Search found 41 matches

by patrigib
Mon Jul 30, 2018 10:02 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 7150

Re: Battling to get treament

Just to give hope : my husband, now 75 was diagnosed stage 4 on 3rd Sept. 2014. He only has had chemo, and still alive, although very tired.
Statistics are what they are....
by patrigib
Fri Jul 06, 2018 2:24 pm
Forum: Family, friends and carers
Topic: My Mum's PC Diagnosis
Replies: 9
Views: 1872

Re: My Mum's PC Diagnosis

My husband was diagnosed stage 4 sept 2014 and given about 6 months to live, so I took a long term leave from my job and spent all my time with him. Meanwhile his only son died of cancer....so we are quite isolated; anyway, my husband is still there, still on chemo ( folfirinox, folfiri, 5 fu mainte...
by patrigib
Thu Jun 21, 2018 9:58 pm
Forum: Patient Experience Forum
Topic: Weight loss and not having chemotherapy
Replies: 2
Views: 1258

Re: Weight loss and not having chemotherapy

Sometimes you get reactions to a chemo regime the first few times only, or maybe you should ask for another type of chemo. I agree with you, you have to consider quality of life. Hope you'll find a solution.
by patrigib
Tue Apr 10, 2018 8:03 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 205551

Re: Thanks for sharing your experiences . . .

"Courage" Mo!!!! Great place for Peter to rest! You're still caring for him, don't you? Hugs
by patrigib
Thu Feb 15, 2018 2:27 pm
Forum: Patient Experience Forum
Topic: stage 4 long time survival without operation
Replies: 16
Views: 16954

Re: stage 4 long time survival without operation

Update on my husband. His latest scan shows shrinkage of all liver mets, GGT are much lower and his CA 19.9 is now down to 200. He is currently on Taxol as Gemzar didn't work anymore. As he feels quite tired and had infection ( cleared with antibiotics), he will have 2 weeks on and one week off inst...
by patrigib
Mon Feb 05, 2018 7:08 pm
Forum: Family, friends and carers
Topic: Question re time in end stage
Replies: 19
Views: 6759

Re: Question re time in end stage

So sorry for your Mum!
Pat
by patrigib
Mon Feb 05, 2018 7:05 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 205551

Re: Thanks for sharing your experiences . . .

Mo,
You don't need to be "efficient", or a "soldier" anymore. You just have to be nice to yourself ( and Boris).
Howl whenever you need, spoil Boris and yourself. Hope the car is nice.
Hugs
Pat
by patrigib
Tue Jan 23, 2018 10:46 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 205551

Re: Thanks for sharing your experiences . . .

Will be thinking of you tomorrow. The funeral will be perfect, either rainy or not.
Hugs
by patrigib
Fri Jan 19, 2018 8:02 pm
Forum: Family, friends and carers
Topic: New Diagnosis Limbo
Replies: 35
Views: 27803

Re: New Diagnosis Limbo

Very sorry for your Dad :(
by patrigib
Fri Jan 19, 2018 7:53 pm
Forum: Advanced pancreatic cancer
Topic: Is this the beginning of the end?
Replies: 7
Views: 5293

Re: Is this the beginning of the end?

My husband, diagnosed Sept 2014 stage 4 was very poor in May 2017, due to diabetes. Once this under control he was much better. In December 2017 He was very down, and I wondered if he would reach Xmas. Even though he is very tired because of chemo, he is ok. So I think pancan has it's ups and downs,...
by patrigib
Fri Jan 19, 2018 2:02 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 205551

Re: Thanks for sharing your experiences . . .

I agree with Veema and Sandiemac. Everything is around the patient and caregiving is sooo exhausting. You eat when he eats, sleeps whenever he lets you sleep, the worries, hospital, pain and all the stuff. Now it's high time to spoil yourself and don't put any more pressure on you for things being d...
by patrigib
Wed Jan 17, 2018 12:54 pm
Forum: Family, friends and carers
Topic: Question re time in end stage
Replies: 19
Views: 6759

Re: Question re time in end stage

I hope your mother is better with her medication being reviewed. I also think that being a close parent or a caregiver is really exhausting. I start work again on Monday but will take a leave at Carnival, that will let them time to find someone for the job. I'm soooooo exhausted and I also feel guil...
by patrigib
Tue Jan 16, 2018 6:23 pm
Forum: Family, friends and carers
Topic: Question re time in end stage
Replies: 19
Views: 6759

Re: Question re time in end stage

Hello My husband was diagnosed stage 4 sept 2014 with life expectancy of 6 - 12 months. As his nephew died of the same desease 2012 at the age of 42, and only survived 6 months post diagnosis, I took a 7 months leave. Now it's 2018. I took 2 weeks this January as being so exhausted; yesterday my hus...
by patrigib
Mon Jan 15, 2018 1:09 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 40
Views: 14081

Re: Concerned husband

My husvand tolerated folfirinox relatively well. Pain, upset stomach and being tired is part of the desease. She may feel better after a few rounds of chemo. Pancreatic cancer has ups and downs. Hope she will tolerate the chemo.
Ask for stronger painmedication. People shouldn't experience pain.
by patrigib
Mon Jan 15, 2018 12:22 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 756
Views: 205551

Re: Thanks for sharing your experiences . . .

Vide Cor Meum is a lovely choice. Each time I listen to it, I feel moved. Go for whatever shoes you like as long as they are comfy, and........ I know what you mean whith putting on weigh. Sometimes Belgian beer is my best friend, as gin has been to you :oops: . Hope the arrangements don't give you ...

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