Search found 177 matches

by Ruthus
Sun Jul 16, 2017 7:22 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 123907

Re: Mum of 42 recently diagnosed inoperable PC

Hi all, this is Tony, Ruth's husband. Thank you for the messages of support, I read them all at the time, but haven't looked for a while. I was out cycling today where we had our last ride together only 4 months ago, hard to believe she died 3 months ago and that she was still out on her bike a mont...
by Ruthus
Wed Apr 12, 2017 8:12 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 123907

Re: Mum of 42 recently diagnosed inoperable PC

This is Tony, Ruth's husband, I am sorry to tell you that she passed away peacefully with her loving family around her early yesterday morning. Ruth found this thread a great source of support through her illness and the information and knowledge she gained from it helped her live as full a life as ...
by Ruthus
Sun Mar 26, 2017 9:40 am
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 123907

Re: Mum of 42 recently diagnosed inoperable PC

Marmalade I have increased my creon x
by Ruthus
Sun Mar 26, 2017 9:39 am
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 123907

Re: Mum of 42 recently diagnosed inoperable PC

Thanks Velma and Marmalade. I ate earlier last night but my stomach felt distended and full afterwards and my illeostomy didn't do anything. I went to bed around ten and had an uncomfortable night. My husband was worried my illeostomy maybe blocked and so did I as in the middle of the night it still...
by Ruthus
Sat Mar 25, 2017 10:23 am
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 123907

Re: Mum of 42 recently diagnosed inoperable PC

Morning all. I am just sat on our decking having a cup of tea in the sunshine. I love spring. I have a pre assessment tomorrow in preparation for starting 5FU chemotherapy in a couple of weeks. I am booked into a clinic in London on Wednesday to have nanoknife on three liver tumors which showed slig...
by Ruthus
Fri Mar 17, 2017 10:14 am
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 108824

Re: 36 yo adv pancr cancer patient treated in France

Hi there - I'm so pleased I've given you inspiration to get away on holiday. That's fabulous and will be so good for your well being. After many tears in the first few months after my diagnosis I seemed to have a psychological change where I just got on with my life and did as much as possible. I do...
by Ruthus
Fri Mar 10, 2017 12:32 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 123907

Re: Mum of 42 recently diagnosed inoperable PC

Hello all. As always I think about you all daily. I had the results of latest Thorax CT scan and contrast liver MRI scan yesterday. I was feeling unbelievably tense about the results as have now had a months treatment break. I had a bad feeling and was dreading what the doctor was going to tell me. ...
by Ruthus
Fri Mar 03, 2017 2:38 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 245424

Re: So far so good!

Dear Paige. What lovely words in memory of your father. Many memories to cherish and he sounds like a wonderful man. When I was first diagnosed in Nov 15 your fathers story gave me great advice and hope when there seemed to be no hope. Good luck running the ultra marathon. I have done two in the pas...
by Ruthus
Fri Feb 24, 2017 2:48 pm
Forum: Advanced pancreatic cancer
Topic: Travel Insurance
Replies: 4
Views: 7301

Re: Travel Insurance

Hi there I use MIA insurance as we travel to Spain frequently. My old insurance wouldn't insure me and others said no. I was recommended MIA by my cancer Centre. As long as the Consultant is happy to state the person is medically fit to travel and this is documented. MIA do single trip insurance. I ...
by Ruthus
Thu Feb 16, 2017 11:01 am
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 108824

Re: 36 yo adv pancr cancer patient treated in France

Hi there I have been meaning to post a longer response to your for a while now but as you well know time passes with appointments and treatment etc. I have just read your thread from start to finish and there are so many similarities to my experiences and story. The way your symptoms presented and h...
by Ruthus
Sat Feb 11, 2017 1:21 pm
Forum: Family, friends and carers
Topic: Thank you and our story... but we are not that far yet!
Replies: 433
Views: 122619

Re: Thank you and our story... but we are not that far yet!

Dear Leigha I am so very sorry for your loss. I have sent you a personal message on Facebook. I agree with all previous comments. You fought for your father every step on the way and never gave up. He must have been very proud of you to have such a loving daughter. Thinking of you and your family Ru...
by Ruthus
Thu Jan 26, 2017 4:27 pm
Forum: Patient Experience Forum
Topic: 25 year old male. Imminent diagnosis, I am almost certain
Replies: 82
Views: 54701

Re: 25 year old male. Imminent diagnosis, I am almost certai

This is fantastic news LS. The mind can be an incredibly powerful thing and I would strongly advise you seek a referral from your G.P for Cognitive Behavioural Therapy for health anxiety. CBT provides a specific treatment protocol for health anxiety. It's likely that if this is health anxiety other ...
by Ruthus
Wed Jan 25, 2017 10:48 am
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 123907

Re: Mum of 42 recently diagnosed inoperable PC

Hello all I think about you all every day although I don't read all the threads in detail. I'm in my last cycle of Gemcap. It will be a scan after this and then 12 week treatment break. I'm keeping busy and active. The strange thing is that I have had no hair loss with Gemcap but over the past few d...
by Ruthus
Sun Jan 22, 2017 2:26 pm
Forum: Family, friends and carers
Topic: Thank you and our story... but we are not that far yet!
Replies: 433
Views: 122619

Re: Thank you and our story... but we are not that far yet!

Dear DG. Sorry for responding so late but just want to say you are in my thoughts and I hope answers can be found quickly for your dads current situation. It's absolutely terrible for you all. Lots of love Ruth X
by Ruthus
Sun Jan 15, 2017 6:59 pm
Forum: Patient Experience Forum
Topic: 25 year old male. Imminent diagnosis, I am almost certain
Replies: 82
Views: 54701

Re: 25 year old male. Imminent diagnosis, I am almost certai

Dear Longseason It's terrible to feel the anxiety which you are feeling. I certainly don't want to sound dismissive of your symptoms but I think there has been excellent advice given to you. Of course you want to get to the bottom of your symptoms but if tests are coming back clear this is a positiv...

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