tue Jan 23, 2018 10:46 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 217562

Re: Thanks for sharing your experiences . . .

Will be thinking of you tomorrow. The funeral will be perfect, either rainy or not.
Hugs
by patrigib
Fri Jan 19, 2018 8:02 pm
Forum: Family, friends and carers
Topic: New Diagnosis Limbo
Replies: 35
Views: 31291

Re: New Diagnosis Limbo

Very sorry for your Dad :(
by patrigib
Fri Jan 19, 2018 7:53 pm
Forum: Advanced pancreatic cancer
Topic: Is this the beginning of the end?
Replies: 7
Views: 6476

Re: Is this the beginning of the end?

My husband, diagnosed Sept 2014 stage 4 was very poor in May 2017, due to diabetes. Once this under control he was much better. In December 2017 He was very down, and I wondered if he would reach Xmas. Even though he is very tired because of chemo, he is ok. So I think pancan has it's ups and downs,...
by patrigib
Fri Jan 19, 2018 2:02 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 217562

Re: Thanks for sharing your experiences . . .

I agree with Veema and Sandiemac. Everything is around the patient and caregiving is sooo exhausting. You eat when he eats, sleeps whenever he lets you sleep, the worries, hospital, pain and all the stuff. Now it's high time to spoil yourself and don't put any more pressure on you for things being d...

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