Search found 46 matches

by BlacJAC
Sat Dec 16, 2017 5:38 pm
Forum: General chat
Topic: A new Forum here?
Replies: 14
Views: 1774

Re: A new Forum here?

Having been guilty of this in the past myself, I can appreciate where both sides are coming from. Being in the undiagnosed part of any illness can and is very stressful, and can and is very debilitating at times. It's also true that having no answers can be every bit as bad as being faced with a cer...
by BlacJAC
Fri Dec 08, 2017 10:58 pm
Forum: General chat
Topic: Not feeling well at all and very worried.
Replies: 6
Views: 1094

Re: Not feeling well at all and very worried.

Hi, I hope you don't mind me replying. From my own personal experience, CT's, US and bloods all gave a picture perfect reading etc for my gallbladder. However, I needed a specific scan for the actual function and I think it's called a HIDA scan (could be wrong as it was so long ago). That was the on...
by BlacJAC
Fri Nov 03, 2017 12:11 pm
Forum: General chat
Topic: reliability of CT scans
Replies: 14
Views: 2670

Re: reliability of CT scans

Hi Fifi, I think you kinda misunderstood DG's previous point. You posting here isn't stressing people out, just a case most have enough to deal with without giving the 'what ifs' their time and effort and the added stress that would entail. Everyone here would give anything to be in your position wh...
by BlacJAC
Sun Oct 29, 2017 11:52 am
Forum: General chat
Topic: reliability of CT scans
Replies: 14
Views: 2670

Re: reliability of CT scans

Of course people have had CT scans that have failed to pick up anything whether it's been the pancreas or not. Only for there to have been an issue. All tests/scans will have some sort of failure rate attached to them. It's how things work. However, the likelihood of there being nothing is greatly i...
by BlacJAC
Sat Oct 28, 2017 11:38 am
Forum: General chat
Topic: reliability of CT scans
Replies: 14
Views: 2670

Re: reliability of CT scans

Lets say there was something going on and taking into account your weight loss, It's more likely to be your gallbladder than your pancreas. You don't need to have pain for there to be a GB issue. Because your CT was clear, I'd maybe see about getting a GB function test. A sluggish one can cause very...
by BlacJAC
Wed Oct 11, 2017 12:49 pm
Forum: Patient Experience Forum
Topic: My convoluted diagnostic thread
Replies: 58
Views: 34492

Re: My convoluted diagnostic thread

Hi folks. I saw the oncologist last Friday and it was a complete and utter waste of time. Sat for an hour to be taken, then once i did see the oncologist I was instantly brushed off with it's "generalised anxiety". My "fight or flight mechanism misfiring" This is going to sound almost laughable, but...
by BlacJAC
Wed Sep 13, 2017 8:31 pm
Forum: Patient Experience Forum
Topic: My convoluted diagnostic thread
Replies: 58
Views: 34492

Re: My convoluted diagnostic thread

Hi Jeni. Thank you very much for your email that went above and beyond what I expected a PC nurse to do for someone that remains undiagnosed. After talking to my GP today and after showing her your email she has reluctantly referred me on to an oncologist so she can "put my mind at rest". She stated...
by BlacJAC
Mon Sep 11, 2017 9:18 am
Forum: Patient Experience Forum
Topic: My convoluted diagnostic thread
Replies: 58
Views: 34492

Re: My convoluted diagnostic thread

Hi, been a while and thought I'd give an update. The 2 years since all this began has kinda been 2 of the unhappiest years of my life, but always used the mantra "It could have been worse" as witnessed by the stories strewn all over this site. Anyway, 3 weeks ago after an argument with my wife one n...
by BlacJAC
Mon Jan 23, 2017 3:06 pm
Forum: Patient Experience Forum
Topic: 25 year old male. Imminent diagnosis, I am almost certain
Replies: 82
Views: 38875

Re: 25 year old male. Imminent diagnosis, I am almost certai

Again, I can only echo what others have said, especially those sentiments that almost everyone on here would give anything for themselves or their loved one to be in your position. Even having red flag symptoms such as weight loss, non tender enlarged lymph nodes and pale and greasy stools (which i ...
by BlacJAC
Fri Jan 20, 2017 5:15 pm
Forum: Patient Experience Forum
Topic: 25 year old male. Imminent diagnosis, I am almost certain
Replies: 82
Views: 38875

Re: 25 year old male. Imminent diagnosis, I am almost certai

There really has to come a point where you have no option but to take some of these medical professionals at face value if you want to move on with your life. I was told so many things from different doctors etc over the last year or so that now I'm in a better place mentally, they all make sense. I...
by BlacJAC
Tue Jan 10, 2017 4:14 pm
Forum: Patient Experience Forum
Topic: 25 year old male. Imminent diagnosis, I am almost certain
Replies: 82
Views: 38875

Re: 25 year old male. Imminent diagnosis, I am almost certai

I know you said in your OP that you had seen a GI doctor privately for the colonscopy, but have you ever been referred to an NHS one through your GP? If not, then that is something they have to allow if you insist on it. Once there, see what s/he has to say. The most you're likely to get from an A&E...
by BlacJAC
Tue Jan 10, 2017 2:11 pm
Forum: Patient Experience Forum
Topic: 25 year old male. Imminent diagnosis, I am almost certain
Replies: 82
Views: 38875

Re: 25 year old male. Imminent diagnosis, I am almost certai

Just to let you know, there are 3 main types of IBS. IBS-D, IBS-C and an IBS which is a mixture of both. IBS-C can cause constipation and back pain. Most people assume IBS is all about rushing to the loo and stomach and bowel spasms, it's not. People just tend to talk more about the IBS that causes ...
by BlacJAC
Tue Dec 20, 2016 1:03 pm
Forum: Patient Experience Forum
Topic: 25 year old male. Imminent diagnosis, I am almost certain
Replies: 82
Views: 38875

Re: 25 year old male. Imminent diagnosis, I am almost certai

Ask to be referred to a GI consultant and the first thing I'd ask is to get a colonoscopy. Don't ask your GP as they don't tend to agree to them unless you have red flag symptoms. Whilst blood is a red flag symptom, if it's bright red, then they just pass that off as being a pile or a tear at your a...
by BlacJAC
Fri Dec 09, 2016 7:14 pm
Forum: Patient Experience Forum
Topic: 25 year old male. Imminent diagnosis, I am almost certain
Replies: 82
Views: 38875

Re: 25 year old male. Imminent diagnosis, I am almost certai

Hi longseason, I didn't mean to freak you out and it was never my intention to do so. However, you seem to be following the same pattern I went through during my entire diagnostic journey. It starts off thinking if you speak to a GP and s/he reassures you, you'll be fine, you read more, freak out mo...
by BlacJAC
Thu Dec 08, 2016 11:27 am
Forum: Patient Experience Forum
Topic: 25 year old male. Imminent diagnosis, I am almost certain
Replies: 82
Views: 38875

Re: 25 year old male. Imminent diagnosis, I am almost certai

The best piece of advice I received during my long and stressful pursuit of a proper diagnosis was from a GI consultant. It was not to look up symptoms on the internet because whether the information looks straightforward and easy to follow, we are in no position to put that information into context...

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