Search found 129 matches

by boa
Wed Nov 07, 2018 8:08 am
Forum: Advanced pancreatic cancer
Topic: Successful Surgery in Heidelberg Germany - Inoperable in UK
Replies: 29
Views: 33483

Re: Successful Surgery in Heidelberg Germany - Inoperable in UK

It's a long time since I posted here but as an 'old stager' I can maybe help. I don't have a view or experience on Heidelberg. However, it is worth reading a thread here entitled 'Mum of 42 recently diagnosed with inoperable PC' by Ruthus. It commences on 28 November 2015. It is in Patient Experienc...
by boa
Thu Aug 18, 2016 9:49 am
Forum: Advanced pancreatic cancer
Topic: Struggling with it all
Replies: 59
Views: 39666

Re: Struggling with it all

Very sorry to hear your news but so pleased Mark was comfortable at the hospice.
Catherine
by boa
Wed Aug 17, 2016 3:19 pm
Forum: Family, friends and carers
Topic: Our Journey without chemo
Replies: 261
Views: 73655

Re: Our Journey without chemo

Marmalade I don't post now but I have been keeping up to date with what has been happening. I was sorry to read that Louis died this morning but I'm so pleased it was peaceful. No matter how prepared any of us are for a loved one's death it is, nevertheless, agonisingly sad and I am thinking of you ...
by boa
Wed Jul 13, 2016 8:52 am
Forum: Family, friends and carers
Topic: Our Story
Replies: 33
Views: 18363

Re: Our Story

Thank you for responses. If anyone wants to stay in touch privately then I am happy for the moderator to give you my email. Best wishes to all.
by boa
Tue Jul 12, 2016 10:04 am
Forum: Family, friends and carers
Topic: Our Story
Replies: 33
Views: 18363

Re: Our Story

Today it is six months since Stephen died. Sometimes it has been difficult but there have been good times too. At the end of May on the day after what was the 68th anniversary of his birth his boating pals took the boat out on to the Firth of Forth and scattered his ashes. His brother in law (who si...
by boa
Mon Jul 11, 2016 1:48 pm
Forum: Treatment & side effects
Topic: New Treatments
Replies: 37
Views: 26021

Re: New Treatments

HI DG There is one comment above that I am concerned about. You say that PCUK have said on a thread that 'people seem to do better when they take control and do extra'. I don't think anyone ever said that because on what basis would they make that judgement. My husband was diagnosed early and was ab...
by boa
Sun Jul 10, 2016 3:43 pm
Forum: Treatment & side effects
Topic: New Treatments
Replies: 37
Views: 26021

Re: New Treatments

Hi Dandygirl I wasn't in any way offended by your post. You mention funding for Abraxane in Scotland and ?Wales. I'm not an expert on this but my understanding is that NICE did not approve funding for Abraxane for PC patients in England. However, for some time it was funded by the Cancer Drugs Fund ...
by boa
Fri Jul 08, 2016 10:41 am
Forum: Advanced pancreatic cancer
Topic: Struggling with it all
Replies: 59
Views: 39666

Re: Struggling with it all

Judith
Sorry to hear about this. I hope that the community team call soon and give some pain relief. You are both in my thoughts.
Catherine
by boa
Fri Jul 08, 2016 7:19 am
Forum: Advanced pancreatic cancer
Topic: Totally in awe of my wonderful Husband!
Replies: 494
Views: 140267

Re: Totally in awe of my wonderful Husband!

PW It is almost six months since my husband died. I can tell you that your feelings are the same as most of us in your situation and many of us wonder why we are allowed to carry on when a loved one couldn't. But the other thing I can tell you is that in time the feelings get better and you adjust t...
by boa
Fri Jul 08, 2016 7:06 am
Forum: Family, friends and carers
Topic: Our Journey without chemo
Replies: 261
Views: 73655

Re: Our Journey without chemo

Good morning Marmalade
It's so good to read your post. PC is so unpredictable that a quality of life story such as yours is good to read and to hear Louis is eating well and pottering happily. I hope you get to the street fair and it's not bucketing rain as it is here in Fife.
Catherine
by boa
Thu Jul 07, 2016 10:42 am
Forum: Treatment & side effects
Topic: New Treatments
Replies: 37
Views: 26021

Re: New Treatments

Hi Dandygal I'd just like to pick up on something you mentioned on Ruth's thread about under funding of PC research and drugs. Just over two years ago I had little knowledge of cancer at all despite the fact that my father and uncle had died of cancer but that was over fifteen years ago and things w...
by boa
Thu Jul 07, 2016 7:08 am
Forum: Family, friends and carers
Topic: My Lovely Father in Law
Replies: 4
Views: 6088

Re: My Lovely Father in Law

Hello Karen I'm sorry to hear your news about your father in law. I think you will find that the Hospice will be very good at managing pain and that he will be made very comfortable. Please don't feel helpless or useless as just writing here shows the support you are giving and it's clear from what ...
by boa
Tue Jul 05, 2016 10:59 am
Forum: Treatment & side effects
Topic: New Treatments
Replies: 37
Views: 26021

Re: New Treatments

This is an interesting debate and I certainly don't have any expertise on the subject. However, I think that the link W&M posted yesterday about the way new compounds are tested is very interesting. It is amazing how many compounds need to be tested before useful ones are identified.
Catherine
by boa
Tue Jul 05, 2016 10:51 am
Forum: Family, friends and carers
Topic: frustrated
Replies: 361
Views: 93015

Re: frustrated

Thinking of you and hope all goes well today.
Catherine
by boa
Sat Jul 02, 2016 7:48 am
Forum: Advanced pancreatic cancer
Topic: Totally in awe of my wonderful Husband!
Replies: 494
Views: 140267

Re: Totally in awe of my wonderful Husband!

PW
It's very good of you to want to help others. Just take time to yourself. Some of us here know exactly how you feel but we can also tell you that as time passes the feelings of sadness lessen. Post on your thread and let us know how you get on.
Catherine

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