Search found 470 matches

by Veema
Thu Jun 21, 2018 5:34 pm
Forum: Ask the nurse
Topic: Creon Shortage
Replies: 2
Views: 141

Re: Creon Shortage

This happened when my husband was taking it and he ended up with 10000s...not ideal when he was already taking between 6 and 8 25000s per meal.

I'm pretty sure there is another brand too...but can't remember what it's called.

Vx
by Veema
Thu Jun 21, 2018 5:33 pm
Forum: Patient Experience Forum
Topic: Weight loss and not having chemotherapy
Replies: 2
Views: 93

Re: Weight loss and not having chemotherapy

Hi Suzy Have you read Marmalade's thread 'our journey without chemo'? Might give you a bit of insight. I'm assuming that the fluid is in the abdominal cavity if it's surrounding his organs...if so, this can be drained and will make him much more comfortable. However, from my own experience, the appe...
by Veema
Tue Jun 05, 2018 7:23 pm
Forum: Advanced pancreatic cancer
Topic: THE HIDDEN ENEMY
Replies: 9
Views: 1730

Re: THE HIDDEN ENEMY

It is a cruel disease Jennifer...the downslide can be rapid. With a bit of luck, he may pick up from the sepsis.

Much love

Vx
by Veema
Tue May 29, 2018 7:08 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 22
Views: 3389

Re: This cruel disease

She has entirely the right attitude. I am convinced that it was his positive attitude that got my husband as much time as we got.

I hope she enjoys the school holidays.

Vx
by Veema
Tue May 22, 2018 7:26 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 36
Views: 9038

Re: Concerned husband

Great news that the tumours are reducing...but I have to say, that good as trials are, I wouldn't want to risk getting the placebo, especially as the chemo she is currently on seems to be working well.

Good luck with whatever you decide.

Vx
by Veema
Fri May 18, 2018 9:39 pm
Forum: Family, friends and carers
Topic: Today was a hard day
Replies: 4
Views: 723

Re: Today was a hard day

I agree, it's best to be honest with the children, they will resent you and not trust you otherwise. My daughter was 8 when my husband was diagnosed and 10 when I had to tell her he was going to die...she had a cry, said she loved him and then went out to play. Macmillan have a leaflet on dealing wi...
by Veema
Mon May 14, 2018 10:02 pm
Forum: Family, friends and carers
Topic: Dad diagnosed with PC Cancer
Replies: 4
Views: 663

Re: Dad diagnosed with PC Cancer

Hi Jen I used procal powder to add to my husband's food...they were great as they add calories and protein without altering taste or texture. The best thing would be to encourage him to eat just what he fancies...all my husband fancied at times was cereal, the consultant said eat cereal then. My hus...
by Veema
Wed May 09, 2018 11:18 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 22
Views: 3389

Re: This cruel disease

Good on all fronts...good bloods, good appetite and good stable disease. You're right Keith...even the tiniest spark of positivity makes a huge difference.

Vx
by Veema
Fri May 04, 2018 6:43 am
Forum: Family, friends and carers
Topic: Attendance allowance
Replies: 2
Views: 667

Re: Attendance allowance

I was under the impression that pancreatic cancer was a qualifying disease and should be accepted. I suppose it depends on the prognosis...I think life expectancy has to be 6 months or less, which hopefully, following the treatment isn't the case. Have you got a palliative care team? They may be abl...
by Veema
Thu May 03, 2018 7:04 pm
Forum: Advanced pancreatic cancer
Topic: Mum diagnosed with advanced PC - head is in a whirlwind
Replies: 7
Views: 1704

Re: Mum diagnosed with advanced PC - head is in a whirlwind

Keep an eye on her abdomen...it might be an idea to measure it...fluid (ascites) can build up in and around the abdomen, particularly if the liver is affected.

Vx
by Veema
Thu May 03, 2018 9:16 am
Forum: Advanced pancreatic cancer
Topic: THE HIDDEN ENEMY
Replies: 9
Views: 1730

Re: THE HIDDEN ENEMY

Hi Jennifer, sorry you've had to find us. Jaundice is absolutely horrible and I think was the time my husband was most unwell throughout the whole progression of the disease. The itching is unbearable and I can understand G not sleeping and feeling pretty rotten...atarax is a strong antihistamine ty...
by Veema
Wed May 02, 2018 8:10 am
Forum: Coping with loss/ Memorial
Topic: Moving on . . . .
Replies: 7
Views: 1859

Re: Moving on . . . .

My confidence is nil. And I used to have it in bucketloads...I've worked all over the country, lived alone in many different places and more or less tackled anything that was thrown at me...now I'm a quivering wreck at the thought of going to asda on my own! I still do stuff because I have to...like...
by Veema
Tue May 01, 2018 12:12 pm
Forum: Coping with loss/ Memorial
Topic: Moving on . . . .
Replies: 7
Views: 1859

Re: Moving on . . . .

And soldier on we must...but I'm here to tell you that it doesn't get any easier. People say time heals, but it doesn't. People say that you learn to live with it, but I'm 18 months down the line and find myself crying much more and generally just feeling very morose a lot of the time. I feel like m...
by Veema
Sat Apr 28, 2018 9:32 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 22
Views: 3389

Re: This cruel disease

Keith, I've posted this a few times in the past on other threads, and it might be a load of rubbish, but our chemo nurses said napolina plum tomatoes have something in them which helps keep neutrophils up...it might be worth a try. The other thing I did was buy a nutri ninja blender and made my husb...
by Veema
Fri Apr 27, 2018 6:42 am
Forum: Patient Experience Forum
Topic: Feeling frightened
Replies: 2
Views: 1525

Re: Feeling frightened

So sorry to hear the diagnosis Sue, it must be a scary time. It's hard to comment on the outcomes of clinical trials as it's new territory. My husband's tumour shrunk with folfirinox, but it hadn't spread outside the pancreas at that time. Your husband will be entitled to PIP payments if he's under ...

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