Search found 424 matches

by Veema
Mon Feb 05, 2018 8:40 pm
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 48
Views: 4798

Re: Don’t know where to start

Nige had steroids for 4 days I think after his chemo, but he had folfirinox.

Vx
by Veema
Mon Feb 05, 2018 8:35 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 728
Views: 143984

Re: Thanks for sharing your experiences . . .

It's funny what sets us off...but it's okay to howl. I went round all last week wearing Nige's aftershave that I found at the back of the bathroom cupboard when I was clearing out for my new bathroom being fitted...bet everyone thought I was a lesbian (his lesbian ex-wife used to wear aftershave). I...
by Veema
Mon Feb 05, 2018 2:45 pm
Forum: Family, friends and carers
Topic: Question re time in end stage
Replies: 19
Views: 1435

Re: Question re time in end stage

So sorry, huge hugs...I hope she was peaceful.

Vx
by Veema
Sun Feb 04, 2018 3:41 pm
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 48
Views: 4798

Re: Don’t know where to start

Chemo really isn't as bad as people think...our unit was a lovely little one, we saw the same patients almost every time we went and you get to know them. I thought it would be a miserable place, but it was really upbeat and jolly. My husband had folfirinox and we were there most of the day, so took...
by Veema
Fri Feb 02, 2018 8:30 pm
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 48
Views: 4798

Re: Don’t know where to start

Christine, it's a juggling act with the creon...my husband took about 6 of the 25000 strength with a meal and 2 or 3 with a snack...and if he had a glass of milk or a milky coffee etc, he took them with that too. He was never advised to take with medication though...what medication does she take? Li...
by Veema
Fri Feb 02, 2018 12:30 pm
Forum: Family, friends and carers
Topic: Question re time in end stage
Replies: 19
Views: 1435

Re: Question re time in end stage

Does your hospice not have a hospice at home service? Might be something worth asking about and it will help you immensely.

Vx
by Veema
Thu Feb 01, 2018 9:52 am
Forum: Family, friends and carers
Topic: Biopsy results
Replies: 4
Views: 475

Re: Biopsy results

Don't worry, the forum rules post is always there as a reference. I think you've already been dealt the worst blow in hearing that she has inoperable pancreatic cancer...the rest is just background noise to be honest. I don't think they'll give you timescales unless you specifically ask, and even th...
by Veema
Tue Jan 30, 2018 6:31 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 16
Views: 1458

Re: Concerned husband

I don't know if I mentioned this earlier and it might be a load of tosh, but our chemo nurses recommended napolina plum tomatoes to boost neutrophils...only napolina though...my husband had these and his neutrophils were never too low...like I say, could be rubbish (maybe the nurse had shares in nap...
by Veema
Tue Jan 30, 2018 6:02 pm
Forum: Family, friends and carers
Topic: Question re time in end stage
Replies: 19
Views: 1435

Re: Question re time in end stage

I can only send virtual hugs...many of us have been where you are now and know how tough it is.

Much love and strength,

Vx
by Veema
Mon Jan 29, 2018 6:39 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 16
Views: 1458

Re: Concerned husband

Not sure exactly what you are referring to...there are many different things that they check in the blood before chemo goes ahead...my husband sometimes had low potassium or calcium, and sometimes his neutrophils were a bit low, but he never had to inject himself... Hope her bloods are ok for the ne...
by Veema
Sat Jan 27, 2018 9:18 pm
Forum: Treatment & side effects
Topic: Creon side effects or PC symptom?
Replies: 7
Views: 927

Re: Creon side effects or PC symptom?

I don't know if it will help constipation, but should help her tummy to empty more quickly, so she doesn't feel as full. I bought a nutri ninja blender when Nige was diagnosed and it really seemed to help...every day he'd have a smoothie with mango, pineapple, banana, spinach and kale with almond mi...
by Veema
Sat Jan 27, 2018 9:09 pm
Forum: Family, friends and carers
Topic: Don’t know where to start
Replies: 48
Views: 4798

Re: Don’t know where to start

I can't help as my husband had a different chemo, but would imagine it would be better on her week off as her body will be getting ready for the next lot.

Vx
by Veema
Fri Jan 26, 2018 7:56 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 728
Views: 143984

Re: Thanks for sharing your experiences . . .

Well done Mo...sounds like it was a lovely service and even the best laid plans go awry sometimes, I'm sure Peter wouldn't have minded.

Don't be a stranger.

Vx
by Veema
Tue Jan 23, 2018 8:57 pm
Forum: Treatment & side effects
Topic: Creon side effects or PC symptom?
Replies: 7
Views: 927

Re: Creon side effects or PC symptom?

I'd just like to add that some of the anti sickness meds also aid the emptying of the stomach, metoclopramide for instance...my husband took that, even though he didn't feel sick to help with emptying of the stomach when he was struggling to eat, so if she's prescribed that, she should keep taking i...
by Veema
Tue Jan 23, 2018 8:48 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 728
Views: 143984

Re: Thanks for sharing your experiences . . .

I will be thinking of you and Peter tomorrow Mo...I'm sure he'd be thrilled at the effort you have put in. You may surprise yourself and be really calm...I never shed a tear at either Nige's or my Dad's funeral, which I thought was odd considering I have, in the past, cried at many a passing hearse ...

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