Search found 475 matches

by Veema
Sun Jul 15, 2018 7:52 am
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 8
Views: 331

Re: First folfirinox experience

Amazing ladies...its great that you've got each other for support. It's sometimes hard for us as carers to give the right sort of support to those of you suffering with the disease...no matter what we've been through, it's nothing compared to you guys going through it first hand. Glad the PICC line ...
by Veema
Sat Jul 14, 2018 9:16 am
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 8
Views: 331

Re: First folfirinox experience

Haven't you got a PICC line in? My husband had folfirinox and had to have a PICC line to enable him to come home with the pump attached...haven't you got a pump delivering a further 46 hours of chemo? I remember the oxilaplatin making my husband's mouth all funny. You shouldn't be too bad in this wa...
by Veema
Fri Jul 13, 2018 8:05 am
Forum: Ask the nurse
Topic: Creon Shortage
Replies: 4
Views: 700

Re: Creon Shortage

I read somewhere the other day that supplies of the higher doseage capsules will be available shortly.
by Veema
Sat Jul 07, 2018 3:36 pm
Forum: Advanced pancreatic cancer
Topic: Diagnosed too late for treatment
Replies: 8
Views: 711

Re: Diagnosed too late for treatment

Hi, and welcome...it's a truly awful disease and often not found until it has reached it's critical mass. Unfortunately, it does sound as though there's not a lot that can be done, but please give the nurses a ring and they will be able to point you in the right direction if there is something that ...
by Veema
Sat Jun 23, 2018 9:00 am
Forum: Family, friends and carers
Topic: Accelerate Trial
Replies: 4
Views: 476

Re: Accelerate Trial

Hi Kerry It does sound as though your Dad's disease is fairly well progressed. It's great that he's been offered the trial and there's no harm in giving it a go if he's accepted on it. It's in the nature of all us carers to want them to fight to the bitter end, but it's good that you've got it in yo...
by Veema
Thu Jun 21, 2018 5:34 pm
Forum: Ask the nurse
Topic: Creon Shortage
Replies: 4
Views: 700

Re: Creon Shortage

This happened when my husband was taking it and he ended up with 10000s...not ideal when he was already taking between 6 and 8 25000s per meal.

I'm pretty sure there is another brand too...but can't remember what it's called.

Vx
by Veema
Thu Jun 21, 2018 5:33 pm
Forum: Patient Experience Forum
Topic: Weight loss and not having chemotherapy
Replies: 2
Views: 539

Re: Weight loss and not having chemotherapy

Hi Suzy Have you read Marmalade's thread 'our journey without chemo'? Might give you a bit of insight. I'm assuming that the fluid is in the abdominal cavity if it's surrounding his organs...if so, this can be drained and will make him much more comfortable. However, from my own experience, the appe...
by Veema
Tue Jun 05, 2018 7:23 pm
Forum: Advanced pancreatic cancer
Topic: THE HIDDEN ENEMY
Replies: 9
Views: 2302

Re: THE HIDDEN ENEMY

It is a cruel disease Jennifer...the downslide can be rapid. With a bit of luck, he may pick up from the sepsis.

Much love

Vx
by Veema
Tue May 29, 2018 7:08 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 25
Views: 4256

Re: This cruel disease

She has entirely the right attitude. I am convinced that it was his positive attitude that got my husband as much time as we got.

I hope she enjoys the school holidays.

Vx
by Veema
Tue May 22, 2018 7:26 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 40
Views: 10228

Re: Concerned husband

Great news that the tumours are reducing...but I have to say, that good as trials are, I wouldn't want to risk getting the placebo, especially as the chemo she is currently on seems to be working well.

Good luck with whatever you decide.

Vx
by Veema
Fri May 18, 2018 9:39 pm
Forum: Family, friends and carers
Topic: Today was a hard day
Replies: 4
Views: 948

Re: Today was a hard day

I agree, it's best to be honest with the children, they will resent you and not trust you otherwise. My daughter was 8 when my husband was diagnosed and 10 when I had to tell her he was going to die...she had a cry, said she loved him and then went out to play. Macmillan have a leaflet on dealing wi...
by Veema
Mon May 14, 2018 10:02 pm
Forum: Family, friends and carers
Topic: Dad diagnosed with PC Cancer
Replies: 4
Views: 855

Re: Dad diagnosed with PC Cancer

Hi Jen I used procal powder to add to my husband's food...they were great as they add calories and protein without altering taste or texture. The best thing would be to encourage him to eat just what he fancies...all my husband fancied at times was cereal, the consultant said eat cereal then. My hus...
by Veema
Wed May 09, 2018 11:18 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 25
Views: 4256

Re: This cruel disease

Good on all fronts...good bloods, good appetite and good stable disease. You're right Keith...even the tiniest spark of positivity makes a huge difference.

Vx
by Veema
Fri May 04, 2018 6:43 am
Forum: Family, friends and carers
Topic: Attendance allowance
Replies: 2
Views: 828

Re: Attendance allowance

I was under the impression that pancreatic cancer was a qualifying disease and should be accepted. I suppose it depends on the prognosis...I think life expectancy has to be 6 months or less, which hopefully, following the treatment isn't the case. Have you got a palliative care team? They may be abl...
by Veema
Thu May 03, 2018 7:04 pm
Forum: Advanced pancreatic cancer
Topic: Mum diagnosed with advanced PC - head is in a whirlwind
Replies: 7
Views: 1965

Re: Mum diagnosed with advanced PC - head is in a whirlwind

Keep an eye on her abdomen...it might be an idea to measure it...fluid (ascites) can build up in and around the abdomen, particularly if the liver is affected.

Vx

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